Tinnitus driving me to suicide

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I fell pregnant in Sept 2014 (unplanned).  I didn't want more kids as I had a bad experience after my son was born 9 years ago.  I had dizziness, feeling of sleeping and never waking up again, panic attacks etc.  I took a long time to recover.  So when I feel pregnant (after 9 years) my husband told my son he is going to be a big brother and he got so excited and I didnt have the heart to abort the pregnancy as I saw how happy he was.  I was scared to go through with it considering how it was when my son was born but decided to do it anyway for the sake of my son.  In November 2014 I had a feeling in my right ear that I was losing my hearing so I made an appointment with an ENT.  He did tests but never told me my hearing in my right ear was bad, he just kept quiet.  I was so stupid and didnt even ask him what the tests showed.  He just gave me drops to put in my ear.  I went home and put the drops one day and the next day I would put olive oil and kept this going for a week.  However I felt this blockage was getting worse but didnt think anything about it.  I had tinnitus in my right ear previous to this for about 2 years.  It wasnt something I even noticed because it only happened at work when I was stressed but other than that I never noticed it so I didnt worry too much.  At the end of Dec 2014 I woke up one morning with this terrible noise in my right ear which scared the sh*t out of me.  I was so scared you would not believe it.  I also had this fullness in my right ear as if someone stuffed cotton wool in it.  I thought it would go away but a week later it was still there only this time I had a noise in the centre of my head by my nose, a different static sound.  I was getting more scared by this time.  Then at the beginning of Jan 2015 I had a miscarriage.  The noise however still remained.  I then went for an MRI and CT scan at the end of January 2015, all clear.  I then did blood tests, all clear.  I then went for a CT Angiogram and was told there is a narrow blood vessel at the back of my head on the right side but that they are not sure if this is causing the noise.  I was advised to "just live with it" as they could not put a stent in as there is a huge risk of a stroke.  My doctor then called me in and said that it "could" be tinnitus and there is nothing they can do about it.  I have been depressed since that day.  Its almost 7 months now and I cry so often as I miss my "normal" life when I didn't have this freaking thing !!  I am so suicidal and I don't know what to do.  I almost jumped off the building today where I work but I keep thinking about my son.  If it wasn't for him I would be dead right now.  How do I cope and live with this forever.  What if I live until a 100 years old, OMG, how will I manage with it until I die.  I don't think I can do this.  I am so depressed and yes I saw a psychiatrist and a psychologist and 4 different ENT doctors, GP's, Audiologists etc etc.  I am so sick and tired of doctors, hospitals etc.  My life has been and is still hell for the last 7 months.  I cannot sleep like I used to.  I used to sleep "like dead". Now when I wake up at 3am I cannot get back to sleep like I used to.  To top it all off I moved to a new house in Sept 2014 and I am homesick for my old house as there I was healthy with no tinnitus and happy.  Now I am miserable in a home I hate.  PLEASE PLEASE anyone help me.  What must I do to cope ? 

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  • Posted

    What I have learned about this is that if its not effected by head movements or pressure along the neck then it is arterial. Arterial could be anything from an avf to anemia. My neuro told me that they don't like to do cut scans for pulsatile tinnitus because they show bone and too many important vessels can be blocked from view because of the bone. I understand not wanting to deal with more Drs and testing and completely understand using up resources on this. It's crazy all that needs looked into. Have they mentioned a fistula at all? Did the dr listen with a stethoscope behind and around your ear and eye ? That's the easiest test as if it's a fistula it's almost always picked up as a bruit if the dr listens there.

    ive been told that the only way to rule out pseudo tumor is by having a lumbar puncture but seeing an ophthalmologist, specifically a retina specialist, can tell you if there are clues pointing to increased fluid because an MRI won't always pick it up. 

    I do know stenting a vessel can cause complications such as a stroke which is why blood thinners are given for six ish weeks after and prior to stunting as well. Not all Drs will do a stent because of the potential risks and without knowing for sure if it will help is understandable.

    my testing only showed a dial aged mastoid emissary vein which is a known cause but like your dr, mine can not say for sure if this is why I have it or not. My symptoms are very odd.. I only hear it my muscles are strained of the right side of my neck so I most often hear it when my head is turned left. 

