Prostatitis with zero pain, just horrible 24/7 urge to urinate/frequency
Posted , 85 users are following.
Hello All,
I am a healthy 25 year old male with no history of urinary issues.
I am at my wit's end. Last Sunday, I started having terrible urinary frequency. I will literally go to the bathroom, urinate, flush the toilet, and then have to use the restroom again RIGHT AWAY. In other words, I have constant urinary urges 24/7... It has been this way for one week.
I don't have any pain or discomfort in my pelvic area, and there is no burning sensation during urinating. However, I feel as if the urine is at the tip of my penis - that is where the urge sensation is most prevalent. If I hold it for a long time and it accumulates, there is quite a lot of urine. However, most of the time (especially in the middle of the night) hardly anything comes out even though it feels so urgent.
I can't sleep since it feels like I have to urinate constantly... last night I was going every 5 minutes, and most of the time only a few drops came out. I am having anxiety now because of this.
I went to the urologist last Tuesday (2 days in). Urinanalysis showed no UTI and bladder ultrasound was okay. However, during the rectal exam, he said my prostate was "off" and did a test of the urine that came out after the exam. At that point, I was told that I had a prostate infection and that the enlarged/inflamed prostate was causing the frequency. In other words, there was bacteria.
I was given 500 mg of Levaquin to take once a day for 30 days. However, it has not helped after 6 doses. I'm trying Motrin (ibuprofen) to no avail. I was told it takes a while for the antibiotic to reach the prostate. I have no fever, and no chills.
I am terrified that I have the chronic pelvic pain (CPP) form of prostatitis. However, I don't know if I do, since (1) there WERE bacteria present upon running the urine after the rectal exam and (2) I have ZERO PAIN. The only symptom is the 24/7 need to urinate. Any ideas on this? I hope I have the acute prostitiis form since this is cured with more antibiotics, but if I have the lifelong CPP form I don't know what to do... I feel like I will have to quit my job since I can't sleep with the need to urinate.
Please help!
4 likes, 293 replies
jeff63914 roark25
Posted
Have a similar annoying feeling of urine at the tip of penis. It gives off the sensation that im leaking, but nothing is actually coming out. I was diagnosed with a prostate infection 8months ago and put on an antibiotic that did nothing. My initial symptoms were penis pain, which thankfully isnt as bad as it used to be, but theres still something wrong. My other big symptoms right now, aside from the leaking sensation, is this frequent sort of burning pressure feeling in my butt. Reverse kegels or stretches like deep squat holds seem to make it worse and more uncomfortable. I have difficulty acheving erections without touching, and I seem to have lost a bit of sensation, I would almost describe my penis has being semi-numb. It just doesnt feel right and lacks the pleasurable feeling it used to have.
Im convinced I have some type of pelvic floor issue that is most likely not prostate related at all, and ive come to learn that most urologists just have no idea about this stuff. I cant afford to see a pelvic floor therapist, hell i cant even find one for men anywhere near me.
jeff63914
Posted
Note that when i say i was diagnosed with a prostate infection, it was based off nothing. Only test i had was a urine test and it was clean and normal.
ryan02012 jeff63914
Posted
Most likely pelvic floor. I would try hiking or walking to stretch out the pelvis and perhaps look up pelvic floor relaxation techniques on YouTube for now.
PFD is usually a female condition, but men are obviously finding out they can have issues too. Unfortunately, most PTs are female to better assess and treat females for this, and some treat requires internal massage and stimulation... not in a sexual way, but as a way to reach certain muscular structures in the groin. You might have to bite the bullet and be seen by a female PT for this, and it might be awkward and unpleasant at first, but it's extremely likely you're experiencing PFD and not prostatitis... especially if they didn't do any prostate fluid screenings and cultures, or check your prostate rectally.
jeff63914 ryan02012
Posted
thanks for the reply!
Sorry i may have mis-worded that part. What i meant was that im having trouble finding pelvic floor therapists who treat men, not that im looking for a male pelvic therapists. That doesnt make a bit of difference to me. Just seems everything i click on appears to be for women only. I did have a prostate exam, but he didnt say anything felt out of whack. When he said he was putting me on an antibiotic, I asked why. His response was that it was a "clinical diagnosis based off the symptoms". To me that screams "I have no idea, just take this and lets see what happens". I refuse to go to any more urologists except for maybe one whos at the Cleveland Clinic. Its about 3 hours away but id rather travel for someone who actually sounds like they know about this stuff.
I do try to walk every day, it usually does feel better while im walking. Ive considered levator ani syndrome because of the butt issue. That burning feeling i mentioned seems to kinda extend all the way from my butt, through the perineum, and up to the penis tip.
jake81138 roark25
Edited
I remember visiting this thread countless times when I was struggling with this exact same problem roughly two years ago. From October of 2016 through June of 2017, I felt an unbearable urge to urinate nonstop. At its worst point in February of 2017, I had to take a month off of work because I literally couldn't function.
