Pressure in head!!!!!!!

Intracranial hypertension?

Hi Diane, I have been feeling the same for just under a year. I recently had a CT scan and was refered for a MRI scan which I had on friday. They said it may be Idiopathic intercranial hyperrension. Just got to wait for results now. I really hope it isnt! I mentioned this in an earlier post. Ask your doctor for a Mri scan. Hope all goes well for you.

Yes It could be.

I had an MRI no brain tumor or brain cancer. I do have vascular disease something to doc with blood vessels. Doc put me on Lipitor. As soon as I got results 3 weeks ago pressure went away almost immediately, leading me to believe it had a lot t do with anxiety. Unfortunately after feeling great for 3 weeks and leading a normal life again, yesterday I woke up and stretched and the room started spinning and I gave been having the unbalanced feeling I started with 6 months a ago when this started. Feel like I am back to square one because now I am stressed about what this is. Thanks for letting me rant

Thank you, I'll look into that. I don't really have alot bad headaches . Mines more of just a weird pressure in my head and ears. I feel like I have it in my chest sometimes to. The tiredness feeling I get is kinda of weird. I've thought about some type of vascular problem though because it gets worse with activities for sure. I hope you get good news and feel better soon.

Hope you feel better. I do believe a lot of it is anxiety because I also had tremendous pressure in my chest area from side to side went to emergency room and they said it was anxiety. Hard to believe anxiety can do that much or that we allow ourselves to have it take over. Makes me crazy because I am or wasn't like that ever. Hope someday everyone on this site feels better

Hi Dianne, I've had pressure and pulsating feeling behind my nose for 2 years now I also get nauseous and my arms and legs feel weak but they aren't, and about 2 months ago I had blood shot eyes for 5 days and since then I've had persistent eye floaters, so I had an eye test and everything came back fine as far as my eyes were concerned. I've had 2 mri scans and a ct scan which only showed I have an obstructed maxillary infundibulum , I've had another ct scan last week and I'm waiting for the results of that by Thursday, very frustrating whatever it is. I'll keep you posted if I get an informative answer.

Hi, I really do feel for you. It's very fustrating when you can't get answers. My eyes also feel weak and I have a hard time seeing but I've been to the eye doctor and he doesn't think my eyes are that bad. I hope everything turns out okay for you.

I've had both blood shoot eyes, and my vision goes blurry constantly. I can be looking at a page, or even a television show with words, I can literally see the words go from normal to blurry. Really, both of you should look into allergy, migraines. I've also have had three surgeries because of polyps, deviated Septem, and drainage. End result, few months ago, ENT said he doesn't believe it's a EN issue. He was pushing that it was a major allergy problem. Waiting for MR I and different test from Neurologist.

I do that to. Some days my vision is ok and others not good. My next step is neorologist. I have pinched nerves in my spine but don't really think that's causing this problem. I wished I could have allergy test. Could allergies really cause all over tiredness and weakness though? My sinuses stay stopped up but I've always had that problem.

Hi, I've had an allergy test and all came back normal, live in hope lol

My vision is spot on though, but for about a month now my neck has become sore and I get a very light pins and needles feeling at the left side centre of my back.

Allergies can cause major problems. I'm kind of wondering if it's just allergies. I'm also wondering auto immune diesease. Allergies are technically a auto immune disorder. It's your immune system attacking your own body. What I have been reading, that most people wih autoimmune problems have more hen one autoimmune problem or at least they can.

If your sinuses are stopped up, have you ever tried nasal steroids like flonase, nasalCort? They don't help me. What about you?

Also, do you have any problems with your lungs, like congestion? Shortness of breath?

I didn't realize that. I need to figure out a way to be checked I guess. I've heard Lyme disease can cause symptoms close to what I explain but some are different. To me it feels like a vascular problem because it seems to get worse with activities but who knows.

I have tried Flonase but it doesn't really work for me either.

