So mad and fed up!

Hi  been reading all that's been written on this miserable meno condition ,I find along with what's been said ,it's the anxiety that comes along with it ,due to the continual discomfort ,I suffer sciatica ,so that makes this whole lot worse  I've had the Ovestin ,didn't find no relief from that .

   I tend to now stay away from leggings etc when in home ,most of us females prefer for ease ,I go for Kaftans in house ,on advice given to me .

   I wonder what our ages are in relation to having this ,me Im 68 ,my cousin in same sit ,also 68 ,she's been on Ovestin 2 times a week. But says still feels it  uncomfortable ,and another cousin 63 in same situation .so age is why I asked ,or does it cross all meno ages ? 

   Never known anything to keep going and going .Didnt think Id have this in line for me ,like non of us did .Miserable every day .

 

Hi Linda, Thanks for your message. Must admit I'm not one for exercise but I've heard it aggrevates the condition. I'm not one for long walks either though I used to be.

I wear trousers and jeans most of the time too. Not heard of allergies to Black dye before.

Yes I was hoping it would just go away too but I've had it on and off since July last year.

I used Vagifem for about 8 months and gave up because it wasn't helping and the same with GINEST. Glad the Vagifem helps you though.

I've got the Vit E Capsules but not sure its a good idea to put one up inside. Although the oil inside is meant to be great isn't it. Having said that it would no doubt soothe my soreness but it wouldn't stop it coming would it. It needs the Vagifem, GINEST or Ovestin or similar to do that doesn't it.

But yes I wear panty liners too as I use another moisturiser, forgot its name. And I use Hydromol when I have a shower.

No sex here so that side of it is irrelevant.

I know its very painful, expensive and uncomfortable.

And yes I agree with Marlene too about the anxiety side of it. Not had sciatica for ages but I know what it's like. Will have to give the Ovestin a go I think, sorry it didn't help you Marlene.

Yes Kaftans etc makes sense too.

I'm 58 Marlene so a bit younger than you and your cousins.

No I've never known anything keep going like this either. In fact I can't understand why I have never in all my life heard anything about this condition till I got it last year.

It's awful isn't it!

Hi Marlene:  I am going to weigh in on your comments, I am 70 and have had this condition for 5 years.  If not for this, I am a healthy active woman .. but the pain brings me to a halt.  I took Premarin, which I think is like Ovestin, and it helped for 4 months but now I am in pain and have a UTI for weeks.  Of all the things I worried about in aging this was not one I ever imagined... like you I stay away from leggings and prefer skirts ... miserable too

You sound exactly as myself word for word ,b..... Y nightmare Id call this ,only time comfortable to any degree is when I'm horizontal  I suffer to from Mal de Dembarquement syndrome ( balance ) had that 4 yrs ,so with Sciatica ,balance and this ,don't make me a happy camper ,far from it 

   Sciatica and the Gyne ive had now for 8 yrs ,and talk about wriggling when sat ,tend to sit on my hip joints to get relief from both .think to women get lot of UTI from the bladder and womb ,being only 10 cms from bowel inside,so little wonder this hangs around for fair few years ,and how estrogen protects us that's until it all goes pair shaped and things thin out inside .

    Sorry that you and everyone is suffering this .women with Crohns and Celiacs have this as part of their condition wasent aware of that either .Things I can still learn at this age Im at .

so sorry to hear about your issues... I get so frustrated cause just want to be able to do what I want..    hang in there are you from the U.K.

Hi yes I'm in the UK ,yes this does hold you in limbo .Try this Try that to help relieve it ,all one with it does. Hope we wake up one of these days and it's stopped as it began .Women drs go through this ,so I prefer a woman Dr for almost everything these days ,got all body make up we have ,know what and where you describe things .You hang in there to ,tomorrow's another day .

I'm going to be 65 in January. Suffering just like everyone else for about 8 months or so although that was when it was finally diagnosed. I was having constant uti's and symptoms long before.

Me to Nancyo...never thought I would have so much pain and be so miserable in my old age...trying to stay positive. Just wish there would be a cure to look forward to.

