Still feel unwell after Helicobacter Pylori Treatment

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Hi,

I had symptoms for about 2 months, nausea and upper abdominal gwaning feeling, plus appetite affected and had waves in the day feeling generally unwell , I think it was brought on due to a stressful situation. I went to the doctors and tested positive for helicobacter pylori. I have completed the 7 day treatment (Triple Therapy.) I was on 400mg Metronidazole 3 times a day, Amoxicillin 500mg 3 times a day and Omeprazole 2 times a day. I've been off the medication for about 11 days. I have waves of extreme tiredness, abit sickly feeling, sick upper abdominal feeling, tounge doesn't look right, been given thrush treatment for this. And also I have waves of soreness and swelling feeling in the upper stomach. I have lost a bit of weight, a few pounds. I have been off work for a month in total and am wondering if I will ever get my health back?

I take probiotic tablets, Manuka honey, peppermint tea, abit of yoga, walking, plain foods. But admittedly at times I do feel a little bit destressed when I have waves of not feeling so good. Everyday is a battle at the moment. Plus when I go to the loo, last week my stools were acidic, this week a slight improvement, but not normal. The doctor just said they can retest in another 3 weeks. But sometimes I feel so ill.

Any advice in a positive way forward?

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  • Posted

    I have a question.

    Im 22 diagnosed with h. Pylori in october of this year. Took meds for 2 weeks, since i stopped my medication ive lived threw hell. After a huge process of side effects with taking tecta i finally stopped that. But now i am constipated and sometimes ill have inflammation in my chest middle part. I drink tea morning night. Eat healthy. Drink loads of water. Im just starting to get discouraged. Any help?

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    • Posted

      Jose,

      We are in the same situation, I hope you don't feel the palpitations! The gastroenterologist told me to drink water half an hour after meals. I always did it with meals. I hope it helps you.

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    • Posted

      Hi sandra,

      Yes ive been having hearth palpitations.. some mornings i wake up better than ever. Some others its horrible... i try to keep busy since christmas is coming its not so hard. But it has been rough on me since i started having trouble eating in mid july. I took my antibiotics in october. And now i see posts of people saying it took them 7 months to become fully recovered! Wow.... i hope it goes well on your end. I am seeing a specialist friday, cant wait.

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    • Posted

      Hi,

      Feeling better? I am doing a little better but the nausea, weakness and bloating have not dissapeared completely. I don't know if it is the omeprazole that is causing all this or in the contrary is what is helping reduce the symptoms. I hope you are feeling better! I am still eating very small amounts of food, trying to keep my weight is difficult!

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    • Posted

      Hey Guys im new to the forum. I actually had to go through alot of stuff to get to where i knew about my Hpylori. I had a near death experience so i never could have made the link between pylori and the anxiety. After the meds and withdrawal symptoms from the intitial issue and anxiety. I realised i had acid reflux. Thinking that it was cause by the meds or maybe it was, i was prescribed omez and did all the dietry changes, research etc. I then went for a endo to find out the extent of the injuries to my stomach. To discover that i was positive for the Hman. Triple theraphy to follow and today is the last of the antibiotics. I have much more to share guys.
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  • Posted

    I just found out I have pylori in Nov ever seance they did my upper gi I feel worse then I did be for they gave me pylera and I'm worry to take it cause I seen ppl post about it I was told it will kill it off I still don't get how I got it I've been trying different things but nothing don't help I feel like I die and went to hell I don't want to do nothing some days I feel good and other days u feel like s**t so can anyone help me out

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    • Posted

      Jen,

      I would do the treatment. Even though it was awful for me, there are medications that may work better. I had a endoscopy today and they found a mild swelling and sent some for a biopsy. I hope i don have to go for a second round but if we don't take the medication, I don't think this will ever end. I am trying to eat small amounts of food and nothing greasy. That worked before the treatment and I felt better. I will never know if not doing it would have been better. But if the pylori continues in our bodies we need to do something else.

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  • Posted

    Hi, I am just wondering if anyone knows if severe nausea is normal to have with a duodenal ulcer. I came off two antibiotics a week ago but I'm still having awful nausea even with taking two anti-nausea meds Zofran and Maxolon and a PPI. I have no energy but I'm putting that down to the after affects of the antibiotics. I had a scope in the hospital that confirmed a duodenal ulcer, I have mild burning in my stomach which I can cope with but the nausea is horrible. I am eating very plain foods and about every two hours. Is it normal to feel this sick with a duodenal ulcer.  

