The toothpaste I have been using has been discontinued can anyone suggest a new one

Hi Elaine do you have skin lichens as well only I do and do you know the cause of it. How old are you Elaine only I am 56 and notice more people in gnus age group with this disease xx

Hi Gillian yes iv got it on skin ,iv had it from early 50 I'm now 69yrs I use dermovate on skin ,and oral nurse toothpaste dos not hurt your mouth ,and over the years iv tried every thing ,it was quite under controll till 5yrs ago had cancer and was on chemo ,it started it up again ,specialy in my mouth ,it's an horrible thing ,but we have to live with it ,but please try oral nurse ,I know you will be ok ,it was the professor who I am under told me ,not looked back ,it's so good no more stinging my mouth ,I'm very pleased with it , x

Hi Elaine when you were younger did you have any problems with cervical smears I had precancerous cells and had to have leep I got this lichen planus after that think they were linked, if you don't mind me asking where did you have cancer I'm 56 and terrified of getting cancer with this disease, have you had any body hairloss with this in your private parts nice to speak with you Elaine xx

Hi Karen...you know I wonder how many of us used estrogen creams before this started. That is when mine started. I was okay at first with them..but within a couple of months the itching/tearing/irritation started and I would get what I thought was a yeast infection and would treat it that way. I would stop the cream and it would clear up. Everytime I would go back to it...the same thing would happen...and then eventually it just didn't go away again. I had read somewhere that one of the ingredients were causing allergic reactions in some women. So just curious.  Tomorrow I'm going to start a parasite cleanse...just to see if that makes any difference.  It's an easy one...and gentle on the system...and inexpensive to do...so worth a try. Anything is worth a try. Right now I'm suffering most on my legs...the itching could drive me insane. Baking soda soaks help a little...and spraying witch hazel on them helps also...but nothing is clearing it up. Like I've said before...I'm determined to find answers...they say there is a cure for everything...and I'm sure going to keep trying. I've not experienced the hair loss...so fortunate there. The low thyroid could be causing that and it doesn't always show up with the regular thyroid test...so ask for a more thorough screening. I'm going to try the oral nurse toothpaste...the charcoal works...but is rather a nasty mess...and I miss the freshness of toothpaste. Take care.

Thanks renee it seems older women after the menopause suffer with lichens it is a miserable disease but I think it's linked to hpv virus which causes cell changes xx

Hi Karen like you I was scared every time they looked in my mouth with my tongue white and ulcers ,that it might be cancer iv had a piece of my tongue gut out and stitched cos a ulcer would not heal ,yes I have had it on private parts proffeser told me to put small amount of dermovate on it cleared up ,I got cancer 5yrs ago but it was colon cancer remover part of my bowle  and had chemo ,,,the professor thought mine had been brought on with anti inflamertry drugs what I had for pain ,,I find if I get stressed it flares up like I said to Gillian it's a terrible thing but you have to learn to live with it ,it 1st started on my tongue little white patch then went worse ,then I was panicking thought it was something bad ,with the worry of that it came all over my body could not put a pin between the spots that were itchy drove me mad in fact they took pictures of me because they had never seen it that bad ,but it went after a few months leaving scars all over my body that turned into light brown marks ,but as the years go by it's fading ,and I really understand the fear you go through with it ,bin there x

Thank you Elaine for chatting with me I am just the same spots everywhere with itching I keep thinking its cancer and the burning with spicy foods , I feel like I can't get on with life because of this I am on my own with 18 year old daughter and I am trying not to let her see how worried I am, did you have problems with smear tests in the past caused by a virus hpv only I did I also am on antidepressants, do you have hair loss in your private parts with this ? Xxx

I hope this will be reassuring that my doctors have told me that it is extremely rare for this to turn into cancer.  I feel pretty confident about this as I take very good care of my health with plenty of healthy foods and supplements. Am also starting a yoga class...yoga calms your body...see if there is something offered close to you or get a dvd and do it at home.  Hugs to my fellow sufferers.

Hi renee and karon my doctor told me the same ,it's rare that it turns into cancer ,but it still unnerve you when it's so sore and every thing you eat with a bit of spice in it burns like mad ,chin up lady's we are not on our own 

Have any of you ever had problems with cervical smears xx

No karon ,I had a hysterectomy when I was 45yr x

Thanks Elaine hope your okay please keep in touch it helps keep me sane Xx

Will do karon ,,any time I can help will do ,,I was so frightened when I first got it ,went on the Webb looking for things about it ,dr told me not to look on there if there was a problem to ask him ,don't go reading things that scare you .take care ,x

I have been doing a ton of research and have found some interesting information. I have the crazy itching it's been driving me insane...so have been looking for solutions. Here are a few things that I found.

Use a solution of organic castor oil (4tbsp mixed with 2 drops lavender oil and 1 drop lemongrass oil) (Do not use essential oils straight...you must use a carrier oil like castor oil) This gives instant relief of itching and burning.  Tears heal and skin will regain it's healthy pink color again. Castor oil is very thick and odorless so it stays on the skin well throughout the day.

Here's another recipe I found for a itch relief spray:     Itch-Be-Gone Recipe

Fill a 2 ounce spray bottle to the shoulder with witch hazel.

Add the following essential oils (not fragrance oils!):

5 drops Lavender

2 drops Frankincense

3 drops Tea Tree

Label your bottle, shake it up, and use – that’s it!

Why these ingredients

Witch hazel makes for an awesome base since it’s naturally astringent and soothing.

Lavender – Lavandula angustifola, not Spike Lavender which is Lavendula latifolia, or Lavandin – due to it’s analgesic (pain-relieving), anti-inflammatory, cicatrisant (cell-regenerative and scar-healing), anti-infectious, wound-healing, and skin-healing properties.

Frankincense – also analgesic (pain-relieving), anti-inflammatory, cicatrisant (cell-regenerative and scar-healing), and skin-healing properties.Tea Tree – anti-inflammatory, antibacterial, antifungal, antiviral, and anti-infectious.

Also have read that many are seeing incredible results with diluting apple cider vinegar with water as a spray...and also drinking it.  I'm starting with 2 tablespoons once a day in some non-citrus juice as I've not researched yet what the recommended dosage is...but will get back here with any new found information.