Scared to death PLEASE HELP ME :'(
Posted , 13 users are following.
I'm sorry for posting again. but I'm terrified 😢 I'm still waiting for my ultrasound on Monday but my anxiety is out of control.
my lymph nodes are still up and all of my googling makes it look like my igg level of 33.2 must be an old infection. I don't know what to do. I'm was under 10.0. my test was done after most symptoms had gone. just swollen lymph nodes which seemed to pop up after most other symptoms went.
I don't even know what my post is going to achieve I'm just so worried I can barely sleep or
0 likes, 37 replies
starrA Sam5706
Posted
im sorry
i understand how you feel
i was convinced i had; well- everything!!!!
its all a big lie
this virus is the devil and it deceives your mind
anxiety is running high as it is a part of this stupid virus!
(im bitter)
ive dealt with this 10mos now
its horrific
the fear it keeps you in!
its all by design
eat really well if you can
nourish your mind*
try to go outside/walk a little
throw the ball for your pup
it helps
its hard to control your mind when something is F•ing w/ it!
but you gotta fight
its draining!!!---
i actually pray when im being harassed by this foolish virus!
i also write down what i want and who i am-
try to remember who u are
think about what youre going to do when this drama ends (ugh feels like forever)
its hard to relax
this thing is so insane
i wake up and wrestle with it daily
ive cried
worried
etc
its so annoying
i just got an MRI of my brain as i wanted to make sure i had no diseases
as i was convinced i did*
well my MRI was clear and i panicked for nothing
this thing drains you
emotionally
mentally
in all ways
its so so evil
it stalls healing too
im praying for all here-
try not to worry (easy to say i get it)
its like praying for something bad to happen.....
this is a difficult journey.....
hope you can try to ease your mind somehow.......
healing prayers to you!
josh46287 starrA
Posted
Star the way i look at it everyday you wake up you have won again and eventually the virus is gonna get tired of losing and give up. I am not sure what symptoms you still have but you for sure have less than when you started so that is a win too. With every win you are a step closer and your body is gonna win more than it loses. I have faith in all yall to heal and feel better. Also your body needs to know what better is do not settle for ok today. You are better than the 3rd month and that is "better" We can all do it mentally and physically.
Sam5706 starrA
Posted
Thank you very much. I hope you are feeling better. if this is mono it is the most horrendous thing I have ever experienced. I have been in 2 induced comas for 8 days each, and the recovery after those was horrible, but I still think this illness is much worse.
Clidecjay Sam5706
Posted
My lymph nodes, 3 in my neck, are still not back to normal at 17 months. They are getting smaller by the week now. After the 12th month the ones in my groin and under arms vanished. With every cold or sinus infection the ones in my neck got larger and still do. Try not to worry until you actually have been diagnosed with something else. Your lymph nodes are doing their job as they are supposed to. Some people take longer to get better and stress which you have makes it even longer. Hang in there and think positive. Sending prayers your waychris
Sam5706 Clidecjay
Posted
Thank you Chris. how far into it did your lymph nodes swell? mine didn't start popping up until after 4 weeks which makes me worry that it's something else (like cancer)
Clidecjay Sam5706
Posted
I started feeling bad middle of Dec 2017. Sore throat, tired and just a weird overall feeling. The tenth of Jan I noticed a bump on my neck, still feeling bad thinking i just have sinus infection( which i have usually twice per year) and just need antibiotics. 3-4 days later i get a call and they tell me to go ahead and finish the antibiotics that i have reactivated mono. After a couple more days I get the rash from amoxicillin and feel 2 more nodes swollen on my right side of neck. The original one is still up but about half the size it was. I was told if may never completely go away...The first 6 mos i definitely made it much worse by stress of thinking i'm dying, no rest, and negative thinking. I could not miss work with 2 girls in college and i only missed 2 days last year. So as you see i helped feed the monster. Today, i feel like 90% which is awesome! I urge everyone to click on my name and READ MY STORY. Only a very small amount of doctors know just how devastating this ebv virus can be. Thinking of you all and i can promise you will feel better, but it will take time to run its course. Feel free to question anything in my back storychris
josh46287 Sam5706
Posted
Clide i am not sure if i could handle this 17 months i am depressed anxiety is crazy i just started taking anxiety medicine today actually i still fee tired and week and can not breath. They did a pulmonary function test for work and it was only like 40% i think 70% is passing so now i am going to a pulmonologist. I can not win it is always something and like i have said before this i have always been super healthy.
Clidecjay josh46287
Posted
It is normal to give you anxiety...which can make you feel this way. I took clonezepam(klonopin) small dose .5 mg 2 times day and it worked for me. Everything else was too strong for me. This virus makes anxiety worse and searching on google feeds the worry. Try to relax and don't worry about what could be...it doesnt help. If you have time click on my name and try to follow my back story. This forum helped me to believe all the crazy side effects this virus gives. Some stories are similar and some are unbelievable but are true! Thinking of you and i know you can get through this and be a better person for it. I know i am chris
2chr2015 Sam5706
Posted
any news yet?
Baconman 2chr2015
Posted
Her ultrasound was fine and the doctor agreed it's probably just mono 😛
2chr2015 Baconman
Posted
great news!
Sam5706 2chr2015
Posted
what Baconman said 😃
I had the ultrasound and the Lymph Nodes are all normal - they said they are the lymph nodes that fight infection.
I went to the doctor and she doesn't really want to do anymore testing because apparently it's a waste of time and money.. rude.
I asked her if she thinks it was glandular fever and she said she thinks it was. either caused by CMV or EBV because I have antibodies for both.
I asked her if it was worth testing again to see if the levels had changed.. She was reluctant but agreed in the end, so I had a blood test yesterday for vitamin b12, folate, vitamin d, ebv, cmv and she said she was testing something else too but I can't remember what it was now, maybe some autoimmune thing.
I have to go back Saturday for results and a pap smear 😫
2chr2015 Sam5706
Posted
i am happy to hear that. and its good she is going to be thorough even though she didn't want to lol.pap smear not what o want to do on a weekend! are you in the states?
Sam5706 2chr2015
Posted
I haaaaate them!!! I haven't had one since before I had my almost 4 year old. nope, I'm in Australia
craig07920 Sam5706
Posted
Hope that you can get some good news with the blood test results at the weekend Sam, still thinking about you.
That's great too that there are some good Facebook groups for those going through mono - another good idea for people to connect with others going through this and who understand what it's like. Hoping that you can chat with some good and supportive people through that Sam.
Craig