The Urolift procedure; patient views and questions
Posted , 264 users are following.
Would it be possible to keep this thread purely about Urolift and a means of sharing experiences from those who have undergone the process and invite debate from those considering it.
The Urolift process plus pros and cons are accurately described at many a website. Other very long threads discuss in detail BPH and other treatments such as TURPS, laser tend to overshadow people looking for advice on Urolift.
So for me, tired of getting up in the night. Tired of the medication and its side effects, tiredness and ED. Quality of life getting me down. I am 60 and reckon to be pretty fit and active.
I underwent this treatment (as an alternative to TURPS) 2 weeks ago at one of the 5 or 6 clinics/hospitals that appear to offer this treatment in the UK. It really was as simple as described on the web.
I had a 30 minute consultation with the consultant whereby he explained the procedure.
The treatment was booked for 10 am., it took about 15 minutes. I had it done under a local anaesthetic. To be frank if you are used to having your prostate and other bits probed there is no pain. It is just the thought of it you have to come to terms with. After the treatment you have to drink a lot of water to flush your system but I was allowed to drive home by dinner time.
First warning here. I did have to stop probably every 15 minutes with a sudden need to urinate. Fortunately I took a urine bottle from the clinic !
I could write for ages but will see what response I get to this post. I know on the day I was there, 4 other blokes were having the procedure and I sensed there was a regular flow of patients.
I’m now going through the period whereby I’m asking myself is there any improvement? It’s only 2 weeks in. I’m not sure is the answer at the moment. We are all different and recovery and improvement I am told does take time anything from 2/3 weeks to 2/3 months maybe longer. Your system needs time to readjust, I understand that, I don’t know how much time but I’m due for a follow up next week. I'm remaining positive.Would welcome comments from others.
18 likes, 1911 replies
RonTexan charles40613
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My advice to anyone offered the first prescription for Flomax or any of the other meds is to find a Holep surgeon and take care of the problem once and for all. I may be a bit premature as I had the procedure just five days a go but so far it has been excellent. I wish i had done it at least five years ago. Good luck!
gene61250 RonTexan
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Thanks
michael72708 gene61250
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gene61250 michael72708
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I had 2 bands. The bands ate up the enucleater (spelling) this is the device used to remove the prostrate. Doc said he had to change the device 4 times to get it all cut up and out. My prostrate had grown around the bands. He Holep was successful, but he said the area where the bands were thinner and would take a little longer to heal. I just had the Helop on Tuesday and have a catheter in. After 3 days the fluid is getting clearer, just a light pink now. I get the catheter out on Monday. Not sure where you live, but Mayo folks were very attentive. Everything was explained. The surgery is about an hour (to cut up the prostrate) and then about 20 minutes to remove it. I feel good. My sleep (even with the catheter) has been great. Hope this is helpful. Just let me know if you would like any other info. Gene
michael72708 gene61250
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vacationterry RonTexan
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Thanks, Terry
gene61250 michael72708
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I go in this afternoon to have the catheter removed. I will ask the dr again about the Urolift and what problems it may have caused.
michael72708 gene61250
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gene61250 michael72708
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Beachboy1 RonTexan
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kenneth1955 Beachboy1
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jjjj57989 kenneth1955
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kenneth1955 jjjj57989
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Rayluca10 gene61250
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Hey Ron how bad was the holep I'm terrified should I try urolift first?
kenneth1955 Rayluca10
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bob75564 Rayluca10
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frank74205 kenneth1955
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Hi Ken, I/m almost 87 years old with urine retention. Do you know of anyone at this age that had a Uro Lift ? I want to relate this info.Today i talked with Dr Sterling nurse about "THE FOCUSED LASER ABLATION" for BPH. It turns out the they will not accept insurance,medicare does not pay for this .This is done in Florida,and New York. It"s around $22,0000.
kenneth1955 frank74205
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frank74205 kenneth1955
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kenneth1955 frank74205
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Hey Frank. I live in Orlando Fl...I have not heard from him yet but it's early I will let you know Ken
kenneth1955 frank74205
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Good evening Frank Sorry I'm so late getting you a reply but was out with some friends. Here is the reply I got from my Urologist. It would depend on your median lobe. But you did not say anything about that. This is what he said. Honestly I've had very good success in men that have had a mild median lobe in the past. And would pursue it at your age..Have a good day hope this helps. Ken
frank74205 kenneth1955
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HI KEN, Thank you so much for this information. I have an appoint on Oct 4 with a urologist that does uro- lift. He's 39 years old ,been inpractice 7 years,i hope he has enough experience to do this.Do you know what kind of test they do, to know about the median lobe?
