Removal of mesh after inguinal hernia repair.

Hello Ed66, did you get your ultrasound done? I hope all is OK.

Hi Adele

Yup, I did.. Found another small hernia but they're going to leave it at the minute as it's only small. Also quite a lot of adhesions in the left side. I wondered what had been and is causing me so much pain.

Hope all is well with you

Not good having pain. Watching and waiting the hernia, I hope your's goes well and it does not get bigger. I always think gravity will get the better of us.

I'm only thin and quite tall, so being overweight isn't the cause of my hernia, I believe? Maybe that does not have anything to do with hernia's?

I think the start of it all was my twisted bowel last September. Adding to weakened muscle wall multiple abdominal surgeries from 2  x C setions, hysterectomy etc. may have given me a weaker abdominal wall and thus inguinal hernia. Who Knows?

I am in pain now from this mesh so let's hope net weeks surgery is a success.  

Best of luck with your progress.

Hello ed66, I saw my surgeon today because my pain has been so unbearable, I have felt suicidal and like I am going crazy with it, cannot live like this. He has told me my last resort is to have a triple neurectomy, I have already had one nerve, the illioinguinal removed, but still in pain.  He wants to operate on 15 Aug to remove the genitifemoral and illiohypogastric nerves also. I also went for an earlier GF nerve block this afternoon because of this pain, but not so sure it really helped. I saw a different radiologist this time. Very worried about my future, but will go through with another op if it can be fixed. He said there is 90 percent chance it will fix it. How are you and did your doctor discuss neurectomy with you?

Hi Adele, been following the conversation between yourself and Ed as you both describe the problems I have had. I am now 6 weeks post surgery today from the mesh removal with triple neurectomy of the illogunial, gentifemoral and illiohypogastric nerves. I had a catch up with the surgeon 1 week after as was in so much pain and feeling of heaviness in the area was in bearable to which i was told it would settle. I had another catch up with surgeon last night and he seems to be happy but says I won't feel full benefit for upto 6 months, all this I am walking 3 miles a day and have good and bad days. The neurectomy will leave you numb in areas which is strange to get used too and the heaviness will sub side but have no doubt you will feel 100% better than you do now. Fingers crossed and chin up

Thank you Adam. This gives me so much hope this can be fixed. I cannot rest tonight because of the pain and thus on this forum once again. Nerve block lasted only a few hours again, like last time. Glad t hear you are improving. I may get my life back again, will trade this excruciating pain for numbness any day. Thank you for replying.

The surgeon I saw was against nerve block as a treatment but instead used it as a diagnosis to see if pain went. Still early days but signs are positive and from what I here the nerve separation and division is a straight forward and quick procedure by itself, I know it's hard as been through it but try not to stress and feel so low yOu will be up and running and swiming again soon

Thanks Adam, I am having a better day today so far. Nerve blocks are hard to rely on. My doctor did it mainly for diagnostic reasons also. I think it worked for a few hours yesterday, but pain came back when local wore off. In saying that I'm having a better day so who knows. Trying to talk myself out of the neurectomy because I am having a better day, but I think I am kidding myself. The pain can come on from nothing one day to severe a few hours later. Thursday I could hardly walk with the burning pain and nothing could get my mind off it. Are you confident will your recovery? When did you have the op? I have already had my mesh out and illioinguinal nerve resected on May 10 2016. My pain did not improve.This op will be to take out the genitofemoral and illiohypogastric nerves. It is to be done on August 15, I have to pay it by this Tuesday and would not get a refund if I cancel. If I have three completely pain free days in a row I may reconsider, I'm confused. Maybe best to just get it over and done with and not worry about it again. I have the od good day, but others do not want to get out of bed because pain gets worse with activity. Saying that once the pain takes over, even lying down does nothing. Move on with life. I have had other surgery that produced numbness in the past, you get used to it and don't notice. It has never bothered me. Will trade nerve pain for numbness any day.

It's funny as I was like you are as in you remember the good days but forget the bad and try and talk yourself out of things, but if your in alot of pain and their is a chance cutting other 2 nerves will solve this you must have it done. I had my op 6 weeks ago yesterday and although they said I would never be 100% from what I was like before any of this they said I would be 100% better than I was after the problems of mesh. I do believe am getting better just slowly as will take time

Thank you, Adam, I am going to go ahead with the neurectomy. Staying strong and will let you know how I go. Will probably be in touch before my op. Thanks for taking the time to get back to me.