There is a over the counter nasal spay, not a steroid, called nasalchrom, it's pricey, but it's actually used for allergies, it can be used up to 6 times a day, it's a mast cell stabilizer. You should give it a try, it's pretty much the only thing that has gave me any releif. With stuffinness.

I do have shortness of breath sometimes. And I feel the weird feeling in my chest. I had a stress test and that was negative so that's as far as the doctor took it. But I often feel the feeling in my chest when I get the pressure in my head. I have coughing spells alot at night also but it's more like a constantly having to clear my throat because I get a tickle feeling in it. And I do have some kind of mucus when do this.

Thank you for the advice! I didn't know about that one. I'll definitely try it out!

I have the same, I think it has a lot to do with post nasal drip and allegies. If you haven't tried that stuff, give it a shot. I also know that panic attacks can cause everything to be magnified too, it is also something I get to experience. With all this other stuff, it's been a constant panic attack usually daily. I know that isn't what's causing all the problems. It's just making it more unbearable and misserable.

I didn't either, but like you, I have literally become desperate to get rid of the pressure. Have tried so many things that do nothing. Two things I do know that have helped me, are orAL steroids, and a toradal shot At the ER, can't stay on steroids, and they are not good, the toradal doesn't last long.

I guess Lyme diesease can cause some symptoms, but so can Lupus, and other autoimmune disorders. Anyways, of I ever figure out what's causing the problems, I'll be sure to post it. I have a feeling it's going to be awhile, and also have a feeling the the MRI is going to be normal. Today seems to be one of those bad days for me. Usually time is the only thing that works. Let me know if that stuff helps too, it didn't take very long to see results, just a few days for myself.

I think we should be checked for lupus and stuff but getting the doctor to do it is a struggle you know. Plus I've found that if you go in there requesting test they think your a hypochondriac. It seems to be a bad thing if you try to help yourself by researching things. But the only reason alot of people do it is they want answers and are tired of dealing with it.

I know what you mean. Today is a bad day for me to. I have days where I feel ok but yesterday and today not so good. I also caught mono back at the end of February and was really sick until the middle of june. It took the doctors 2 months to find out I had that. I think I still feel bad from that sometimes but don't think it causes the pressure and all because I did that before I caught it. I hope you feel better!

Sorry, I had to go to work, but I wanted to respond. I have say that we have symptoms that are very very similar...for example, the head pressure is one thing, but when I said I also feel it in my ears, you said yeah, but in your left ear mainly. It's exactly the same with me. I feel it in both, but it's more on the left side. Then I asked you about your breathing or lungs, and you said yes, and personally, I don't even think I could have written it as well as you. We both have atleast two def. Of b12 and vitimin D. Both of us, it seems to be getting the same cap from the doctor, it's axiety and we're just making it up. I have tested positive for mono , or epstien barr virus, but this was a few years ago, and it was not active. Well at least that I know. So, this is all kind of interesting. It doesn't answer anything.

That is strange! Do you find it hard to explain to your doctor as well? I wonder if the mono could have anything to do with it. My ears also stop up or actually feel like they get alot of pressure in them. I'm gonna start taking b12 and vitamin d again just to see if that helps I guess. I stopped because last time they tested it about 5 months ago it wasn't in the danger area bit I do believe it was still low. If you find an answer please let me know and I'll do the same. Hope you feel better soon. I know how you feel.

I will, actually just started taking both b12 and D, when I'm talking to my doctor, I feel like I'm talking to a wall....lol. actually primary doctor pretty much does while I ask. My ENT is really a great doctor. This neouroligist had the axiety causING the problems, but he also seemed to think and say that most likely it wasn't a problem caused from anything to do with the brain but with another diesease. He wanted to see my blood results, but at the time I hadn't gotten the results. He did tell me to take b6 and b12 that was before I knew about the def. IM kind of interested in what he's going to say when I give hiM the results because they are not normal, yesterday and today seems like it's really bad days for me. Woke up pretty miserable, going to be a hard day to make it through today at work. I pretty much was a sleep majority of yesterday, only awake about 8 hours. I looked into EPV, and how it could affect people, and I guess it can affect people long term Chronic Fatigue Syndrome and different types of lymphoma cancers and a bunch of different things....I'm going to have them run that blood test again and see if their is any activity. I also read something about how being being Vitimin D def can weaken your body's ability to fight the virus....so much stuff, so confusing... Anyways, hope you have a good day. I continue to keep you informed.