Thank you so much.
kenneth1955 frank74205
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That's great. My urologist is about 45 if that had him for 2 years I think the younger guys treat the older guys better. Your prostate cums in lobes. Sometime the median lobe get to big and gets stuck in the bladder. You did not mantion that I just think your whole prostate is a little big. My doctor said your a good candiate for a uro-lift He may just do another scope so he can see it himself. You just need it pulled apart. Good luck and let me know what happen..Ken
frank74205 kenneth1955
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james87669 RonTexan
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paul96555 Rayluca10
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I had it, in for one night, got some sleep with the stupid catheter in and the machine massaging my legs against DVT (half way thro' they switched it off at my request), next day removal of catheter was a painful part (few seconds), some pee pain (but no bleeding) for 2 weeks but nothing too awful, no incontinence, third week = pee pain all gone but 1 week with blood in pee (you get this with urolift too I believe for a day or two only), within that 3 week was one day of clot-passing (right at end of week 3 then stopped abruptly), then improved flow rate, frequency issue depleting day by day, no ED, first ejaculation at 7 weeks was insensate (no feeling) but by week 14 all sensations back to normal or suitably close (improvement was progressive), PSA measured 0.7, repeat test 0.66 at week 20 (not by uro, just a freebie with my bi-annual company medical as I am now 50), and I didn’t get the 2% stricture risk (that also exists with all other procedures, including REZUM and, to a smaller degree, Urolift). Well, textbook says stricture risk lasts a year, uro said after HOLEP it will generally manifest in first 2 months, if not got it then (my flow rate week 9 or so was 36 ml/second), then you’re safe. I chose holep to avoid meds (never took any) and because I felt urolift was just a stop-gap with drawbacks as per post higher up in this thread. I am someone who likes long-term fixes !
frank74205 RonTexan
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thanks
frank74205
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HI KEN, Do you know if the uro lift will work if you have urine retention?
Thats what i have, almost 6 months . I'm still taking Avodart and flomax?
thanks
frank74205 gene61250
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Hope yor doing well. Thanks for this info
frank74205 RonTexan
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thanks for all this info, also what was the name of the doctor?
kenneth1955 frank74205
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frank74205 kenneth1955
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thanks
frank,
kenneth1955 frank74205
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james87669 gene61250
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Better clarify as enucleation does not remove the prostate. It is the process of removing tissue that has been destroyed by the laser. The "shell" of the prostate remains.
Evdilos frank74205
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Tony (Evdilos)
frank74205 Evdilos
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Hi,Evdilos, Did you have complete urine retention?Cannot pee at all?
I have this and my uroologist says Uro Lift
frank,won't work for me? It would help me to know if you had my problem before you had uro lift?
Thanks very much my friend!!
frank,
Evdilos frank74205
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Before the Uro-lift I had frequent urination problems and poor evacuation. Got up 4 or 5 tims despite taking Tamsulosin. I did not have total urintde retention except for a few days after the procedure as a result of blood clottkng. I had to rush to emergency 4 times
At this point I urinate about every hour and a half and even more if I have had a couple of beverages.
I am flying to Florida next week. I will be wearing special underwear just in case the toilet on the plane is not available when I need it.