 

Not a problem, i felt very lost through your the whole process as nobody seem to have been through the exact same thing so when you find someone who has it's good to hear their is light at the end of the tunnel, keep strong and positive and do keep intouch

Hello adam31057, I am presuming your name is Adam. Very nervous about next weeks surgery. Just wondering the nature and distribution of your nerve pain before your triple neurectomy. I have pain and burning that radiates along my groin crease on the right hand side (quite low). Near my labia majora (sorry about too much information), innner thigh crease and buttock cheek. I also get pain at the end of my incision on my mons pubis, this is where I had the nerve block on Friday, which did give some relief for a day and a half. Did your doctor ever mention the pudendal nerve? I am speaking to my surgeon this afternoon to ask the question about the pudendal nerve. I think I have been doing too much Dr Google and am thinking too much. This nightmare all started after my first inguinal hernia repair with mesh. Which makes me believe the Genitofemoral, illioinguinal and illiohypogastric nerves are likely involved. My surgeon is on the same path.

Thanks, Adele. 

Hello Adam, well I'm in hospital and have had the neurectomy. It's done and I really hope it works. Very sore and tender and aches and pains it was only done this mornining. How are you going? When did you get relief from the nerve pain and feel numb. I understand it must take a while because of the new incision and tissues being cut. I hopefully will see my doctor tomorrow and ask the question. I can't tell if some of the pain is old nerve type pain that I am so used to or the new wound. After neurectomy I suppose it can't be the excised nerves or tissue will take time to heal as its all fresh. I do remember you saying it takes a while and one week post op were in a lot of pain, but you are getting better now. I really hope you are feeling better each day. Adele

Hi Adele

How are you feeling? I truly hope that this operation is successful for you. The battle is so so tiring isn't it?

I wish you a slow, restful recovery. Take it slowly and get the family to wait on you!

Em

I'm still in hospital as I had to have hernia reconstruction as they had to open up last repair to get to the nerves. My surgeon said he got them, I sure hope so. Very early to tell how things will go as I'm obviously sore from new cut and surgery. I really hope this is it for me too. Definitely have to take it easy this time. How are you?

Hi Adele sorry for the late reply, hope your feeling little better today, am still in little discomfort but a lot better than before. It's slow going and I know when I have over done things as in pain but generally a lot better. The numb feeling I still have but doesn't bother me and that took me 6 weeks to get over that, all in all they say 3 months so stay strong

Thanks Adam. When did you start to feel numb? I still think I can feel nerve pain, but the surgeon said he got all the nerves out. I had to have my hernia redone as he had to undo it to get to the nerves. I'm still in hospital, going home tomorrow. Sounds like it's not an instant fix unfortunately. Glad to hear you are progressing, even if slowly.

Thanks Adam. When did you start to feel numb? I still think I can feel nerve pain, but the surgeon said he got all the nerves out. I had to have my hernia redone as he had to undo it to get to the nerves. I'm still in hospital, going home tomorrow. Sounds like it's not an instant fix unfortunately. Glad to hear you are progressing, even if slowly.

Hi Adam - I wonder if you dont mind mentioning where in the UK you are and who did your surgery? I am searching for someone who might be able to help me after a hernia surgery 3 years ago!

Just wondering how your recovery is going? I am 4 weeks post op. I am still having pain, good and some very bad days. Last week I had two whole days with virtually no pain at all, but by the night time I was again in agony and my sleep has been very disrupted Some days I think it will never improve. Still only early days so I have to keep positive. As your doctor said 6 months, mine more or less said the same that it could be months. He was very confiedent with what he had done and said he had got everything and even though the nerves are cut, I can still get phantom pains. I have had three surgeries in a relatively short period of time in the same area so the tissues etc will take quite a while to heal. I have started treatment with physiotherapy, will see how I go. I hope you are improving each day.

Hi tom I am in West Yorkshire and the guy who did my latest op to fix things was Aali Sheen who's part of the Manchester hernia clinic, hope that helps ?