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I've also gotten to that point where I don't let doctors push me around, Ill knock the chip right off their shoulder. I've literally sat the and really argued with a some. Most of them are just doing it for a paycheck probably, couldn't care one bit about the person. They have absolutely no motivation to help people. They have this outlook that they are some higher power. I've deal with people every day.

Your definitely right. I believe alot of them practice for the wrong reasons these days. They don't seem to care about how we feel.

If your lucky they will run a couple blood test but never seem to want to keep digging for answers. It's frustrating I know. When you get the pressure do you get tired or weak feeling?

Yeah, to point where it feels completely exhausted sometimes where just trying to keep my eyes open is a task. Last night, yesterday was that perfect example, this morning when I woke up wasn't pleasant, I'm kind of worried about work today. I'm worried about the rest of the week. I love my job, but I go to work, I'm normally 4 or 5 hours away from home. I don't get to go home for up to5 to 6 days at a time.

A lot of times, it's after the attack I feel literally exhausted. Feels like I just went to war and the after effects of being beating up.

Last night I past out, that pressure was severe, but I took a bunch medications that kind of knocked me out before I had endure them. Thank god, wasn't really in the mood to feel like my head was going to explode for hours. No pressure right now, just feel tired. A little bit of a headache in the front behind my eyes.

I'm sorry to hear that. Maybe it wouldn't hurt for you to try the b12 too. But yeah that's me. I wake up at 630 am and I'm exausted by 930 am . So really I do feel for you.

Wow that's a good way to explain it! I can be cooking and the feeling will come on and it stays for hours and the tiredness starts. I feel like I did a two hour work out or something. That's why it's hard to believe it's anxiety because I'm not thinking about it. It just comes out of no where. I go to the mall and by the time I get to the other end I can feel the weird feeling starting in my head. Then my ears, neck, chest and arms feel weak and weird. It's not non stop but alot more frequent thru the day. I also have a numb type feeling on the left side of lips in the corner but that's almost all the time now even if I don't have the pressure.

Hi, I've been following your conversation. I have what you seem to have. I've gone over 1.5 years like this and I will soon get an operation to hopefully end my nightmare.

I'm pretty sure I have a blockage in the sphenoid sinus cavity. It prevents natural drainage of mucus, also it's stopping fresh air getting into the sinus cavity. This cavity is deep inside your head behind the nose. I bought my CT scan and went to a private ENT surgeon with my case. He agreed that this was most likely my problem. There is definitely a condition that has not been discovered. How many people are there in this site alone?

Hi, so you do have the pressure in your head and ears and the feeling of sickness all over? Do you have to have a regular CT scan of the head for that or can they see it in a sinus ct? I'm glad you mentioned this it's worth looking into. If I can find an answer it would be nice. I've had the feeling for almost a year now.

Actually, that's what I thought at first, I just had surgery for the 3rd time on my sinuses and had no relief what so ever.I remember waking up with the same pressure after the surgery, I've now had 3 cat scans, waiting for MRI, even after Neurologist and ER doctor both told me that my sinuses looked clear, I asked about Sphenoid sinuses, because all the symptoms pointed to that. Atleast the ER doctor agreed with me but the CAT scan showed that is was clear. I guess the MRI, will be more revealing. Yes, sinus issues are horrible, especially when an infection is present. The last 8 years with surgery after surgery, polyps and more polyps, drainage, really, if they could just remove all my sinuses, I'd probably be OK with that cause mine suck. Their only purpose is to become inflamed, have polyps,fill and not drain, and get plugged up all the time, and cause me to feel like crap. Yeah, they can have'em.