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  • Posted

    Hi! I was thinking to share my experience with this helicobacteria. I ate bad food in august 2017. I felt bad some days, nausea, stomach pain such as usual things if you eat bad food. Then it started to feel nausea each morning and had no taste for food. Sometimes I woke up in the night with stomach acid. I have never had problems such like this and did not know what it is. In September I felt very bad I was out of work for days. Then I went to doctors for check-up, I had blood test, ultrasound for stomach, gastro-sonda and several check-up by doctors. I received the usual triple therapy (I had helicobacter) at end of October for 14 days and got PPI for about a month. At Decembeer I went back for urea test what shown that helico is gone. I lost 12 kg and I am still on diet. It takes a very long time to recover and feel better. I would say the diet is a key to recover if the bacteria is eradicted. After medicines I felt bad every morning, then once a week then once 2 weeks. Now I feel bad if I eat bad (no acid food, no onions, tomatoes, spicy, drinks with gas or alcohol) but especially sweets bad for me. I can say that after 2 months the medicines it is better if I keep the diet. It takes a lot of time get better, some said it weeks, some sad months, it is up to body, diet and many other things. Keep on guys, no stress, keep diet, be patient and with the passing of time everything will be better!
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    • Posted

      Thank you for sharing. This situation is stressful and it is nice to hear it will get better. Did you ever take omeprazol? I am not sure if it is helping me. Mornings are awful and anxiety does not help!
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    • Posted

      Sandra, I got the triple therapy as usual but I got PPI (pantonprazol) 2 pcs per day while I got antibiotics then once a day for 14 days. I have a friend who is a doctor she told me that some doctors prescribe it for long time but it is a strong medicine because it haults the stomach acid production. Partly good because protects stomach from acid but on other hand keeps back the immune system of the body (acid stops lot of bacteria in stomach). She suggested me to leave it step by step so at 10th day with pantonprazol I got only a half per day then half per every second day. She offered me to take rennie (it contains calcium carbonate, magnesium carbonate) if I feel acid but usually I try to avoid medicines. Don't worry, morning is always awful, the worst part of the day for stomach with such disease. So, I can not give advice for omeprazol but my advice is to drink green tea, tea for stomach from pharmacy if you feel pain in stomach and light walks helped me a lot. Eat often small portions due to diet. Now I feel not so well because 2 days ago I drunk a small beer what did not make good for my stomach (especially the gas) so it reminds me that it needs much more time to heal. If I keep light diet I have no huge problems anymore. Some people heal in weeks, some months, others years. Since when are you struggling with this cursed bacteria?

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    • Posted

      Hi! It all started in July but the doctor did not do the h pylori test until November. It has been a month since I started the treatment, which was awful!!! I feel 50% better but I cannot wait to get my life back 100%!!! Today I don't have the upper stomach pain but some in the low stomach, but it is a different pain. Eating is not a pleasant feeling. I hope I feel much better when I go back to work in a week!! I hope you feel better! And thank you for the updates!! It keeps me sane to know other people are feeling better!

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    • Posted

      Yes, I know the treatment was horrible, I felt pain for days with the antibiotics. I finished this therapy more than 2 months but still now not 100%. There are better days, there are worse days, depends on how I worry, stress and what I eat. This Christmas period did not help me (sweets and alcohol kills me now), so I had bad days now even if I drunk a small beer only.

      At these days I was made a new check-up with new docs, they made ultrasound for stomach and gastrodoc controlled me. They told me that this H.pylori made injuries in stomach what heal very slowly, some cases can be months and the most important now to keep diet and avoid stress. The injury must heal now. I started now De-Nol tablets, do you know it? They told me to get it for a month 4 times a day, it helps to protect stomach from acid to fasten the healing. It is a Dutch/Japanese stuff but not medicine exactly.Since then I got it I have no any symptoms and really better than anytime since August when I got this cursed H.pylori.

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    • Posted

      No, I have not heard about those tablets. I am going to try the Mastic gum and oregano oil. My palpitations are back and this is what keeps me down. Doctors don't relate palpitations with h-pylori. They say it is anxiety so I am seeing a therapist. I feel really weak and shaky. Dr. Ordered a gastric emptying study to see why I cannot eat without feeling the sensation of wanting to vomit. Down 25 pounds so far sad. Again, they don't seem to relate my symptoms with the h-pylory!!! The omeprazole made me feel awful and he wanted me to keep taking it!! Also, it was not eradicated with the first treatment but Dr. said we can wait for a second treatment as it was awful for me. Again, it seems they do not relate what I feel with H-pylory but from what I read from you all, it does have to do with the H-pylori. If a second treatment is going to be awful, I think I am going to wait until I have a break and can be home without worrying for my job.

