Perimenopause and SEVERE joint pain - any one else??

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Hi

I am 50 and have been in perimenopause for some time. I just wanted to post here to see if anyone else has suffered extreme joint pain as a result of fluctuating estrogen.

Quick history: regular as clockwork from the age of 13 - up to and after the two pregnancies in my thirties.Then aged 47 I started to get very heavy and irregular periods. Then I went for six months with no period at all, then two very scant light periods in quick succession. I have had nothing now for two months but I do feel as if it might happen soon as sore boobs etc.

I have never had a hot flush. I do however have lots of other peri symptoms, including insomnia, heart palpitations and skipped beats, and a strange 'rushing' or whooshing feeling which starts in the abdomen which I think is an 'adrenal' surge. I also have other vague and odd symptoms, dry eyes and inside my nose, and a really vile taste in my mouth sometimes - I mean really vile, like a chemical taste, unrelated to anything I have eaten. I also have odd tingling skin sometimes, which I can only describe as feeling like 'cold' sunburn!

However, about the joint pain. Three months ago I literally woke up one morning with a sore left arm/elbow. Over a few days, the pain then moved into my shoulders, and I got really worried as if was incredibly painful, and showed no signs of going away, it just got worse and worse. It is worse in the morning when I wake up, I am as stiff as a board. It is on my mind 24/7. Doing normal things is almost impossible - I have problems carrying shopping, drying my hair,walking the dog, driving...everything seems to hurt . I have never suffered from arthritic pain, and I went to the doctor thinking I had some awful bone disease, or even polymyalgia. I was told I had nerve pain!! The GP was terrible and made me feel like a hypochondriac and it was all in my mind. I was told I had good range of movement, and no inflammation. But I am in agony, and i am not imagining it.I made the mistake of asking Dr.Google too, which is never a good idea as I scared myself half to death. I never even thought it could be related to hormones or menopause, as the pain was just SO bad and I had never heard of joint pain being a symptom.I mean I have read than meno can be bad for some women, and I expected hot flushes etc, but I didnt realise it meant pain like this.

Anyway - for the last few weeks I have been having worsening pain which has spread from left elbow and both shoulders, into left hip, both elbows and now my knees. All my joints are cracking and popping loudly and even my husband can hear the awful grating in my neck and my knees....I sound like a one man band as I go up and down the stairs!

I went In for my three yearly Cervical smear on Monday, and could hardly get up on the examining couch I was so stiff and sore. Womans health is dealt with by the Nurse Practitioners in our large practice (15 GP's) and when the NP saw my discomfort she asked me what was wrong. It turns out she has a real interest in womens health, and has been involved in HRT trials and research for many years. She informed me that my symptoms all point to fluctuating estrogen, and possible thyroid involvement. She told me a load of stuff about estrogen and cartilage, dry mucosa etc, the details of which I can't remember now but which made so much sense when she explained it - even down to the foul taste and tingling skin I have also experienced on and off for months which are both known side effects of estrogen surge as the ovaries go a bit haywire. Asmall percentage of women are very receptive to estrogen fluctuations which involve cartilage, which mainly manifest as abnormally severe joint pain/menopausal arthritis but it is not an 'obvious' symptom of perimenopause.

I asked why the GP was no help, and she just raised her eyebrows when I told her which male GP it was, and told me to make another appointment as soon as possible with a specific GP (who must be more knowledgeable about womens health.) Going in tomorrow to see her.

I can't do HRT as I have a heart condition, but maybe I can do estrogen cream, or phytoestrogen/soy.) It could last for a long time I guess until I come out the other side !

So i have not yet been diagnosed, but it sounds like it could be caused by estrogen. Sorry this has been so long....but anyone else out there feel the same way I do???

Lesley.

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  • Posted

    Lesley, it's been a year since your post. How are you now? Can you give an update?

  • Posted

    Hi Leslie good to hear you are improving. This has been so helpful to me. I am 56 and have suffered this muscle/tendon/joint pain for about 2 years. The doctor was useless and when I asked if it could be hormonal he said it's possible!! That's all. I think I have completed the old menopause but as I have not really had any bad symptoms other than extreme pain it has all been a bit of a mystery to me and After a few visits to the doctor I gave up questioning. Everything you said matches me so now I feel another visit to the doctors is a must but I think I will try to request a specific doctor. Currently I feel like a 90 yest old...in fact I have seen elderly people with far more agility than me. This all came on so sudden after stopping my pill injection and then having the old Meno.

    Thank you do much for your post. Hourly it will help others.