    Based on my symptoms it appears I have bow hunters syndrome but a mild case of it. Mine began while I was pregnant. About two years ago now.I first noticed it when I was straining my neck to try looking at my back left pant pocket.. The more I stressed about it, the more I would strain my neck to try figuring out what I was hearing, the more frequent it became. I believe it was the cause of a bad chiropractic adjustment. I don't do anything for mine aside from not turning my head left when it's quiet or for too long any other time. I feel I'm pretty lucky so far because I've talked to so many people who suffer way more than I do with this. It's scary and stressful enough as it is.. It worry so me so bad it robs me of my joy and I focus on it and bit in my kids. I can't imagine hearing it more and panicking more than I do already. I think antidepressants are a must with this but I'm not taking any yet.

    • Posted

      Hi sorry for replying so late to your last message.

      How are you doing now ?

      I am still struggling unfortunately.  I thought by now I would have gotten used to it but I seem to be more depressed about it than ever before.

      I have seen another psychiatrist who put me on anti-depressents and anxiety meds and I am taking it for over a week now.  I feel there will be no end to my suffering and the only time I will have relief is when I am dead.  It's also robbing me of my joy like you mentioned also.  You are lucky yours is not severe like most peoples are.  I wish the volume on mine when down at least by 70 % so that I can carry on with my life.  My life seems to have stopped and I am just existing now.  My husband does not understand what I am going through and in truth I don't really have any support.  No one seems to really care.  They are all just carrying on with their normal happy lives.

      I blame myself for this problem as I knew I had mild tinnitus as well as other health issues after my son was born 9 years ago and I fell pregnant (unplanned) which brought up this severe tinnitus when I was only 4 months.  I wish someone warned me that during pregnancy it could worsen and become permanent.  Never in a million years I thought something like this would happen to me !!

      My husband feels I will be wasting my time and money doing more tests and the end result will be the same - I have tinnitus and there is nothing that can be done and I must just learn to live with it.   Sad but true.

      How many kids do you have and what are their ages.  What does your family say about your T. 

       

  • Posted

    Hi Shabina I'm a fellow T "sufferer" (quoted because I don't suffer anymore).

    I have Tinnitus since highschool, and was not much of a problem for me.

    3 years my T increased because of an acoustic trauma. I thought my life was over. For 1 year, i was so depressed, and my anxiety was so high. I was 29 years old then, and father of one lovely boy (i have 2 boys now), so I decided to fight back.

    Now, i still have Tinnitus, is loud enought to hear it over the T.V., but most of the time I'm not aware of it, and when I do, it does not bother me.

    The real problema for most of us, is anxiety and depression. Once we can handle this, things will start to improve.

    You have 7 months suffering, and is "completely normal" to feel so anxious and depressed, but as soon as you start to reduce your anxiety and depression, your T will go to the background.

    Tinnitus is not a problem for me anymore, I work as good as before T increased, hang out with my family, and I sleep like a stone without meds.

    Please keep fighting, I assure you things will get better sooner than later.

    Hugs.

    • Posted

      Hi John, I am so glad you wrote to me as I am still so depressed and wanted to write a new discussion about it in this forum. 

      I am at my wits end with this problem and I feel as if my life is over.  I feel like death would be better than living this life that I am living now.  I am not how I used to be.  I am so withdrawn, depressed, lonely and I don't smile anymore.  People have noticed this about me and even asked me if there is something wrong.  How do I tell people how I feel.  They don't have T and will never know what it's like.  I feel like everyone around me is carrying on with their happy lives while I am just sitting and watching and not living anymore but just existing.  How does a person overcome such an awful thing.  It's 10 months now that I am suffering.  My T sounds like an engine running 24/7 in my head and my hearing in my right ear has worsened. 

      I have tried all the vitamins people say may help like zinc, gingo, magnessium etc. but nothing seems to work.  I am on anti-depressents and anxiety meds at the moment as I am still suicidal.  I know people say "you will get used to it" but I don't see that happening for me.  I just want my "old normal life back" before T.   I know it is impossible.  I am having such a hard time accepting that this is how my life will be until the day I die.

      I have one son only and he is 9 years.  This year has been hell for me and I have become so depressed, moody and withdrawn that I feel as if my son is not so close to me anymore like he used to be.  He is now so attached to his dad that I feel not needed and left out.  I know I am to blame cos of the way I have been recently but what must I do to overcome this as I am struggling. 

      I also sleep without meds but once I wake up it's hard to fall asleep again.  You said yours is loud that you hear it over the TV - I want to know how you don't let it bother you anymore as the noise is constantly there and there is no escaping it.   What does yours sound like ? 

