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Thinning hair

Posted , 11 users are following.

kaz_40
kaz_40

Hi ladie are any of you having problems with your hair. Ive noticed mine has gone alot thinner, and Im loosing quite a bit of hair. just wondered if any of you were having the same problemsad

1 like, 37 replies

37 Replies

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  • pam_87693
    pam_87693 kaz_40

    Posted

    Yes there are many reasons some AI diseases an endocrine one plus some medicine can course this I would discuss with your GP!
  • lisa52101
    lisa52101 kaz_40

    Posted

    Hi Kaz, I have had two bouts of alopecia in the past 3yrs. Both before my diagnosis but during the time my symptoms had taken a hold. Both times left me with general thinning but also40-50% of complete loss around the back and right side of my head. Both occasions took around 6 -8 months to grow back and when it did it was as thick and healthy as before.

    The first time devastated me, I would wake up with it all over my pillow and in my mouth. It would clog up the shower drain and hairbrush. I also resorted to shaving my head the first time because I looked ridiculous with halve my hair long and the other halve completely bald. 

    Heres the thing though, I very, very quickly realised the more I worried and stressed out about it, the more my hair fell out. I know it's easy to say but stressing certainly wasn't making it grow back. In fact it really was making it worse. Instead of all the negative things about it, (and there sure was a few), I made a list of the benefits.

    1. I saved a fortune on shampoos etc 

    2. I didn't need 4wkly visits to the hairdresser

    3. I took the opportunity to try different hairstyles by wearing wigs

    4. No more getting up early to wash and blow dry my hair in the mornings 

    5. An extra half hr in bed

    6. No more bad hair days, just grab a wig ang go

    Simply put, there is nothing you can do about it really. Make sure it's not your meds or that nothing shows up in bloods to explain it. The more you stress about it, the worse it tends to be. Lastly for hair that is thinning all over thickening products can help to disguise it and a change in the way you wear it could also help the way it looks. Speak to a good hairdresser who could suggest a new style that maybe you hadn't thought of but could give the illusion of thicker, fuller hair.

    Good luck with it and remember it almost always grows back xx

    • kaz_40
      kaz_40 lisa52101

      Posted

      Hi lisa thank you for the info, Im not on meds as cant take them as had extreme side affects. so I thought it must be down to the fibro. I am seeing my hairdresser soon so will have a chat to her Im glad Im not alone in this it seems quite common. as you say stressing worrying wount help will see how things go it just came as quite a shock as my hair has always been quite thick. I was shocked by the differance in how it had gone quite thin and the ammount it was falling out. hopefully it will start to grow back gentle hugs take care 
    • lisa52101
      lisa52101 kaz_40

      Posted

      Hi Kaz, your right it is quite shocking and that's an understatement 😱 I have really thick dark hair. Everyone would comment on my hair and I took great care of it. If I was ever asked what I thought my best feature was, I always said my hair. I now keep my hair quite short and that way I if it does start to fall out again it's easier for me to accommodate. 

      Good luck at your hairdresser and I'm glad I could help a little.

    • kaz_40
      kaz_40 lisa52101

      Posted

      my hair has always been my shinning glory as I call it, Im going to go for a shorter style and see if that helps, my hair was always shiney and very thick its upsetting how its now gone.But will my hairdresser for advice. Thank you lisa for sharing smile take care gentle hugs
  • bronwyn97278
    bronwyn97278 kaz_40

    Posted

    Hi All; I have been reading all inputs, and wondering if any of you have had your Thyroid functions tested, especially the T3T4 uptakes, as suggested by another lady who has been on this and the ME sites.....although the results may come back "withing normal range", I agree that our Thyroid has alot to do with our bodies in these conditions........even if you research Thyroidites/Hashimotos Disease, one of the Main symptoms, is Loss of Hair.......don't know if this is a causitive factor, or a symtom of Fibro....but would be interested if a few more of us trialed Thyroxin, and find if we improve...I have started on Thyroxin  (been on it for 3 weeks @100mcgs)....and am awaiting to see how I go???            Bron
    • kaz_40
      kaz_40 bronwyn97278