  • Posted

    So pleased that I found this discussion today.  What I can't believe is that if so many of us are having the same symptoms during menopause, why can't GPs put our minds at rest in the first instance by telling us it's normal.  Although that wouldn't help the pain, at least we wouldn't be worrying about it all being 'in the mind'.  I'm coming up to 54, had my last period 2 years ago and been having hot flushes for longer than 2 years I think, at the time of them starting, I wasn't thinking menopause, as they were intermittent.  What I find difficult to deal with is what I can only describe as restless leg syndrome in my abdomen and chest, which then flows down to my legs.  I don't really have it during the day unless I'm standing in a queue or sitting with a group of children (I'm a primary school teacher) - doing something that I can't escape from.  Then I begin to get panicky, restless, need to escape and it culminates in a hot flush.  It's awful at night, I could probably cope with the hot flush, but this creeping, restless sensation has me wriggling around or walking around until it wears off.  Many of the other symptoms described in this discussion have occurred over the last few years, painful hips and knees before my periods stopped and all xrays and scans showing nothing.  But no medical person said, 'It could be menopausal'!  Now, whenever anything unusual happens on any part of my body, I put it down to the menopause.  My left shoulder and neck were very painful for over a year, until I was convinced that I had bone cancer or a brain tumour and had replaced my mattress, pillows, bought new hand/shoulder bags and a stand for lap top,  but then while waiting about 6 months for an appointment for physio, the pain just went - then the hospital physio appointment came through!  I don't want to take any HRT as my mother was on this for quite a few years before being diagnosed with breast cancer and died 4 years later with bone and lymph cancer.  I also intermittently have pain in my heels and it is painful to walk or put pressure on them, this has been helped by gel insoles, but again the symptoms come and go.  I'm now going to look up the Linda Kearne cake and put a bar of soap in my bed (as seen on FB) anything is worth a try!

    • Posted

      Sharon, I responded on this conversation awhile ago. I have suffered with aches and pains too. It's the falling estrogen that is causing this. I was taking fish oil for the pain, but I've really upped my dosage and it's helped a lot. I take two tablespoons of fish oil nightly right before bed. I don't hurt as badly. Regarding restless legs, watch your caffeine intake and also sugar. If you cut those two things out and add some magnesium at

      bedtime, you should notice a big difference. My aunt had RLS. I hope this helps.

    • Posted

      Sharon one thing I forgot to add is be sure you're taking D3. I take 5000 mgs. after I eat. It absorbs well with anything that has fat in it. I also use a little USP progesterone cream nightly. 20 mgs. rubbed in nightly. That will help with the sleep also.

    • Posted

      Cynthia

      Sorry to sound dum but what does USP mean and can you buy the cream x

    • Posted

      Thanks Cynthia, I'll give it a go, I think I'll have to cut out any wine toosad

    • Posted

      I'm going to ask the same as Rose, what is USP?

  • Posted

    Hi there,

    Quite a relief to find these posts about joint pain and peri.

    I'm in UK,  52 and still having periods tho they are slowing down and getting further apart.

    I've not had any tests to see if i'm peri  but bearing in mind my age i must be!

    I've never had any problem with joints/pains tbh apart from minor things through life - usually sprains etc. However about a month ago I woke up with terrible shoulder pain - like i'd been in an accident or sth! Always been a side sleeper and couldn't understand it.. I thought it would just go with rest and though its lessened i can't sleep on that side now. so that was going on, then i started getting pain and swelling round a finger joint, which i thought was from holding my mobile phone against that joint. But then...(!) there's more, my fingers and hands on other side started aching. I thought is that from the computer mouse? Then my arms started aching too. I could no longer get comfy in bed - mattress was always hard, but even with memory foam and no longer sleep on my side. Was waking up in night with all joints aching and really alarmed.. I've been thinking what on earth is this!! I was very nervous its R.A or even osteo A.  I won't take HRT cos i have had a condition from too much oestrogen previously. So im gonna investigate the supplements route. But i am scared that this won't go easily.. even after menopuase.. So glad to read the posts where people have found some relief from diet/natural cures. Keep posting x

    • Posted

      oh and the other really odd system i have is icy cold chills - does anyone else have them? I've had a few hot flushes but these icy chills come on out of nowhere - even with NO hot flushes..

      its scary..i'm thinking is this part of some other thing going on..

      i want to be back to normal!

    • Posted

      Your post just mirrors my symptoms. I thought it was my phone, mouse etc. So comforting to know I am so not alone. I am also starting the herbal relief route, see if it helps. Good luck.
    • Posted

      sorry you're having it too... let me know how you get on with the supplements etc  I'm also gonna up my vit D and sit in the sun (if we get anymore!) as i'm sure my low Vit D doesn't help! 

    • Posted

      thanks cynthia for that comforting thought... i actually think at our age - , frozen shoulder can be linked to arthritis.. otherwise why would it suddenly come on for the first time.. i don't know for sure tho

      i'm sure low hormones are causing a lot of us these complaints...

       

  • Posted

    been looking into this further on the net and am now really scared my symptoms might be Rheum. Arthritis...! Says your body feels flu-like with aches all over..

    I have one swollen finger joint atm - no others, but i have the flu-like feeling. It says RA can be present even if blood test is negative..

    I'm so scared now! Did anyone else worry about this and then find their symptoms improved and it wasn't that after all? thanks!

    • Posted

      Hi Jodie,

      Yes I worried that it was RA, my dad suffers with it badly and it does run in families.

      I have been telling my doctor for years that I feel like I'm just coming down with or just getting over the flu permenently.

      I went on HRT in November last year and although it took six months for all pains to go they gradually did so I have to say in my case anyway it was hormone related.

      Although I often have a flu feeling it is transient now and usualy lasts a few hours rather than being there 24/7 which is much like it started. My energy level is still low but again no where near as bad as it was.

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