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    • Posted

      This Mastic Gum I read a lot but here in Hungary we have no and doctors did not offered. Oregano oil I did not try but oregano is good against this H.pylori. Palpitations should not caused by H.P. but it can be from nerves what caused this HP infections. In some cases (1-2 times) I also felt this but gone soon. Don't forget that anxiety can be caused by stomach problems (it has many nerves in our stomach system) what caused this bacteria. Feeling of vomit. Try to eat for some days which foods you don't feel this vomit. Some bread good for me, some (dark ones) cause me stomach pain. Everything is personal, some food is good for you, some not. I also lost a lot of weight, it is also normal by this HP (I lost 13 kg what is about 26 pounds). Omeprazol, pantonprazol and all the prazols. I have a friend who is a doctor and she told me that all this prazol works as follows: it vary the level of acid in your stomach. If it is low, it let make it, if it is high, it stops stomach to produce it. The problem is that these are strong medicines even if a lot of doctors suggests it. If you stop it after a period of getting it, it can cause high acid in stomach what makes problems again and you return to this medicine as well. She suggested me if I stop it, I should stop it slowly. In the cure with antibio I got 2 a day then one a day. She told me that I should get half a day for some days, then half every second day then leave it. If I feel acid, I should get not prazol but antiacido tablets (they are weaker than prazols)-they leave 30% of acid in stomach. But the best is if you eat white rice, cornflakes with water (not milk) and drink special tea for stomach (if you have no it where you live, also tea from chamomille is good). I would not get prazols even if some other doctors suggested me also to get it for a year! Gosh! No way! The second treatment is always stronger than the first, this is told by doctors as well. I had luck to eradict this with the first treatment. You need to eradict HP even if you need a second treatment. I don't know if doctors told you if you smoke it has lower chance with the treatment to eradicate HP with 20-30%! You must wait to heal and keep head up! Time and diet and no stress will helps you as well. I suggest you to get the second treatment to eradicate this HP (don't let time for it to work in your stomach), when you need to get antibiotics, you get prazol and probiotics then after 1-2 weeks of prazol without antibiotics leave it also and keep diet. It helps but need a long time perhaps months. And some countries offers this De-Nol with the treatment together especially against H.pylori. I get it since 4-5 days (I am over the treatment since 2 months) and really feel like 100% (since summer I had no such good feeling). I tried many stuff as well as broccoli capsules, papaya ferments and many others but it is the best. By the way doctors told me to get medicine against nerves for 1-2 weeks because stomach must be calm down (you can see your anxiety and palpitations can be caused by this). I wish you get better soon! I know who did not went over of this HP will never understand such pain, and suffer.

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    • Posted

      I forget: i have a friend who could eradicate this HP only with the 3rd therapy and suffered a long time. It passed this HP and suffer and now she feels 100% (it passed some years). So the end is always bright if you don't give up but time, time, time.....sometimes I had no patience as well....

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    • Posted

      I’m just wondering how you can eat normally I feel that I can’t yet living on soup broth I have no appetite and have also lost weight like you had an endoscopy last November they found h.plyori and erosive gastritis so I have been on Omeprazole for 6weeks just finished now so I’m waiting to be retested in two weeks but I still feel so awful like washed out no energy how long do you feel like that after the Omeprazole i keep thinking I have a virus aswell I don’t know but paracetamol is making me sick
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    • Posted

      I had the same as you: H.pylori and erosive gastritis. I would not say I already eat normally but much better and some stuff I still avoid (such as tomatoe and onion etc). I got also pantonprazol for about 6 weeks. No, it is normal, I had triple therapy at end of October and all the way felt like you November and sometime December. What helped me a lot: green tea or tea for stomach (we can buy at pharmacy) and move (walk a lot). It helps a lot. What was my daily menu: morning conrflakes with banana (made with water not by milk), then 1-2 hours later toast with butter and thin ham, then dinner white rice with chicken breast, evening I ate some salty biscuits (no sugar) and evening dark rice with chicken breast as well and before sleep a sweet apple without its skin. I would not say it is a very good menu but no problem at all and it gives no problem. I was consulted also with a professional dietethics what I can eat or what not. If I eat dark bread it gives pain yet. A lot of stuff is personal but some are generally must avoid. And what you MUST get: I get De-Nol tablets (4 a day) and since then I have no problem at all (it is a week cc). It has bismut-oxid content, it is not medicine but some helping stuff such as probiotics. The first one what really helped me. Even a week ago I felt discomfort in stomach a lot of time and especially on 30rd of December felt like s**t because I flew by plain what I hate and made acid in my stomach with few food. Then I started this tablets and everything passed. Try it and get it! It had no any side effects and it really helps. I tried everything before, teas, Chinese tea, broccoli capsules, papaya ferments and many other things but this really helps.
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    • Posted