      Posted

      Hi bronwyn I have hashimotos Im on a thyroid tablet have been for a few years now. I take 100micro grammes. Im due a thyroid blood test so will see what that comes back like.have you noticed a differance yet since taking yours on saying that you may not notice a differance for a few weeks yet, as I didnt. take care gentle hugs
  • loxie
    loxie kaz_40

    Posted

    Hi Kaz, I zoned straight in on your comment about hair loss! Mine started a few years back and initially was thought to be a nasty side effect of citalopram.  I stopped taking it and the hair loss eased off.  But over the past 2 or 3  years it is much much thinner and every now and then it starts shedding again.  My forehead hair line is really receded now and my hair was always very very thick and  healthy.  the front and crown area are now very 'see through'.  Various doctors have shaken their heads, the same old same old, 'its your age' yada yada.  Its NOT my age, I didnt lose my hair through or after menopause and I have friends older than me with fine heads of hair.  I am now more determined than ever to beat this vile fibro!!!
    • kaz_40
      kaz_40 loxie

      Posted

      Hi loxie Ive always had very thick hair, and it came as quite a shock to find it was going thinner and that I was loosing quite a bit. I found it quite upsetting as my  hair has always been healthy and very thick. I just hope prey it soon starts growing back. Im sick of this fibro Ive really had enough of it. surely something can be done for us all its just knowing what and how it can be beaten. rolleyes take care hun gentle hugs we are all in this togeather. I think that should be our mantra for this forum what do you think.
  • julia54537
    julia54537 kaz_40

    Posted

    Hi Kaz yes have managed to get in with GP Friday at 17 20 so plan to make a list of all I need sorting. Have a full on week from now starting tomorrow with hospital visit to orthopaedic OT for new splint for hand wrist then a week tomorrow have CAB home visit to help me progress PIP forms etc to try again following failure in past with DLA so tired unable to sleep can't get at all comfy no matter which side I lie on and have terrible dry mouth all the time struggling still to eat swallow even he supplements I take and in terrible pain with my stomach and the scar from my caesarean and seem to be itching again all over and even though weather sunny I still feel the cold terrible I have had enough of this dreadful illness and unsure how much longer will keep my job even hurts my hands to hold the steering wheel and long sitting driving for a job getting agony again for me.  Also getting lots of headaches so back to knowing what to do for best no matter what I do I am in agony and the continual pushing through daily is taking its toll also been getting chest tightening so and having to resort yo inhalers also hay fever bad too sneezing both night and day.  Will leave this with you whole body transplant in big need.  Take care.  Julia
    • kaz_40
      kaz_40 julia54537

      Posted

      Hi Julia so glad youve managed to get in with your gp, I write everything down when I go to see my gp. go through your list to make sure youve wrote down everything you want to say. I tried to DLA and failed twice, mygp persuaded me to try for pip she wrote me a report backing me, and my rheumatologist wrote a report, get photo copies of all hospital appointments and OT  appointments get as much evidance as you can to support your claim its all about how the condition affects you eg mobility dressing yourself can you prepare a meal its based on a point system eg 8 points if you need help dressing 8 points help with showering. then theirs a face to face assesment  the assessor goes through the form asks you questions based on whats on the form. she or he then writes a report which goes to the dwp they decide if you get it or not the whole process with me took 6 months. I got awarded pip but didnt think I would. you need to find something to rub on you to help with the itching.I can relate you feeling the cold, Im boiling hot 1 miniute ice cold the next. My fire is on off on off sill cant be helped.the trouble with our illness it affects our entire body. from tinnitus to chest pains numbness constant pain every where blured vision trouble swollowing fibro fog. the list is endless.Their are alot of us that have had to give up work because of fibro its not easy to work with this condition. their may come a point where you just cant do your job no longer.Their is also ESA you could try claiming. Has your dr said about refering you to a pain clinic and also CBT cognitive therapy. Get as much help support as you can and see what your gp can do for you also to make life more bearable. wish I could wave a magic wand over us all. I hate fibr with a passion and wouldnt wish it on my worst enemy. I wish we could all have a new body. hope all goes well at the drs and OT and with CAB let me know how it goes and how you go on take care gentle hugs remember your not a lone Here for you x
    • bronwyn97278
      bronwyn97278 julia54537