Hi Adele, it will take time as I am still having pain and a new lumps appeared which am going to get checked out, but generally am in a lot better situation to what I was. Even starting to get some feeling back at top of the leg. The pain your getting sounds like nerve pain as the nerves where they have been cut are still firing down all the little branches which is horrible and painful, mine lasted for 7 weeks and now it's only every so often and only a small patch am having an issue with. Physio is definitly the right route and if you can get one who works in a gym or with an instructor they can get you a rehabilitation plan together. I have one more visit and scan with surgeon and if all clear will slowly start increasing activity

Thank you Adam for your feedback. Glad to hear you are having some positive improvement. I will keep in touch. Adele

Hi thanks I will look him up. Any chance I could PM you to discuss some details please. Thanks!

Hi tom sent you a pm

What kind of numbness is it painful to touch...that What I'm already going thru n ii have mind still..?

No real numbness just an achy, burning sensation, which gets worse with more activity, but is generally good in the morning. This could be because my adductor tendons and inferior pubic ramaus is inflamed (adductor tendonosis) . Physio should help this.

I hope you can find someone to help you.

Hello Adele how you feel?are you better?Listen, I would like to know about your pain before to decide to first surgery.Did you had same sharp chronic,constant pain before to make surgery or not.

I was told that the small ones are the most dangerous ones cuz stuff get stuck in there and can lose blood flow when a big hernia stuff can go in and out

I’m convinced that a staple from my right inguinal mesh, was tacked to either an important muscle or nerve. Which will cause a lot of problems!! It may be as simple as removing the staple that’s inhibting the flow of blood from the abdomen down into the inner thigh??

Lauren How long have you had this pain and when was your initial repair.   Gordy

For a few years now actually... procedure was done in 2012. We know that the mesh is crumpled in a ball right now so that is why we are removing it. But in trying to figure out exactly where my

Pain is coming from, the only thing I can think of is these staples!! My cat scan shows one right on a major artery/muscle that can inhibit blood flow properly...

Lauren this is similar to what happened to me just the mesh could be the issue however when this

is removed you will need to go through a healing process. When pain pathogens are established

they can be difficult to treat. I hope your removal goes well you should not have to go through this

If you want you can e-mail me and I can give you advise on what not to do.  Get well

Gordy

If

Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

You are so right. After my Nerve stimulator implant, and many prayers to be "normal" again, it was only after 3 people said John's back,(and my wife saying she forgot how talkative I was), that I realized the toll a year and 4 months of daily testicle pain took on me. The nerve stimulator, for me, has been my life saver.....now to the next health issues.

John tell me about this nerve stimulater. How does that work and what issues did you have and how are you doing. I still have groin issues but not as bad as it used to be. I don't think any of us will ever be 100% but 75% or better is OK

Yea I was told during my last surgery that there was endometreosis on the area where my mesh was...they were going in to remove my rouge ovary that was unattached to any structures (birth defect we believe). Anyway, my doctors didnt even realize I had, had the endometreosis until they took out the rogue ovary and biopsied it there and then to discover the precense of it. So they removed the ovary, right fallopian tube (that was just a nub at that point) but couldn't remove the area where the mesh was probably because it wasn't there place to be anywhere near it, really. Although, I did pay a hernia specialist who didn't take insurances, but was the best in the business, $400 just to peek in my surgery to take a look at my right side and diagnose what she sees. But unfortutenately for me, I needed more than for her to just diagnose it... because we never agreed to it, she couldnt take the mesh out then and there even though she diagnosed it "defective" and saw that it was now "crumpled in a ball". So I have gone through every other route to find the source of this nagging and sometimes unbearable daily pain, that i have had for over seven years now. One thing is for sure, it is true what they say: what doesnt kill you makes you stronger. I may not like it, but I am a more consider and compassionate person today than I ever was....

I don't like taking medication nor smoking the amount of pot i need to do in order just not to take pain meds...

I am 36 and I have suffered during a time in my life I shouldve been having kids.

Once I am healed, my plan is to write a movie on how our medical system treats their patients like cattle. If I do anything with my life, it will be to push a change a in our medical system....

none of us should have to suffer and lose time with loved ones, like this.

( i DIDN'T GET TO EDIT THE ABOVE COMMENT, SO PLEASE FORGIVE ME)