Tony
eric29213 Evdilos
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Can anyone tell me once the discomfort goes and your back to normal are you aware or feel you've got staples down below
kenneth1955 eric29213
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bob75564 eric29213
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Eric. Hi. I had 5 "staples" put in Feb. 2016. I have never felt anything that indicated there were fasteners installed. Bob
eric29213 bob75564
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kenneth1955 eric29213
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mcgillvn eric29213
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I've noticed a sensation of increased pressure before defecating, and I interpret that as possible pressure from the rectum on the prostate and staples. I wouldn't call it pain, and I've only noticed it a couple of times. Urine flow showed immediate improvement after the procedure, far better. It's apparently slowing now, but still better than it was, and not interfering with normal life. Best wishes.
bob75564 eric29213
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kenneth1955 eric29213
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Eric. I had a catheter for 3 days. It is up to you and the doctor if one is used. I have a problem peeing on demand so he felt it was right for me. Also I would reather have one put in while am out they one put in when i'm awake. The prostate get swollen so it gives the urethra time to heal. Take care Ken
Evdilos eric29213
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Eric,
? I can't feel any staples but I do wonder if the staples were properly inserted. Is it possible that the prostate has slipped away from the staples and is again blocking off much of the passage through which the urine flows. I do not have total retention by any means but very frequent urination.
? The uro-lift was not a success. I am about where I was before the procedure.
kenneth1955 Evdilos
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jonmichael kenneth1955
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kenneth1955 jonmichael
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Thank you for the kind words If I can help in any way please contact me. If I don't know the answer I will look it up for you or someone else doe's Take care Ken
alan1951 jjjj57989
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No disrespect, jjjj57989, but you need to lighten up. If kenneth1955 is repeating himself, that's actually a GOOD thing. His posts have the potential to save a lot of guys from making bad decisions. Just sayin'
brianric kenneth1955
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Has anyone who was on tamsulosin (Flomax) prior to having the UroLift procedure have problems going off on tamsulosin after having the UroLift procedure performed? I had UroLift procedure done on July 11. It took roughly nine days to have total bladder control. Life was good, waking up at most two times a night to urinate. Saw the urologist on August 15 and he told me to stop taking tamsulosin, then in two weeks stop taking Myrbetriq. Since then I'm getting up four to five times a night. The urologist said I may have to go back on tamsulosin. I have no problem maintaining a steady stream when urinating, but I'm going too frequent and I'm wondering if the problem could be an overactive bladder. Should I stay the course for a couple weeks and stay off on tamsulosin for a couple more weeks in hopes the bladder calms down.
kenneth1955 brianric
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kenneth1955 brianric
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kenneth1955 brianric
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Evdilos kenneth1955
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Tony
mark02906 Evdilos
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My Urolift was the second procedure I had done on my prostate (TUNA first 10 years ago). Since the TUNA, my nocturia increased back to a 2-5 times a night. First my urologist tried tamsulosin. I reacted badly to it. It zapped my energy. I couldn't do recreational running or light weights. Perhaps its the combination with blood pressure medicine (which I reduced the dosage). Finally, the doc and I agreed to the Urolift (Feb 2017) and stop the tamsulosin. I am averaging 0-1 time a night. My energy level is better and I am slowly getting my conditioning back. I have some minor bladder control issues, but they seem to be getting a little better. Tamsulosin works for some people. I was not one.
brianric kenneth1955
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I'm still on the Myrbetriq, not suppose to go off on that for another two weeks. Hard to tell if there is starting to be some improvement being off of Tamsulosin, as it is only been six days since going off on it. I'll give it another eight days to see if my frequent urine problems improve before deciding to go back on Tamsuloin. As soon as my frequency to urinate decreases I will then try and go off on Mybetriq. To be thruthful, it is no big deal deal to me if I have to stay on either one of the meds or both. I have no regrets getting UroLift done. Nine days after getting UroLift done but before going off on Tamsuloin I went from getting up six to eight or more times a night to urinate to one to two times at most. Count me in as being very pleased at having UroLift done. Now that I'm off of Finasteride I'll be able to go back donating blood and platelets in another 22 days. I've donated 167 pints in my lifetime and I really want to go back being a platelet donor.
kenneth1955 Evdilos
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kenneth1955 brianric
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Brian you have to watch the Myrbetriq. I through that I was going to much so my urologist told me to try it. I was only going once a day and had no feel to go the rest of the day. I'm doing great now It was just some form of prostatitis. I will deal with it. Other then that it's 2 1/2 years for me. I would not have any other procedure. Glad your off the finasteride. I use to give plasma years ago when my kids were little. Take care Ken
brianric
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One thing that's compounding my problem with frequent urinating is that I have Parkinson's. I'm still in the early stages of Parkinson's and it hasn't affected my photography hobby.