      Any advice would be appreciated.  Thanks for replying. 

      Hugs

    • Posted

      Hi again Shabina,

      I feel you and understand you completely, I was exactly in the same situation you are now. So, the first thing is you have to know there is hope... ALOT of hope.

      My sound is a high frecuency piercing sound, like a dog whistle. This frecuency makes it so difficult to be masked by anything.

      My nightmare lasted for most of a year. I cried alot, every day, i thought my life was over, and it would be a complete nightmare the rest of my life (I was 29 years old then).

      With time, and the love I have for my son, and also to take care of my wife, had to start figuring out how to get out of the hole.

      Then I started to understand that, my worst problem was anxiety and depression. Triggered by questions like "why me?", "what if this gets louder?", "I'm not going to live a normal life again", running in my head over and over again. Watching people having fun, enjoying life, made me thought I was ruined.

      So how can you handle this?

      First, understand you are not alone, we are millions of people (and many more joining the Tinnitus club every day) that suffer it, and you are not alone. We feel your pain, and most of us developed the same symptoms: anxiety, depression, suicidal thoughts.

      Second, start to get out of your mind the "why me", those thoughts are hurting you so much (the also did for me). There are alot of people around the world with alot of illness from cancer, kidney failure, and alot of diseases that cause chronic pain, alot of them so young. Read a forum about people suffering from TMJ pain, trigeminal neuralgia pain, Lyme disease. Do a search on internet for celebrities that have illness like Multiple sclerosis. All this was an eye opener for me, things are not very nice for alot of people, including us.

      Third, start TO NOT PAY ATTENTION to your Tinnitus. It is really hard, I know, but it can be possible. Make several sessions every day. Start to hear your Tinnitus, but do not feel anything. If you start to feel anxious, start thinking in another think. If you start to feel depressed, switch your mind fast to another thoughts. Hear your Tinnitus, but don't let it make you feel nothing.

      Fourth, start living your life again. It will be hard. I remeber the first days, I was in the mall, at the restaurant, with my family, I was in complete hell. But you need to fake it until you make it. Go out with your son, get dinner, go to the park. It will ( I promise you ) gradually be better with time.

      Fifth, there is something about Tinnitus and you, something called HABITUATION. Have you entered sometime into a place with a very bad smell, but then you it does not bother you anymore? Or getting into a room with a loud fan, but suddenly you can't notice it anymore? Your sound can make the same with Tinnitus. But your brain won't habitute while you still take your Tinnitus as a menace, something bad, and painfull. Thats all the last points about, to stop thinking you are ruined, to stop feeling anything when Tinnitus is present.

      It's alot of information and hope I can share with you. Please get in touch. I promise you, I really promise you, that there is hope. I'm not the only one that has reached habituation. I know alot of people with Tinnitus (that i have met since i got it) and most of them have also habituated.

      Today, have some dinner with your son. Remember, fake it until you make it.

      We will be in touch,

      Regards. 

    • Posted

      By the way, I also have hearing loss in my left ear, and my Tinnitus is also higher in that ear. I have chronic dizziness and chronic pain, but the same methods that I use to handle Tinnitus, help me my other symptoms.
    • Posted

      Hi John

      Thanks for your advice.  I will do what you said and see how it goes.

      The only problem is that my T. is so loud especially at work with my computer hard driver on the whole day, it really affects my T. and makes it louder.  Unfortunately I work in an office on the computer the whole day. I have my radio on the whole day but that doesn't help much.

      Is there any vitamins or meds you take to help you with your T.  Do you mask your T. at night like most people with white noise etc.

      Did you go for TRT therapy to help you habituate or did you do so on your own ?  I really would like to get to the point where you are now with your T.  How did you get your T ?  You sound young and no one no matter what age should suffer with this ever !  It's really life-changing.

      Anyway you take care, chat soon.

    • Posted

      Hi shabina how are you doing today?

      I'm 32 years old, but my Tinnitus problems started when i was 29.

      I know how you may feel right now. It's like being there, but not being there at the same time. Everything moves around you, but it seems like you are watching a movie, you are not present. You see other people around playing and having fun, but you feel anxious, desperate, jealous of them, and you want to cry. You keep asking yourself "Why me?", and you keep saying "I won't be normal again. My life is over", "my sons/daughters won't have a mother/father again". I had all of those feelings, for more than a year. Please, believe me, you will get better, I promise.