I to have bad sinus issues and have many sinus infections over the years that cause horrific headaches. I can usually tell when I'm getting a sinus infection. But I don't have headaches all the time and from what I read you have really bad headaches. When I have the pressure feeling I hurt on the bridge of my nose sometimes and maybe eyes but nothing real bad unless it's a full blown infection that usually happens a couple times a year.

Yeah I've looked into the ebv too and it said it can stay in your body and make you feel bad. And dread going to the doctor because I kniw it will be a waste of time. I'm just gonna go se my neorologist and see if he can help me. I hope you have a good day at work and I'll let you know if I find out anything.

A sinus ct scan is the best way of seeing it. You aren't looking for a full infected sphenoid sinus cavity as I don't think it's sinusitus. I actually think in my case it is some sort of scab that is blocking the airway. I'm so certain I'm willing to pay £5000 to fix it.

Well I don't know then because I've had a sinus CT and all he said was that I had a sinus infection.

I've have really thought it had to do with Sphonoid sinus cavity thr entire time. Time after time I've had issues with every single cavity. They removed polyps 3 times now, this last time, which is now, feel completely different. The pain and pressure I'd deep insidea my head directly behind my eyes, pressure top and back of my head, my ears...it's been nine months...I've missed 6 weeks of work in the last year. Entire, I have thought it had to do with Sphonoid sinus. ....every single symptom fits. I have about 10 ENTS to choose from. Even though I think the ENT IS good, I believe he is wrong this time...I'd be willing to bet money on it.

Have u found anything that helps?

I'm gonna go to my ent and see if he can talk to me about that then. Maybe you should try to see a bother one. I really doubt mine will help me though.

I've been told that a thousand times, good chance you do, you need to find out if u have deviated septum, ant type of blockage caused from polyps, they drain the sinuses, you also need to look into allergies, yesterday asked you about ige blood test, they also test for alleges through poking you with the allwgen, seeing if u have a reaction. Then measuring the welt. If it's an infection, stay away from steroids. I promise they will make it even worse.

Deep behind the eyes in the centre of your head is the sphenoid sinus cavity. You need an ENT to open up the drainage pathway, balloon sinuplasty is generally the best way.

Your next question to ENT should be why? Thereally are a lot of reasons that can cause that. Even if they use an antibiotic to try to treat it and you have something like polyps, allergies, devatEd septum. The antibiotics alone will not fix the problem. If it's an infection, stay away from nasal steroids especially if your not on antibiotic.yes, allergies and sinus infection can make you feel absolutely miserable. Kind of like the worst cold ever with some flu like symptoms.

It's the sphenoid sinus cavity that is causing the symptoms we get. I think sometimes ENTs treat the wrong area.

I would like to get the ige test but they said they can't do it because I'm on a beta blocker and would have to be off of it a week. So I don't know how I'm gonna do that. I will try again though.

I considered the surgery but was told by many not to get it. They said it was a waste of time and makes you feel worse. So I don't know what to do.

I will ask them that. I know I don't have a runny nose or watery eyes or anything. It's more of the stopped up feeling or mucus sometimes. Thanks for the advice

I've had 3 of them, it's absolutely an awful surgery, but the first surgery, didn't help, 2nd one, helped a ton, different ENT, third one, my sinuses feel very opened, but I think he missed the problem. He was concerned about the erhomoid sinuses , which he did find two small polyps.

They have skin test to test for allergies..

They poke you with common allegens, wait, watch to see the lumps, mea sure the size.

You should see an allergy specialist, your ENT should have already recommend that.

Yeah that's the test they said I couldn't have. He said he could draw some blood and do it that way but that way want always show the allergies.

