Overactive Thyroid Graves Part 4

Posted , 60 users are following.

We all have Graves Disease or overactive thyroid issues, most of us have been through RAI and are now on thyroxine.

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  • Posted

    Hi all

    Got my results yesterday and tsh is now 1.97

    Didn't get my t4 results but will get them done next month when i see specialist.

    So after 6 weeks on thyroxine 25mg it looks like I need this small dose to keep me within range .

    Hope you are all ok?

    Take care baz

  • Posted

    Hello everyone.

    Hi Jackie. Are your eyes any better? I find that artificial tears help a lot. I was referred to the thyroid eye clinic at a local hospital by my endo. Are your eyes watery? That might be making your vision blurred. If your eyes are dry they will water to compensate.

    Maria. I hope you're enjoying your holiday, and you're feeling better.

    Barry. It does sound like you only need 25 mcg. of Thyroxine. I always think that it's surprising that such a small tablet can make such a difference. It'll be interesting to see what your t4 is.

    Hasn't it been a lovely day? Spring has sprung. lol.

    Thinking of everyone.; Take care.

    love,

    Marigold

    xxx

  • Posted

    Hello everyone, how are you doing ?Marigold, how are your fingers? I wondered at first if it could be Raynauds Syndrome, I have had this for years and my fingers sometimes go blue or white. The difference is that it only last for a while and when my fingers are back to temperature it painfully returns to normal colour. Baz, it sounds if you are doing ok - we told you chocolate was the cure ! lol.

    Kat, hope you have more energy now, its horrible when everything feels like such an effort.

    Jane, thinking of you and hubby, how are things going ?

    Sue, pleeeeease, get in touch, we are all here for you. Thnking of you and sending hugs.

    Dammit, I cant remember the other posts now, hope you are all ok !! I have a new computer and hav en't fixed up the printer yet, otherwise I could print off the posts and reply properly.

    Marigold, I had to up the Propanolol to 40 mgs. twice daily because the migraine aura and anxiety became difficult to deal with. Things seem to have quietened down and I have reduced it to 20 mgs twice daily with the hope of stopping it altogether. Trouble is, when I stop I am aware of my heart thudding away, not palpitations, just beating hard sometimes, This makes me anxious and off I go again - what a twit I am ! Am due for a blood test in a couple of weeks so see how things are going, I'm not too bad really but my eyes are rather puffy,especially in the mornings, Anyone else got this ? I had it very badly when first diagnosed, I looked as if I had been in a fight !

    Take care all,hope you doing ok - hang on in there.

    Bess xxx Ps. Deb, Elaine, Dave and all, where are you -= are you ok ? x

  • Posted

    Hi Bess. Yes, my fingers are fine now thanks.. I think I must have nipped them or something. I do tend to bruise very easily.

    It's a vicious circle with the Propranolol isn't it? I was still taking it when I was supposed to have stopped, and got into bother. lol. The doctor wouldn't give me any more prescriptions so I had to stop. I've got on fine without it (just as well really). lol My heart seems to thump away in bed, but I think it's probably because it's more noticeable then.

    I've booked a blood test for three weeks time, six months since the last one so it'll be interesting to find out the results.

    It might help your puffy eyes if you try an extra pillow. If your head is raised a bit more the fluid will be able to drain more easily. I haven't had puffy eyes, but had bad fluid retention in my legs when I was hyper. Take care.

    Hoping everyone else is ok. Sue we're worried about you. Please let us know you're ok.

    love,

    Marigold

    xxxx

  • Posted

    hi bess and marigold ..I have only just started to feel something like ,thought it would never end ,Just had a letter from endo with my latest results on tsh low at 0.13 free t4 normal at 15.7 and total t3 normal at 2.1 and if my tsh is still less than 0.4 to reduce my thyroxine further .I wonder how the endo would cope if he had the same as us ,i for one know he wouldnt have been able to go to work feeling like i have done the last few weeks ,lol i am sat here in dust and untidy clutter everywhere lol no energy to do anything feeling a miserable sod who doesnt want to read write or talk so you can imagine the relief when i woke up one day and thought OMG i feel better dont know what happend but its a nice feeling lol

    still get a bit breathless and soon tire easily .I am having the Diltizan reduced and by wednesday i will be on one tablet for a week then stop ,i have been reading the side effects on these pills and the dry mouth sore gums and lips are one of them aswell as making you feel light headed ,faint tired and quite afew more.like wheezing so if i get any more thyroid symptoms the doc cant blame the pills lol .I am so glad that the both of you are okay and thankyou for being here for me ,love you both sue xx

  • Posted

    Hi everyone ,Marigold and Bess you were right about me being hyper no wonder i was feeling yuk,i am still getting night sweats and have got that tickle in my throat again that i had when i was hyper ,i feel quite well again this morning so going to knock some of that dust away lol and tidy up .Do you think the rai has worked on my multi nodule goiter having this tickle again ?The endo did say my thyroid could still be working at last app ,luckily i see him at the end of may,

    Tonight my son and 4daughters are going out for a meal so looking forward to that .Son is treating me .how you both and everyone else is well love sue xx