I tried pretty much everything in the book that's recommended for prostatitis symptoms; I was fortunate enough to have excellent insurance and be in a very comfortable financial situation, so I ended up seeing, at my last count, sixteen doctors, most of whom were urologists, each of whom recommended different things. I received direct prostate injections from Dr. Toth in New York, and also received pelvic injections from Dr. Shrikhande at Pelvic Rehabilitation Medicine. I went to two different physical therapy offices, the more effective (and unfortunately also more expensive) of which seemed to be 5 Point Physical Therapy, also in Manhattan. I also tried chiropractic and accupuncture, neither of which seemed to do much for me.
In all honesty, I'm not sure if it was a combination of these things, one of these things in particular, or everything combined that helped. I highly suspect that in the end it was just a matter of time and de-stressing a bit, but I can happily say that I am 100% back to normal and have been so for the past 1.5 years. I have also had multiple friends and a family member go through similar periods, and they have come out fine as well.
I write this now because I think one of the most horrifying things when I was suffering was the thought that the pain would last the rest of my life. These forums can sometimes be depressing because the only people who visit them tend to be people who are suffering; once my condition improved, I certainly didn't want to be anywhere near things that reminded me of my ordeal. So there's a strong selection bias, and I think I'm being accurate when I say it's highly highly likely the condition will resolve and your life will go back to normal. Mine certainly did.
craig80727 jake81138
Posted
thats great news that you are rid of this terrible feeling, i have been suffering for just over a year and am slowly getting there, just learning to relax and not stress out too much as i also believe this to be the cause. If you have not heard of the book " a headache in the pelvis " it is worth $10 for a download, made so much sense to me and gave me an understanding of what was happening to me when all the doctors were saying it was proststitis, yet no infection was / has ever been found. pelvic floor muscles are the culprit. To anyone else suffering this give book a go, i came across it on another forum.
ryan02012 jake81138
Posted
I'm actually in a similar boat. Although I never went to a doc for it. After a while of de-stressing and letting my body rest a little, the sensation went away on its own. I have reason to suspect it was due to my posture while at work. I have a not-so-supportive office chair that I replaced with something a bit more expensive but comfortable and I've also gone way easier on my leg day workouts. I've deduced that this is a spinal injury, likely caused by pressure on the sacrum and sacral nerves, or the sciatic nerves. I've had trouble with these nerves and areas before due to pelvic surgery prior. I complained to my surgeon at the time who chalked it up to prostatitis and threw deoxycycline at me. It did nothing, but long periods of intensive cardio seemed to clear it up in no time. I'm not saying this is the case for everyone suffering with this sort of thing, but it's possible that people affected by it need to be looking at a lifestyle change instead of a medical outlet. Get up and walk around more, try jogging or yoga, or some sort of low-stress physical activity that can help stretch out the back and pelvis.
jeff63914 craig80727
Posted
I totally forgot i even posted here till i got an email notification! Myself i am probably 60% better since i last posted. I am also convinced its pelvic muscles. I have been doing DDPYOGA for the last 3 months. I would say its helped.
matthew_96778 roark25
Posted
I am currently taking antibiotics for it.
Doctor did a prostate exam and stated its large.
Blood test for PSE to do.
The pain and just dribbling has been going for 6 days and i am on day 2 of the antibiotics.
Keep thinking this is never going away.
Had a CT Scan of my stomach and pelvis for a separate issue about 8 months ago and nothing was said about the prostrate
this is driving me mad
jeff63914 matthew_96778
Posted
Was there a test done that actually showed you had an infection? Im obviously not going to tell you not to take it, but this is pretty typical scenario when people go see urologists for this stuff. I was also given an antiobiotic, but it was of no help because i had no infection. There is a YouTuber by the name of UptownMike that you really should check out. Start doing stretching, he has a routine in one of his newer videos. Pelvic floor muscles are the #1 suspect with this condition, not the prostate. Unfortunately unless you visit a pelvic floor therapist, most urologists and regular doctors are just oblivious to it. If (when) the antibiotic doesnt work, theyll tell you its non-bacterial prostatitis. Bottomline, dont wait around and start stretching, man. It cant hurt to try and you just might find out that its the answer.
arizona92959 roark25
Posted
I got some recent mail, and figured out I'd update everyone. I'm in my 40s, had this since 16, and Flomax helps me.
The background: I'm in the States, and I've been dealing with this on and off since I was 16. I've had many of the usual issues, although I've never had it for more than a few days. When I was younger, Dr. wrote it off as stress, masturbation, etc. I found that drinking large quantities of water, and just sitting on the toilet urinating resolved the issue within a few hours. So it was more an inconvenience than a major medical issue. I thought it was due to some combination of dehydration, and misfiring of muscles during ejaculation. Drinking the large amounts of water either addressed the high uric acid content of my urine, or re-trained the muscles to work properly and they calmed down. These are 100% made up ideas - I am not a doctor - but these were two theories Doctors presented to me that seemed to match my experience.