      About your T increased by your PC. I also have reactive Tinnitus, that is, sound exacerbates my T. So I can't just mask it with hearphones, because my ears and Tinnitus start to get worse.

      When I was in my worst days, i was not able to sleep good. I used to wake up in the middle of the night with my sound very very loud, anxious and just wanted to run away. Now i don't use any masking sound to sleep, and I do sleep like a stone for 8 hours. And in the mornings, there is sometimes that I start my day without even noticing my T (and it's still loud as usual).

      I didn't go for TRT.

      I don't have a manual, about how I can handle my T, because it is more like a process of slowly getting better. So, let me write you something, like brain storming, so you can start to get better.

      1) Tinnitus is a really awful thing, but believe me, there are much worst things. So we need to stop thinking we are the "chosen ones" to suffer. We are not alone.

      2) You need to ACCEPT your Tinnitus (hard, veeery hard, but possible). Once you understand that you are not the only suffering, you should accept that, as well as other people got cancer, some got terminal kidney failure, some got a heart attack, some others has lost their children, lost their parents, has lost a limb, are blind, have multiple sclerosis, cystic fibrosis,..... We have Tinnitus.

      3) The process of getting better is not a single win. It is like, "feeling very bad, feeling bad, feeling very very very bad, feeling bad, feeling something good, feeling great, feeling bad again, feeling good, feeling really good"... is a process, a cycle... It first begins with alot of bad days/months and some good ones. But if you keep working on it, your cycle will start to change, you will start to have more good than bad ones.

      4) It is like a snowball... you will start small, very small improvements. That is the hardest part of the process. People give up in a couple of weeks, then they get trapped again in the "all days depression". You need to know that, like a snowball falling a hill, it will start small (really full of depression, anxiety) but as well as you keep going, the snowball will get bigger and bigger (you will get better and better)...

      5) If you have any other problems than Tinnitus, ex: another health problems, poor eating habits, alot of stress from work, alot of anxiety and depression because your profession, family, etc... you NEED to solve them first before you start to handle your Tinnitus.

      6) Please read about CBT, Cognitive Behavioral Therapy, and also about Mindfullness. Those are methods to help people to handle better the anxiety and depression. They REALLY help.

      The worst part, is to start rolling... to get out of that very bad depression you are in (I was right there also)... once you start to move forward, things will improve.

      Please keep in touch.

      Sometimes I can last couple of days to answer because of work, but hang on there smile

      Hope and hugs for you.

    • Posted

      Hi John just reading through some old posts because I have joined the "T" club and want to say that I found your messages on here really helpful.  Especially when you say that the process of getting better is not a single win.  I thought that I was doing okay and most days coping okay (had this awful affliction since May) and then had a bad day yesterday, couldn't sleep at all last night due to the panic and anxiety and now also feeling pretty desparate today and not being able to zone out the noise very well.  I work in a quiet office and find this very difficult so sit with an ear piece in listening to radio softly.  It's because of post like yours that I feel that I can go on.  Already had cancer so I guess it's just another hurdle to get over - but a hard one!

    • Posted

      Excellent advice, John.  That is how I deal with my tinnitus.  When I do become too conscious of it, I say, 'Hi old friend', give it my full, calm, accepting attention for a while, and then get on with my life.

  • Posted

    After reading literally hundreds of posts on this forum and others, I actually have a story that I have never seen before, unfortunately not one,,,,
    • Posted

      Hi Barry

      What you mean when you say you have a story that you have never seen before ?

    • Posted

      Hi....I barely got onto this website....I seen this Post. I can totally Relate to this Scary issue. I have had it for a year straight now.....Ugh!. Im sick of it.....I have seen 6 Doctor's, and 3 ENT....they all say i have Anxiety.....And there is nothing we can do about this horrible Tinnitus......You will Adjust. Well by now, I hope you have.....One day, We may wake up, and Poof!. Its gone!. But for now. Keep busy....Wear headphones. Just try and ignore it. When you focus on the sound. It only Intensifies.....Good Luck!☆
  • Posted

    Hi Shabhina,

    I have not disappeared from the face of the Earth - I am still here - reading your posts, replies and empathizing with you, since we have all been through the things you are going through.  I wrote to you at quite some length last summer, but none of it got through and I am very angry about that.  John 71471 has some very useful advice, try to follow it -- it will work.  Look me up, Susan Glover-Arno.

    • Posted

      Thanks Susan, really appreciate it !

      Will definately look you up.

       

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