  • Posted

    Hello everyone,

    Sue, so good to hear from you. I'm pleased you're feeling a bit better and the black cloud is lifting. It seems to me that bloods can be slightly out of range or even within range and yet we still have these symptoms. Trouble is, the doctors don't seem to know this and don't always listen. I too have this throat thing, it comes out as an irritable cough, especially when I try to talk on the phone, I have to keep clearing my throat. My daughter calls it my thyroid cough! Good luck with the dusting etc. - don't do too much ! Have a lovely meal, I think you are back on the up thank goodness. lots of love xx

    Marigold, thanks for the advice about the extra pillow, I'm sure that will help. It will be interesting to see how your blood results are after such a long time. Its good that you are feeling ok, do you think you could get yourself round to Sue's and mine with your dusters and give us a hand? lol. xx

    How's everyone today ? Thinking of you and hoping you all ok.

    Bess xx

  • Posted

    Hi Sue.I'm so pleased to hear from you, and pleased you're feeling brighter. You certainly sound better. Bess, is right they take too much notice of the blood results, and not enough notice of how we're feeling. We know what we feel like. If we'd all had our thyroid levels checked before we started with this silly illness they would all have been different, so why should they all be the same now?

    Don't do too much housework and wear yourself out, remember it'll still be there tomorrow.

    Don't do today what you can put off until tomorrow. lol I hope you enjoy your meal. xxxxxx

    Hi Bess. I'll pop round to your house and Sue's with my duster. I had to get my feather duster out the other day, there was a big cobweb on the kitchen ceiling.The sun shows up all the dust doesn't it?

    I didn't sleep well last night. I had one of those hot, fidgety nights. I get them occasionally, and I don't know what sets them off. Take care.

    Hope everyone else is ok.

    love,

    Marigold

    xxx

  • Posted

    Hi everyone ,hope you are all feeling well .I am happy to say i am still feeling good and hoping it will stay this way for a while at least.

    I enjoyed a lovely night out with my children and had your favourite Marigold Fish ,infact both me and my son had fish ,he does alot of sea fishing so manages to catch his own lol.

    I am still getting cramps and night sweats and the odd palpatations but not as bad as before ,i have also got that tickle in my throat that i had when i was hyper so i think my thyroid must still be working ,i hope they dont offer me rai again as i would refuse it ,i am sure they can do it with tablets ,

    Thanks for doing my dusting hope it didnt make you sneeze, bess made a good job of my bedrooms lol.Anyway it shouldnt be long before the new arrival, bet you are excited marigold ,i hope alls well with your daughter in law .omg my brains gone ,was going to ask bess something and its gone lol sorry Bess

    Better get off to bed

    happy mothers day to you all hope you all get spoilt

    love to you all

    love sue xx

  • Posted

    Hi Sue.

    I'm pleased you had a lovely night with your children. It would do you good. What kind of fish did you have?I've had some smoked haddock today.

    You sound so much better. You must feel as though you're back in the land of the living. lol

    I sneezed and sneezed when I was doing your dusting. lol. The new baby is due at the end of April, not long now. Our daughter-in-law is going for a scan on Monday as they think the baby is growing too fast, or she has too much fluid. I think the baby might come early. We'll be looking after our little gdaughter. We'll be worn out. lol.

    Happy mother's day.

    love to everyone.

    Marigold,

    xxxxx

  • Posted

    Hi you lot,

    Happy mother's day tomorrow.

    I know you're all very knowledgeable, so can you help me with something? My 1st visit to Endo doc was Feb 6th, then was given 20gms Carbimazole, as you know. I started getting really itchy, so another doc asked me to see him last Weds. I had a blood test done, but doc kept me waiting for over an hour & a half without explanation, & I left (cause I was getting agitated & thought it's not worth it)...I used to be SO calm and easygoing until these pills! He phoned & I said I wouldn't go back to him, and would wait for my appointment booked in April....I've now just received a letter saying they are so sorry to inconvenience me but my appointment is postponed until October!!! Where do I stand? I'm mad, & feel like throwing the tablets all over their waiting room!

    jackie x

  • Posted

    Hi Jackie. Was it another endo you saw last Weds? I can understand how you felt. I walked out on my GP, and that was before I started on the tablets. lol

    You need to get the results of the blood test that was done. If I were you I'd make an appointment with my GP, ask him to get the results then at least you'll know where you stand with regard to your thyroid levels. Then I'd tell him you're not prepared to wait until October, it's six months for goodness sake, and ask him to arrange an earlier appointment.

    Good luck. Happy mother's day.

    Marigold

    xxx

  • Posted

    Thanks Marigold, that's exactly what I'll do.

    Hope you have fun with your granddaughter, & do't let her completely wear you out!

    I hope everyone is feeling their very best.

    Jackie x

  • Posted

    Hi Everyone, just a quick post to say Happy Mother's Day, am waiting for my tribe to arrive. I hate them having to drive nearly 3 hours in thisweather. I think we may all have to have a quiet lie down this evening ! Take care,

    Bess xx

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