      Posted

      Hi Julia;  when I read your reply to Kaz, my heart went out to you...you sound soooo desperate.   I don't remember reading re you/your Fibro before (but that could be because of the Fibro Fog, as we All call it, so please don't take offence?   I know there seems to be so many Fibro pts who are not sleeping, and this I can't relate to, as I decided many years ago, that This Is essential, so take my Amitrytilline (25mgs) nightly, to help with the pain and sleep.....do, you have Regular Physio/massages for the Muscle Stiffness....especially neck (this I do to stop the headaches and also use Sport Strapping Tape to Support these muscles)......if you make an appt to see a Good physio (and I found that the Older physios understand and are More sympathetic)..get them to give our body a good going over, and get them to Teach you how to apply the Strapping (also get them to use a Surgical Porous Self adhesive Surgical Dressing under the Sport's tape, to stop the irritation of the Tape....it lasts longer, with no Reation to the tape).....another medication that I know I can't do without is my Gabapentin, this is also another Nerve Blocker...if you take them in the late afternoon, you may get that Much needed sleep, and if starting out on same, a low dose should get you through your days....if you are able to get your Benefits, then stagger meds throughout the day.  Another important question, do/have you been seen by a Rhuematologist....these Specialists are usually more "in tune" with Fibro and will guide your GP with correct meds....some will offfer Lyrica/Cymbalta....Lyrica works for some who have not had any other medications, but I found Cymbalta to Aggravate Depression (which I don't feel I suffer from anymore), but found the Cymbalta had me Crying all day, for No reason....but as others have found, different meds suit different people..........I am really following you, now, as I feel you need a Long way to go....so stay on the forum, and all on here will be your support.................confusedBron
    • kaz_40
      kaz_40 julia54537

      Posted

      Hi Julia youve got a full on week bless you, hope all goes well with the gp friday. go through your list to make sure you havnt missed anything off that you want to say. I tried for DLA got turned down twice. My gp persuaded me to try for pip she supported me with a letter my husband helped me with the form.I was sucessful and got it so dont give up also try claiming ESA. Have you been refered to see a rheumatologist yet. it was a rhematologist that diagnosed my fibro.Then he told me to see my gp for pain meds.the gp can refer you to a pain clinic and also for cognative therapy. But its getting you help with the pain your in. which is trial error meds wise.people that have fibro struggle with working, as the condition is hard to cope with and the constant fatique. I couldnt carry on working because it was just too much I couldnt do my job no more. which was a carer Its a dreadful illness to have. get has much help support as you can. us ladies will support you as much as we can so dont ever thing that you are a lone. I find hot water hotbottles help me when Im in pain the tablet I can take is Ibuprophen. Just take a day at a time stress worry makes our condition worse. buts easier said than done to say dont worry. here for you take care gentle hugs keep us posted hope all goes well with your appointments smile . 
    • kaz_40
      kaz_40 julia54537

      Posted

      Hi Julia Hope your having a bit better day today and arnt in touch much pain, let me know how you get on at the drs. the pip for isnt hard to do. we took our time in filling in it and wrote down a piece of paper what we were going to put into each section, to make sure we worded it right. then wrote it on the pip form saved any mistakes on the form. it took 6 months from start to finish with pip. Hope you managed to get some sleep last night I didnt get any. I never use to suffer with hay fever but Ive started to suffer with it now. take care hun gentle hugsxsmile
    • kaz_40
      kaz_40 julia54537

      Posted

      Hi julia thinking of you today hun hope all goes well at the drs for you. when you see them later. how are doing? hope you get on ok when CAB come out next week to see you. I got muddled up and thought it was this week they were coming. dont worry or stress over the form we found it easy enough to do. hope you ot on ok at hospital when you went for your new splint. remeber your not a lone we are all here for you. take care gentle hugs hope you have a good weekendsmile
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