Hi Marlene it does put you in limbo.   I have tried everything, been to so many doctors, seeing a female urogyno and truth is she has no concrete answers, try this, try that exactly.  There is a study at Stanford to clinically investigate and asses safety of the Laser for the treatment of Laser Atrophy and I am trying to get into it.  No more options...

Wondering about the laser thing. I don't know much about that. Are you referring to the Mona Lisa laser thing?

Mine all began after a bad illness ,then this all began ,but I had lost over 4 stone in weight ,think this then resulted in my getting Sciatica ,as I had no muscle tone at first ,then this followed on behind it ,told several drs it was uncomfortable to sit  had 3 seperate Gyne check up ,the last one Dr put me on Ovestin ,after I went through a chemist shop products ,I thought once I got weight back on ,this would have cleared up ,obviously got that wrong .

    So weight loss I think became kicker for bringing this on in first place ,when I hit meno at 48 yrs had bit of this then ,but cleared itself ,older now and it's just stayed  the illness set me of down meno track for a second time ,which I've found out can happen.

Weight loss could have triggered some of this I think because women have estrogen in body fat I think. If you lose weight you might lose estrogen which might cause VA symptoms...I'm just guessing but o think there is a connection between body fat and estrogen. Sciatic pain is just terrible. So sorry you had that too,

Must be literally thousands of us with this issue ,look on any female site on the Internet speaks volumes to the many problems women get .

  Laser atrophy I've never heard of .never k ow if it's out of the fire and into the frying pan ,I live these days with buyer beware mentality ,I got Mdds after an osteopaths visit within 2 days for sinus drainage ,I know that's happened to 2 others ,so I'm wary of anything .Limbo were in ,says me sat fidgeting sitting on a heating pad .

Pat ,yes I think that's what set this off ,weight loss and quickly in its wake this all kicked off ,I've put weight back on ,so more backside padded ,but Sciatica and the Gyne stayed ,even a doughnut ring never helped .

   In the beginning ,I did think Levator syndrome ( cyclist syndrome ) as it was in an article by a UK Dr ,yes it did read the same as how I felt ,so ? Is that something to look into outside of AV or maybe together ? That happens through weight loss ,but it's not well known condition this Dr said ,he was a older Dr saying this .I know when I read it ,it hit a nerve .mentioned this to Dr ,fell on deaf ears yet again.

Deaf ears ... I think we see that too often. That is why we have to be so proactive with our own health....I am going to look that up. Knowledge is power they say.

There's a site purely on this condition ,I was amazed when I to looked it up  after reading that article ,this poor women had had it for 15 yrs ,everyday pain ,like what's being said here ,she said when she wrote to this Dr mentioned and described her long standing symptoms ,he knew what it was ,think this lady was in our age group to ,still got the article .Let me know your thoughts once you've had a read ,yes knowledge is great ,it helps fight this daily battle ,to finding a way to relieve this pain we have with it ,I've just started having a daily Garlic capsule ,to try and flush through system ,as it acts as a anti bacterial naturally .yet another thing to try ,but worth a go .

Marlene21102.  what is the site that is purely on this condition?  I am very interested to check it out.   Sure appreciate your comments. 

Pat ,I just put up Levator Syndrome ,or you can put in Cyclist Syndrome ,took me straight to it ,it was that quick ,then go down to the forum,I was gobsmacked at how many were on there  talking about it  will look that bit the Dr wrote .I know heat pad was mentioned by a lot for relieving symptoms ,I've got mine ,when pain is high ,best £30 spent .Oh put Levator Ani syndrome ,Ani came in there somewhere to ,memory serves me .Will go look again myself to .Old drs do know far more for sure .Hope you find it ,worth a good read up .

Thank you, thank you, thank you! 

I am going to look up Levator syndrome too.. following all leads. today feeling better, never know when its going to hit...

This is for Shirley, Marlene, Linda and Nancy. I don't get on here much. After reading these few and replying to a few others, all I can think is that Momma NEVER said anything about this Crap! I'm 59 and we're all in the same boat. I'm completely wigged out!

Glad to know im not the only one,nobody understands unless they are going through it and no one i know personally is, although they probably wont tell.Not me,im an open book lol.Hope you feel better.