      I also have mild lower esophagitis with erosions I have got wait 2 weeks now to see if h.plyori has been eradicated. Mastic gum is good and I Matula Tea but made me feel sick and I took 3-4 mastic gum and came out in a rash over my face won’t be doing that again!! But I have just been living on bio yogurt and bananas.cabbage and brown rice broccoli and fish tuna salmon but for while was just on soup broth and im taking probiotics and pepzinc GI and DGL all from health food stores and multivitamins cod liver oil every day but at the moment I’m just using gaviscon to ease the acid while I wait for test results!
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    • Posted

      Hi there - i'm new to any discussion forum and didn't know how to make a general comment rather than reply to one person. 

      Since November 2016 I have suffered with heartburn and after several months of trying different foods, i attributed the heartburn to wheat so i cut that out.  in April 2017 it was so bad i went to GP who gave me Omeprozale for 28 days and she said that would cure it.  I had a bad time all summer, but was on holiday so took over the counter Ranitidine  to help for a few days a week.  i finally gave up and went to GP again in October.  she referred me for a gastroscopy which i got on 13th December 2017.  Results were ulcers, infected with H Pylori, 9confirmed with boipsy) Gastritis and multiple polyps. Biopsies were taken off one of the polyps too.  I was given triple therapy for 7 days 1000mg amoxicillin twice a day, Clarithromycen 500mg twice a day and 20mg Omeprazole twice a day, then dropping to once a day when antibiotics were finished.  they also gave me Maalox to drink after every meal. 

      Christmas came and went and i have just today finished the Omeprazoles and i feel bloated, with taching pain at top of stomach and disheartened, probably even more so after reading all your stories, but at the same time i need to know as much as i can so this has helped my understand a lot.  To date since 13th December, no medical person has contacted me to give me results of biopsies, so i'm hoping that no news is good news.  After the gastroscopy the surgeon came to speak to me and said that i would not need any follow up treatment or appointments. 

      I got a bad case of thrush and had to get the tablet for that and i ended up bubbling like a kid to the GP.  she said I was too anxious and gave me 14 days of Diazipam to help me sleep at night which has been difficult for the racing heart.  it's like  . .every moment i am 'aware' of my stomach and guts even though sometimes the pain is less.  Am I focussing too much on the negative side of this and perhaps this is actually causing my symptoms?

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    • Posted

      No you are not alone I was crying at the doctors the other day as I’ve have been through h.plyori 7 days triple therapy and Omeprazole just finished them waiting for stool tests to see if it’s been eradicated it’s a tough time with anxiety the doctors just pass you a tissue and stare like with no sympathy but I guess it’s there job and to make matters worse no one understood what I was going through my husband especially the doctor said to me you are anxious and I said wouldn’t you be worried if the h. Plyori might not be eradicated waiting for test results. by the way on those Omeprazole did you have heart palpitations nausea and blurred vision? 
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    • Posted

      No Anna, I can't say I was nauseous, but heart racing at night (is this palpitations) and very blurred vision worse than normal.  when i say worse than normal, it is because I have a Cavernoma in left temporal lobe of brain and there are days when i can focus and days when I can't.  Cavernoma Alliance are currently investigation the link between gut and brain - lots of cavernoma sufferes also have H Pylori and gut problems

       

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    • Posted

      Do you Omeprazole is really bad for you there was a report last July 2017 that ppis contribute to premature death I hate them I have been ok and off them since 2015 because the doctors put me on them and left me on

      Them not monitoring me just left me on them and I came off them myself and also I didn’t know you are not supposed to drink on them well I just carried on drinking my wine and had the spicy food if you these the drugs will not cure you because acid from the alcohol will interfere with the drug and spicy will irritate stomach lining the doctors do not tell you anything they just dish these out like pills please people come these drugs that are really bad for you I’ve completely changed my life style I ate healthy before but I’ve cut out lots of things and if I still have acid reflux I’m the future I will consider acid reflux surgery.

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    • Posted

      Hi Tamas92825

      Where do you get the De-Nol tablets? Is it available by prescription only or over the counter?

      I really would like to try it.

      Thanks,

      Bob

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    • Posted

      please get tested for thyroid antibodies.  often h. pylori is the root cause of hashimotos.  Heart palps are common with hashimotos
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    • Posted

      you have a great friend . wish i had one to tell me what these ppi can do. been on them for 2.5yrs still can't find a way to get off . horrible med

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