kenneth1955 brianric
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Brian have they giving you something to slow down the Parkinson's. If they have check the side effect for that pill. I wish you will and enjoy all you can Ken
brianric kenneth1955
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I'm on the generic version of Sinemet. There are a lot of side effects, but without taking Sinemet I wouldn't be able to walk or stand because I'd lose my sense of balance. My neurologist figures it will be 10 to 15 years before I will need more dramatic steps. I'm 67. I did tell my primary care back in December that one of the side effects of Sinemet was hallucinations, then I said that I'm suffering hallucinations, someone told me Trump was President. Primary care noted "patient has not lost his sense of humor". :-)
brianric kenneth1955
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Went back on Tamsulosin this morning. I'm just starting off at one pill a day, 0.4 mg, and see if I can get by with that dose. If necessary I'll go to two pills a day, 0.8 mg, my old dose. Hard to explain, but I felt like my urethra was irritated. The frequent urinating at night time was driving me up a wall, especially when I wasn't urinating that much volume wise. I'll wait until my bladder calms down and see if I can wean myself off of Myrbetriq. I'll give a call to talk to my urologist nurse to schedule a follow up appointment in six months per my urologist instructions.
kenneth1955 brianric
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steve52719 bob75564
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kenneth1955 steve52719
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bob75564 steve52719
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Steve, that's good news. I'm at two years with no diminishing of benefits and I know Ken, on the forum, is at three years. I asked my urologist, this past Monday, about long-term success with urolift and he said the initial study showed 85% success rate to five years. Good luck. Bob
steve52719 bob75564
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This forum has been great to read and share about others experience with
Urolift. Steve.
den-48442 kenneth1955
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Not sure how to get a post into this forum, but I'll see if this works.
Hi,
I had Uro-Lift surgery just over a year ago (12-2217) & man do I regret that decision. It has completely ruined my sex life and rendered erections impossible.
Sure, I can p**s now, though not as well as expected, but before surgery I had to self-cath just to have relief.
I was told & assured that the Uro-Lift procedure would not affect sexual function. BULLS**T!
In addition, after doing a lot of self research prior to surgery, I was told that I would be able to come off the meds (Rapaflo & Jalyn) post surgery. My urologist took me off the Rapaflo 2 months post surgery at my insistence, but still has me on Jalyn. I'm deflated & feel useless.
I go in to see my Urologist tomorrow morning (1-8-18) for my one year post surgery check-up. It will be the first time I've seen the Urologist since March 2017.
Needless to say, I have a lot to get off my chest when I see him tomorrow, and though it won't change anything, hopefully I'll feel better.
Moral here, truly think long & hard before believing the hype about Uro-Lift! I'm 53 and unable to perform sexually. The toll it has taken on my marriage is significant. Sorry to vent so much, but I'm so regretful of my decision. Anyone else having this issue after Uro-Lift surgery?
Thanks,
Den
bruce74642 den-48442
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Den, I was on Jayln for a few years, and it rendered me impotent. I had the Urolift in May '17 and got off the Jayln. I can donate blood again, I don't have the urgency to pee anymore, but I still only get half an erection; nothing like before. I can masturbate and ejaculate, but sex hasn't been an option. If you find a solution, please let me know!
den-48442 bruce74642
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kenneth1955 den-48442
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george18730 den-48442
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Hello Den:
Jalyn side effects according to Drugs.com and most other drug reference websites:
More common
-Change or problem with discharge of semen
-decreased interest in sexual intercourse
-dizziness
-enlarged and painful breasts
-inability to have or keep an erection
-loss in sexual ability, desire, drive, or performance
Unless your Urologist is keeping you on Jayln for some other reason, I would get off of it before I blamed the Urolift for my sexual issues. If your sexual problems improve (or not) after stopping Jayln, report back and let everyone know.
George
den-48442 george18730
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Thanks George,
I guess it is somewhat unfair to blame Uro-Lift, so I apologize for that. All I can say is that before the surgery, all sexual function was fine. I've been on Jalyn since 2010, as well as Rapaflo. Sexual function wasn't an issue. I've been off Rapaflo for 10 months now & today my doctor said i can discontinue the Jalyn. He kept me on it to keep my prostrate from continuing to enlarge.
