Read this for hope and encouragement - You will get better

Posted , 17 users are following.

To start with some background, I've been on Citalopram twice now. I went through a mental crisis of sorts in 2013, and eventually got on this medication after a long time of trying other things and just waiting. Within some weeks, it slowly brought back the part of my mind I felt was missing for so long (or what felt like so long). Flash forward to this past October 2023, I decided to get off the 20mg I was taking because I thought what I had gone through prior was just a phase, a weird blip in my life that wouldn't be repeated. After going through a short withdrawal period, I thought I was right. But 2 months later, I started getting the same anxiety/panic attacks that I recognized from a decade earlier. Soon enough, I was getting scarily depressed, and knew I had to go back on the medication. I didn't want to because I knew the adjustment would be rough, like I remember it being the first time. But I did it.

Since then, it has been a long road. Longer than I would have thought. I want to make it clear, a lot of people begin to feel normal on this med within weeks. If you are starting out and struggling, know that in a few weeks, you could very well be feeling good. Unfortunately, a lot of us don't experience that. I noticed positive changes along the way, but it was anything but linear. Side effects were terrible. If you're on a similar path, there will be ups and downs. In every down you will be tempted to believe you will never permanently feel better again. It will feel impossible. But just know that your mind is lying, and your view of reality is skewed and not trustworthy. You have felt well before, and you will feel well again. There is so much life outside of the weird reality you find yourself in. Reflecting on those times, it's like I may have well been in a different dimension. You may feel like "maybe this is just who I am now" - but it's not true. I was never truly suicidal, but I had a lot of anxiety surrounding the concept. I was constantly in distress that MAYBE I would become suicidal. It's important to differentiate this from actually wanting to take your life. Either way, it stressed me out to a great degree. If you're in a similar place, this will pass. If you can, ask your doctor for a benzodiazepine to lessen your distress. Lorazepam was sincerely a blessing from God throughout this process.

All in all, I just wanted to come on here to offer hope and assurance to those are going through the hardest time they could have ever imagined right now. This is a traumatic experience, don't invalidate yourself that it's any less. Regardless, you will get to the other side. The process may be slow, but it is sure. Keep a journal and see how the small things turn into big things. Time is your greatest companion in this. These 2 times I've found myself with a severe mental state I don't recognize as 'me' have been easily the hardest times in my life by miles. And those around you might not understand, and they are lucky not to. But I see you, and there are plenty of others who have been through this and can now look back and say "...that was weird." Because this is just a chapter in your long life. These meds work, but they need time, and your body/mind needs time to heal naturally alongside this med. But you will get there, and don't buy into anything different. There's so much more ahead of you. I'm here if anyone has questions or needs encouragement.

Much love, Emma

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  • Edited

    Thank you for this. I needed to hear this. I am in an awful place. I have been on citalopram for years. recently had a blip. My doctor wanted me to increase from 20mg -30mg . The side effects too much. I am now on day 9 of 25mg and I feel awful. I have never felt this emotionally unstable. I have no idea what to do. x

    • Posted

      You are so welcome. My heart goes out to you. As you probably know, it's totally normal to feel terrible when upping the dose. Just know it will pass and the drugs will start doing their job. You will get through this.

  • Posted

    Hi Emma

    how are you doing .? Hope you are well and happy.

    I am thinking to increase my dose to 40 because it was 10 months and i am still struggling. Is there end to this pain .?

    • Posted

      Hi there!

      I'm not doing so well right now, but it's my own fault - I've been accidentally taking old meds that were left out in high temperatures for a week or so, which makes them lose their effectiveness. I'm getting a fresh prescription today so hopefully I'll be back to normal again soon! Let that be a lesson to anyone reading 😃

      I think 40mg is a good idea. I don't think you will have to face many side effects since your body is so used to the medication by now. There is absolutely an end to this pain, and you will feel it!

  • Edited

    Hi Emma

    Thank you so much for posting your experience it really is helping me at this time, it is also my 2nd time on citalopram and it is taking me so much longer this time to feel that it is working, I was on 20mg for 8 weeks then doctor increased dose to 30mg 5 weeks ago but so far I do not feel any better, have not been sleeping great and morning anxiety is through the roof, I have a lot of physical symptoms as well , shakiness , hot flushes and feel like my upper abdomen is tied in knots all throughout the day, I will stick with this and just hope I start to feel some relief soon, it really does help reading your post and gives me encouragement to keep going so Thank you

    • Edited

      You're so welcome. All of your symptoms are very normal, and will ease slowly but surely. Be encouraged you're still in an early phase of figuring out dosage and adjusting - plus most everyone has a harder time the second time around for whatever reason. You will get to the other side soon.

    • Posted

      Hi Emma I am struggling , I have a few times when I feel a bit better, the doctor prescribed me some Lorazapam to help me through the tough times, I was really bad yesterday so I took 0.5mg and it helped me so much, what dose did you take when you were really struggling if you don't mind me asking x

    • Posted

      Hi Denise! I'm so sorry you're struggling, but I'm so glad to hear the lorazepam helps you out. I would also take .5mg whenever I was having a tough time. Earlier on there were times I'd take 1mg when it was really bad. Don't feel guilty for taking them when you need to, that's what they are there for. Hoping things start to turn around for you ❤️

    • Edited

      hello just saw your post and it sounded excatly where i am now - how are u now 5 months later? x

    • Edited

      Hi

      I've had a tough few months, I just wasn't feeling any better, the doctor has changed my medication now so need to get used to it, still having really bad days and the odd good one, just to keep hoping I will get better at some point, hope you are ok

    • Posted

      sorry youve had some rough times- im with you , im maybe trying escitalopram or venlafaxine soon if no improvement, what are you trying? - i hope it works for you - something will work for us but its so hard waiting for the right 'fit'

    • Edited

      I agree , I'm on fluoxetine now 20mg but only started it just over a week ago, the problem I have is such bad anxious stomach every day , this has really affected my digestion , and I worry how bad i feel and this makes my anxiety worse, its a vicious circle but hopefully we will get through this

    • Posted

      exactly the same, the feeling sick and retching gets me - we will get there

  • Posted

    hi emma - did you start to feel gradually better over a period of time? and what were the timescales? thanks, Jo x

    • Posted

      Hi there! Yes, definitely gradual, as well as up and down. This has been over the course of about 6 months since starting the meds.

    • Posted

      hi

      okay thanks for the reassurance - im almost at 12 weeks in total with 6 on the higher dose. im definitely starting to feel changes but still up and down. Are you still doing well? x

    • Posted

      My pleasure. You're getting there. Those changes you are feeling are key, let them encourage you!

      I've come into a dip/blip, but me and my doctor believe it's because I was taking a batch of pills that was left out in heat/moisture for too long while I was moving. Got a new prescription so hoping that brings me back to the great place I was in 😃

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