Did you heal,quickly and was it painful? I heard it was a painful recovery especially with the headaches.

Well my ent said he is also an allergy doctor. Well he has his license. You know he would rather make the money if he can. So I doubt he would refer me.

Man, I wish I would have become a doctor and have endured the misery I've dealt with. I would never turn away a person that's sick. Even if I could not fix it, I'd make sure they got to right person. So many awful, doctors out there. That are totally awful human beings.

I agree I tell my daughter the same thing. If you can't fix it send us to someone who can. If it was them going thru it they would see what it's like.

If I was you, I'd have the surgery. I don't have itchy eyes, or runny nose either. Actually, ai can breath through my nose pretty well, now, but I still feel plugged up, and pressure deep inside my head. I don't even have a plugged nose anymore. At one time it was completely plugged up. With a sinus surgery, youll get to really feel what plugged feels like. Falling asleep waking up gasping for air cause no air flows through your nose. I started off just plugged though. If you don't have allergies to common things like mold, dust, cats, etc, then most likely you could have just devetied septum, polyps are usually caused from allegies. That's why they push the nasal steroids because they help prevent polyps plus treat allergies.

I want do the nasal steroids anymore. They didn't help me anyway. I'll talk to the doctor about it. I don't know why that would make my chest feel weird to and make me feel weak more at my shoulder and arm area but all over as well.

Really, all the other options suck too. You got the choice of antibiotics, steroids, antihistamines, decongestants, some more natural remedies like peperment, eucalyptus, sinus rinse stuff, usually saline, steam, some more natural remedies, the one medication I told you about is a different, it's a mass cell stabilizer which are the the cells that cause imflamation. From my experience, nothing really helps. The surgery with antibiotics afterwards helped the most. Most those medications are overy the counter, except antibiotics. Abuse of antibiotics or steroids, are really bad. They are both awful for your body. Steroids will destroy your ability to fight infections, and over use of antibiotics will also do the same including eventually the antibiotics will not work because your own body will fight them off which pretty much prevents them from working. That's really really bad.

Yeah and honestly I have been on antibiotics alot since I was little and I can't keep doing that. Well I'm gonna go in and talk to him and see if I can get a referral for the allergy doctor and then see what I can do about the sinuses .

Yeah, I agree with you on the nasal steroids. The reason is that you have an infection, which just happens to be running through you head. All these stupid holes and crap that is all connected...which are all also connected to all your senses. Taste, hearing, smelling, sight.....if you have allergies, then that can cause more inflammation on top of the infection. Even though your not going to die, both those things are pretty serious, and they both kill thousands of people every year. You got your own body fighting things not needing to be fought, then you have bacteria kicking some ass. Yeah, it can make you feel miserable. If you throw in axiety and stress, it also doesn't help your immune system or how you feel. Feeling hopeless and depressed is very awesome either especially when you just want to feel better, and you don't feel like your getting any answers.

I also might be completely wrong, but I will let you know. All the presure is back. So not cool.

Yeah mine started this evening. It's more in my face neck and chest right now. Who knows what it is but atleast I have some ideas to run on so thanks. I hope you feel better.

I'm curious wheredo u live? I'm in the not so beautiful state of California.

I'm in south carolina. I bet it is nice their.

It's very dry and everything seems to be on fire and it's cooled down a little but it been a very hot summer like 110 outside.

Wow that is hot! We've actually had a pretty hot summer ourselves. It has been around 98 for the late month or so. It was 91 today. Can I ask how old you are?

33, I was driving threw this town out in the dessert, it was 128. At 10 o'clock at night is was still like 110. I really don't know how someone can live in that. Don't see any homeless people.

I feel like I'm 90 though

Yeah I definitely couldn't deal with that kind of heat! I hate going outside with the Temps we've had

You know that mono, or atleast the virus can or has been shown to cause chronic fatigue syndrome too. How old are you?

