Taking Levothyroxine at night improved my life.

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I was put on 50mcg of the stuff at xmas 2013, then after 3months put on 100mcgs. First of all I felt all over the place, disorientated like I had vertigo,then I changed to taking the pill last thing at night and the difference is remarkable, I wake up earlier, feel more refreshed and active, the feeling of disorientation has gone and my recent blood test was excellent and the doseage was working. Has anyone else had similar symptoms and found changing to a nightly dose has really helped them.

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  • Posted

    Hi. It's really great to hear how others are getting on, so I hope my feedback helps too: I am now day 2 of taking 150mg at night. I am feeling better, but it's the weekend and will see how things progress over the week. On a slightly different note, my symptoms seem a bit muddled ... some hypo: feeling cold, fatigued, low mood, sluggish and some hyper: red palms, heart flutters (since taking Levo at night) and being scatty, unfocused. Anyone else have this? I'm seeing the consultant on Thursday and will ask him. 
  • Posted

    Hi Doreen...I have been on thyroxine for about 3.5 years. I had to have a thyroid ectomy due to a heart med {amiodorone for V tack} and it killed my thyroid. I was up to 400mcq daily which I took at 2:30 am every day before eating or taking anyother meds. I felt awful, my BP was all over the place as was my pulse rate and temperature. I was also not a very nice guy as my mood was difficult to control and I hated it. I shook so much I felt like I had parkinsons. Last On Dec 12 2013 I had a heart transplant, that was not fun but I am still here. That was when the thyroid symptoms became very pronounced. My brain was foggy as heck in the morning, my heart would all of a sudden race and I was sweating. I was afraid that I was rejectioning my new heart but it was OK and I want to keep it this way. I have seen in several of theses posts about the feet having problems, I feel I am walking on rocks and my feet are numb as are my fingers, Is this the kind of problems that you and others have with your feet? What about muscle cramps or difficulty getting the muscles to work when getting out of bed?

    My DR does not know if my antirejection meds have anything to do with how the levo is absorbed but I do not take them at the same time. I can deal with the feeling in my feet as I have stenosis so that is probably causing that. Several months ago I reduced my levo down to 200mcq and started feeling a lot better but my blood levels keep coming out to high and I think if they are too high a person has to take more levo to bring the levo down, at least that is what I am being told. The pharmacist told me that I should be kept at a lower dose of levo so it is not stressing my heart and other systems. I also told my doctor that I would rather be hypo because I feel half way normal. I should feel great with a new heart and my body getting more bloood now but I feel like you said, kinda disorentated and foggy vision.

    Sorry this is so loong, just had a lot to say, thanks for any help and I will let you know how I feel after I have changed my dosing to the night time maybe about 8 pm.

    Ron

    • Posted

      Hi Ron,

      The feelings you describe in your feet are perepherial neuropathy. I have that as well and it is a horrid feeling! Many people with Hashimoto's and or hypothyroidism seem to be effected by foot problems. Doctors don't address this much with their patients, but if you read any blogs or threads you'll find it is a common complaint.

      I am going to try taking my meds at night for 2 weeks to see if it makes a difference.

      Good luck!

      Jayne

    • Posted

      Hi Jayne...Most of the neuropathy in my feet comes from the stenosis in my back, I need another surgery but have had my fill of surgery for a while. I started taking my levo at night 3 days ago and I am already feeling better. My doc tests my reflexes in my feet every time I see him but he has never mentioned the neuropathy can come from the levo.

      Good luck to your change in time with your medicine. It is working for me.

      God Bless you

      Ron

  • Posted

    I take 100 levo and 5 Cytomel daily. The brain fog, fatigue, and neuropathy in my feet has become unbearable. I never had any of these problems until a year ago and I wonder what changed? My levels are perfect so my doctor thinks its related to something else and wants to send me to a neurologist. I dunno ... I really think it's related to the levo!