At some point in my 30s, my sex drive dropped heavily due to antidepressants. I went from masturbating daily to maybe once a week. At this point, I would notice that when I handt orgasmed in several days and then had a large bowel movement, it would force semen out of my penis. This was really disconcerting, so I start looking for doctor to discuss it again. Ran into same issues with doctors.
"Do you have stress?" ( seriously - does anyone answer "no" to that? ) And if you say you don't, they say "well maybe you don't realize you have stress and are internalizing it". One doctor refused to even see me, they sent in an RN after I specifically said I did not want to see the RN. They explained to me that it was impossible to ejaculate without an erection, and what I described was impossible. Being in my 30s I was less willing to take this bull, and told him he was wrong, and that I wanted to see the Doctor immediately. The doctor agreed that I was write, but refused check my prostate, saying I was too young for issues, and thought it was stress. He didn't even get up from his desk and acted like I was some creep who was trying to get my butt touched or something. I tried a few more times, and basically gave up. Drinking tons of water, still usually cured the issue, and it made sense that internal pressure on the prostrate would push out fluid. However, drinking water was no longer a reliable fix - and sometimes it would drag on for multiple days. I tried different bladder medications - one worked for 1 attack, but never again.
I'm also on a host of other medications - so that would be the next thing they would blame, even though this has been occurring since youth.
Once I turned 40, it changed - now every doctor says prostate BPH ( Benign prostatic hyperplasia ), even though no indication of swelling or whatever. Do you drink caffeine? Do you ever have spicy food? Oh that must be it then!
I was a bit chagrined to find that flomax does actually help. I'm not really sure what to make of it. I don't take it regularly ( in fact, my current script is 2 years old and I need to update it ). Other bladder control drugs did not work to reduce the urge. Now when I have an attack, I take a double dose of the Flomax each day, and it seems to go away within a day or two. This feeling does seem to be connected to my prostrate, as anal stimulation can trigger it sometimes. I still feel the cause is more complex, but with a working solution, it is hard to find energy to focus on it - much less trying to convince a doctor to pay attention to it.
I feel terrible for anyone suffering from this - especially those of you who suffer daily. I would be curious if prostate related treatments help you at all. It might not address the cause, but might address the symptoms.
Helphelp arizona92959
Posted
i guess, i know what your problem is. try a low dose cialis , probably that will also work if flomax has worked. because both drugs supposed relax smooth muscles. your problem is about your pelvic floor muscles. once they are tight you probably have symptoms ( so called flare up). try cialis 5mg, you will see that also helps. wild guess, are your symptoms worse after sex/masturbation? if your answer is yes, that is another proof in my opinion. pelvic floor muscles contract when you masturbate and you have your little flare up. i think you will benefit pelvic floor relaxation . i am not a doctor, i am a sufferer just like you. all the best
arizona92959 Helphelp
Posted
low dose cialis is another BPH treatment - I've tried it, and it does help a bit. There is no relationship to sex/masturbation that I can tell, other than if it involves anal stimulation. I'm a bit skeptical about the pelvic floor thing, just because it seems to fall into near cult like territory ( eg: Headache in the Pelvis ) . It's been over 15 years, and the biggest proponents of this seem to be websites. I'm not seeing much in the way of peer review, studies, etc. This forum post sums up some important points. I would LOVE to be wrong about this - so if you can direct me to some support that this actually works, I would be very grateful
https://sexualreboot.com/topic/a-headache-in-the-pelvis-fraud/
ryan02012 arizona92959
Posted
I mean I get your stance, but in this day and age, it's easier for docs to throw pills at you than to bounce possible solutions around. You aren't going to get a urologist to cash out on a physical therapist's regimen, since that removes a potential patient from their system. They also aren't versed in this field and were taught that any issues like this are BPH or NBP. Pain management and issues with the internal organs that don't show up on CT scans or similar aren't treated nearly as effectively as let's say a tumor, or a clogged artery. You have to be smart and consider all potentials. There may have been a injury to your lower back years ago that went unchecked and now you're suffering, or perhaps you have a tilted pelvis and are unaware, maybe there's pinched nerves in your sacrum, sciatica or going through your pelvis which might not be enough to produce pain but enough to mess with your brain's trigger responses for urination. How do you think those signals work? So, while you suggest you have an "enlarged prostate" which isn't conclusive of most NBP cases, you either need to have a scope or scan of the prostate, or consider the alternative that your docs aren't cut out of this case. Might as well book an appointment for a specialist in this field if you really want to know for sure. Check for a proctologist in your local area. They likely have a better understanding of the prostate and how to check it.
arizona92959 ryan02012
Posted
I feel like you didn't really read my post. I don't think I have an enlarged prostate, I've seen many different specialists over the years, and I'm very open to the idea of physical therapy. I'm just a bit skeptical of the "Headache in the Pelvis" for the reasons I've stated. Did you read the article I linked?