I'm 42, yes I seen that. Lymphoma too. When I got it back in February I was so sick. Everything didn't hit me at once though. I started with a real bad headache for 4 days and then a fever that lasted about two days. But then my throat got sore and I have never had a sore throat so painful. I waited about a week before I seen ent and he didn't even catch that it was mono. He said it was tonsillitis and gave me antibiotics. But they didn't work. So went back and he said I had thrush and gave me medicene for that. I stayed on that about another 7 days with no relief. So I went back again because my throat was still so sore I couldn't swallow and my neck glands hurt really bad. He said I was fine lol. So I decided to try my gp and as soon as I told her my symptoms she said mono and I tested positive. I had the weirdest cough that made me feel like I was coughing up rocks that were hitting my tonsils. I hurt all over and I was so tired and even depressed. I finally started feeling better in June but I still ache in my glands and nodes are still swollen. I read up on it and seen where you can actually get over and over but it's not supposed to be as bad as the first time. So yeah I wonder if that causes some of my fatigue but don't know if it can cause a sudden tiredness that seems to happen when I get the pressure.

I have two close friends that have had Lymphoma. One that has tried to conVince me that it was when we worked around certain pesticides when we were 15. The tiredness started when I was 17. You kind of got me wondwring now, stuff nose didn't start until I wa older, and I've had problem after problem....some days I do ok, some days, I literally feel like I'm dying. He actually did almost die. He was in the hospital for awhile. The one has non Hodgkins Lymphoma, and the other non hogdkins...

The last thing he said to me was, just don't die....lol

Hi Dianne, I got my Mri results this morning, it was great news as nothing was found and all was normal. My Doctor is going to refer me to a neurologist as I still have these strange symptoms. Hope all is well with you and you get some clear answers.

Hi There, I got my Mri results this morning, it was great news as nothing was found and all was normal. I was so worried as they suspected Idiopathic intercranial hypertension from my CT scan but the Mri found everything was normal. My Doctor is going to refer me to a neurologist as I still have these strange symptoms. Hope all is well with you and you get some clear answers.

I'm sorry to hear that. Hope you feel better soon.

That's great news! It's not fun waiting on results like that. I hope they can figure it out and you can start feeling better soon!

Have been following this thread off and on for over a year...but what caught my eye was the "not so beautiful" state of CA remark you made. We just moved away 2 1/2 years ago to another HOT place--AZ. But CA used to be paradise!! Sorry to say, but I saw liberals turn paradise into their twisted version of utopia and it sucks. You must be in a hotter section of the state though...I always used to be close enough to get some of the ocean breezes. 128 degrees is more like Iraq, though! For all you people out there with symptoms, investigate "marcOns", I was tested and treated for it (a type of staph infection in the sphenoid area that's very hard to get rid of) and now feel MUCH better.

Interesting you talk about the sphenoid sinus cavity. I believe these symptoms are because of a sphenoid problem. I will be getting surgery soon to open up my 2 sphenoid ostia which should return natural drainage and let fresh air to circulate. I also believe that this condition is not well known and people are suffering for years without diagnosis.

Good luck, Shawn!! Keep us posted :-)

please look up the side effects of Lipitor, my husband took & could not even get out of bed, went to 8 different Drs. & one finally said get off the lipitor.. he had low cholestrol .. also about 8 others I know , had the syptoms that they tell u about the drug.. bad muscle wasting etc.  please make up your own mind .. but read.

You may be suffering from histamine intolerance which reacts like you have allergies when you eat the foods riddled with surface bacteria that your body struggles to break down. As time progresses it gets worse and that's how I got diagnosed after 20 yrs of gastrointestinal issues: gerd, IBS, etc. This is what causes histamine intolerance. Stay away from dairy especially and fermented foods. For people with histamine intolerance, healthy foods aren't healthy for us. The two enzymes needed is DAO and HMNT I believe. And for us suffering they don't exist or aren't enough present. Good luck. And I hope this helps.