    Anyway, my question is; should I take the levo at night and the cytomel in the morning? My understanding is that the cytomel doesn't stay in your system long enough to justify taking it at night.

  • Posted

    well so far it has been about 5 days since I began taking mine at night beofore bed and I do feel a littloe better, more energy in the am and not as much brain fog and problems with my new heart such as up and down pressure and rate.
  • Posted

    Hello everybody. I have been diagnosed with 5 different illnesses: Third degree heart block (Pacemaker implanted in 2007); Chronic kidney disease (+/- 1.51); Hypertension; Birdshot Retinochoroidopathy, and most recent, Hypothyroidism. And about symptoms, yes, I have my ups and downs. As the saying goes, "take it one day at a time." My daily Medications are: Lisinopril 20mg (for hypertension); Loratadine 10mg (for allergy); Levothyroxin 25mg (for hypothyroidism); and a Men's Dietary Supplement (started on January/ 2015). I just started taking Levothyroxin 25mcg in order to have a new blood exam in 8 weeks. I was told to take it in the morning 30 minutes before breakfast. I did that maybe in the first two days, but after some thought, I started taking it during the night when usually I wake up (between 3 and 4 am) to pee. At the end I was afraid I was doing it wrong, and tonight I decided to check about this medication online. That's how I found you guys patient.info - even though I'm not in uk. I also found an information saying that there were two (small) studies (2007 and 2010) showing that taking the medicine at night would be better. Maybe you already knew it. I came here to share this link with you: http://thyroid.about.com/od/thyroiddrugstreatments/a/bedtime.htm - In my specific case I cannot report any difference yet. At least, thanks to you ( people on "Taking Levothyroxine at night improved my life" ) I'm not guilty anymore in taking it during the night. I wish the best for all of you.
  • Posted

    Hi Doreen7562, I take thyroxine 150mg and always feel sluggish in the morning, so now going to take it at night and will let you know how I get on.
  • Posted

    My pills ran out and I couldn't get any more for 2 weeks. ( I was away as my Father was suddenly taken ill)  I was fine throughout but now 2 days after resumption of my 175 dose I'm feeling very unwell. Anyone got any idea how long it will take to sort itself out again? 

    Also is there a link between serious menopausal symptoms and being on thyroid medication? 

    • Posted

      Lottie you should never stop taking your tablets,  Levo is stored in your body and not used straight away it takes up to 6 weeks to rid your system of the levo so you have reduced your store by two weeks, you may find it will take up to 4 weeks before your start to feel better.  A quick visit to your fathers gp would have helped you to get some tablets,  as you are on quite a high dose I am surprise you thought you could just stop.  

      I guess you wont do it again!  I hope you feel better soon,  may be worth speaking to your gp re premenopause and hypo,  I am a little way off that yet so cannot comment.

       

  • Posted

    Thanks for the info Hellsbells15; very helpful. Yes, I knew I shouldn't not take my thyroxine, (I've been on it for 15 years!)  but my Dad was dying, and there were too many other things going on that I had to do... organising a funeral took up far more time than I expected it to. 
    • Posted

      I am sorry to hear about your loss, and after 15 years you probably know way more about being hypo than me.  I hope you start to feel much better soon.

      Big Hug.

  • Posted

    hi my doctor just put me on this pill it is 50mg.I feel like I am drunk wobbly all over. I just took one. Should i try it at night or just call the doctor to stop it. I am all ready on stress meds. i don't like this feeling can you advise me on what to do thanks 
    • Posted

      HI Lynn

      oh dear, i hear it can affect some like this at first, some take it at night to eleviate the feeling ..

      it must be 50 mcg - not 50mg surely 

      jay x

    • Posted

      When I was first medicated it was the same for me definitely try it at night. Just make sure you take it well away from other medications and vitamins. Take 1 hour before food and 4 hours after.

      If you are taking calciuma or vit D meciation make sure you take 4 hours after. Some medications bind to the levo and it does not work as wel.

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