Thanks agin for the advice, it is appreciated.
Den
den-48442
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I will keep the forum updated as to any changes now that I am off all the meds. Things hopefully will improve over the course of the next few weeks. I am hopeful that the meds were the culprit, but we are all different.
As I've been reading through this forum, I realize that I am not the only one who has concerns as to the long term post surgery.
I appreciatye all the encouragement and advice.
nealpros den-48442
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Neal
chris73717 nealpros
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Hi Neal.....I'm seeing another urologist at the end of February as I'm far from happy with the Urolift done locally a few months ago......I'm still waiting for him to give me info on how many clips he used and should I still be on Tamsulosin.....He wanted to do a bladder neck incision which I refused as I could kiss any kind of a sex life goodbye I'm informed. So now I have to self catheterise in order to get a few hours sleep!....I can get some sort of erection but it fades away quite quickly with limited penetration, so I was interested in what are these 3 part penile implants you mention?.....Any info gratefully received.
Regards, Chris.
kenneth1955 chris73717
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nealpros chris73717
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Hi Chris,
I know this sounds crazy, but remember that this really works. In your penis are two long "balloons", one on each side. When you have a normal erection, they actually fill up with blood, then a valve closes and keeps the blood in there, and keeps your penis erect. As you might expect, this is a complex process, and a lot can go wrong. Your nerves might not be sending the right messages, for example, if you have diabetes. Your valves may leak, etc. The cause, it turns out, is not important, because the implant works anyway.
When you get an implant, they place specialized plastic balloons inside the balloons already in your penis. They also place a pump, about the size of a testicle inside your scrotum, and place a reservoir inside your abdomen. All of those things are connected by tiny hoses, and the reservoir is filled with sterile saline solution.
When you want to have an erection, you pump the pump which pumps saline from the reservoir into the balloons, and blows them up, giving you a strong erection. When you want the erection to go away, you press a button on the pump, which opens a valve, and squeeze your penis with your other hand to squeeze the saline from your penis back to the reservoir.
Dr. Eid in New York City did my implant. Look him up on the web.
There are also videos of the actual surgery there. Don't let it scare you. You sleep through the surgery. Dr Eid, who did my surgery is in a couple of them. He is absolutely great.
It is best viewed on a computer, not a phone.
And yes, with one of these implants, you have normal orgasms, and the sensations are the same! Outside of marrying my wife, that surgery is the best thing I ever did for myself. It solved a problem I had for most of 50 years. If you have problems with finding him, send me a private IM. Click on the envelope near my name at the top of this message, and ask additional questions here.
Neal
nealpros chris73717
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I wrote you a long answer, but it is being moderated by people whose job it is to facilitate the discussion.
Neal
chris73717 nealpros
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Hi Neal,
Thank you for that superb description of the erection system you describe.....I guess it was quite expensive and as I live in the UK maybe difficult to get here.Thanks again and I will now try to find Dr Eid's site.
Kind regards....Chris.
andyacko michael72708
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Hi Michael, l have also had 8 clips and had some greenlight laser on bladder one month now seems ok although a bit of sensivity and some slight discomfort with urgency and peeing. My prostate was 80g urologist said it was 2.5 times larger than normal. my reading suggests that should not be done over 60g. Hopping it will work out medications are so bad for your health
andyacko kenneth1955
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Hi Ken did you experience any sensitivity after urolift? At what point did you stop drinking lots of water?
kenneth1955 andyacko
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Andy remember you had 2 procedure. You will not know which one is causing the sensitivity. That is the problem with another procedure being added to the Urolift. Because they can both cause that problem. You can limit your water but I drink at least 4 bottle a day and juice Ken
chuck68670 RonTexan
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Ron,
How are you doing with your Holep treatment; 4 years in ? -
Would you do it again, or would you try a different procedure ? -
Respectfully,
Chuck
andyacko RonTexan
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Hi Ron, l had the urolift 8 clips 10 months ago and although better than l was still think l will need further treatment due to frequency 3 times at night and not fully empty. Bonus no meds!