To Give Others Hope - Regarding Abscesses & Pain

Thank you

Thank you Patricia

Hey I'm actually in the exact same boat as you I got diagnosed 3 weeks ago I have gotten better but always feel tired and cant remember last time I had a normal bowel movement been on antibiotics for 3 weeks now pain has gone down tremendously but still scared to eat.

Hi Richyai, yes I lost a few pounds during the ordeal and now that I'm so careful about my diet I cannot say that I've regained much.  I do have energy again though and the pain is still gone for the most part.  So glad to hear you're improving.

Hi Jcab, I think the BMs will improve when you are off of the antibiotics and the inflammation inside of your intestines has gone down.  It took a good month for me to start to recover and even then I had a long road ahead of me.  Try not to get too frustrated, you're still in the early stages.

Hi jcab89, this has been a real fight lol and still is but hopefully heading the right way. Im taking a satchet of movicol and ducoease to keep my bowels going each day if i dont i end up in discomfort in my rectum. Have u lost weight?

Hi Rosie, thanks for the reply. I am eating a lot better to gain weight and get my strength back. This has been an ordeal and a half! How are you doing??

How are you doing with your items that keep “ you going”?. I certainly understand that. I had a flare up a week ago. Dr put me back on Cipro and Flagyl. Boy they are making me so very dizzy. Also Milk of Magnesia 2 Tablespoons a night. Seems to be working.  Anyone else experiencing dizziness with these two drugs. ? And the bloating.... well I look like I’m 9 months pregnant. This is a miserable disease. 

Hi Patricia, your back on the antibiotics? I finished the flagyl a few days ago just on co-amoxcol until i see the specialist next tuesday then probably more antibiotics. No blood tests or CT so waste of time seeing him but i took ot on board myself and got my partner a district nurse to take a blood sample this morning and send it to the specialist. I'm still not 100% but I'm certain its allergies or sinus infection causing other symptoms, its hard to tell. My partner has checked my temp, blood pressure etc when I have a dizzy-do and everything is fine. Anyhow, how are you?

Apart from the antibiotics, movicol and ducoease I'm managing without any painkillers and anti spasam tablets. Sometiimes need milk of magnesia or wind settlers if needed but i think the antibiotics dont help with the upset stomach

So glad to hear you're improving.  I am still doing good.  Eating my 2 veggies and 2 fruit servings a day.  I thought I ate healthily before, wow was I wrong!  It was an ordeal but also an eye opening experience too.  Best of luck!!

Do you think it’s the fruits and veg that are making you feel better? I thought I had it made finishing the Cipro and Flagly  yesterday was in  no pain until last night and it hit again. The pain was terrible. I’ve decided to reopen my thoughts on this miserable disease. I’m going to be deligent about what I eat and rececamine the natural items I’m taking. However I just think it’s an up and down disease. Be happy for the good days and pray through the bad. So here it is a new day a gift from God. Let’s pray it’s a better one for all of us. God bless!

Hi Patricia, so sorry to hear you're still in pain.  Yes I do think the dietary changes I made are what is helping me.  I am also diligently taking about 50 billion (25 billion in the AM and 25 in the PM) units of probiotics every day, not sure if that's helping too.  As I sit here I'm eating a bowl of raw celery and yellow pepper with hummus.  Normally my morning snack would've been something salty but I've had to do away with that to make sure I get at least 2 servings of veggies in every day. 

Worth mentioning is that leading up to the abscess I had been loosely trying to follow a keto diet, which is high protein and for myself, inadvertantly, low fiber.  It just didn't dawn on me how important fiber is.

I also do eat seeds and nuts, as my doctor told me that they are fine.  Everyone is different but I haven't had any issues so far with them. 

Is there a reason for the antibiotics you're still on?  My doctor does not prescribe antibiotics unless there is a confirmed issue.  

I still get the occasional odd indigestion like pain and it will worry me that the diverticulitis is flaring up again but so far it's always subsided.  Fingers crossed.....

Patricia also one last thing, I realized leading up to the abscess I had been taking a moderate amount of ibuprofen which is a no-no when it comes to diverticulitis.  I would say I had been taking 400 mgs a day.  Now I only use Tylenol and that's only if I absolutely need it.

Hi Patricia. How long have you been suffering with DD flare up? My pain is much better I just feel so horrible in my head and anxious because it has gone on for so long that I feel I have forgotten how I lived my life before and if THIS is normal how I am feeling. Specialist tm so lets see what he has to say!!!

Hello so thrilled you are doing so well. Keep up the good work. I’ve been with it for many years. I always thought it was IBS but within the past few years realized it is DD. I shy away from antibiotics but sometime just have  to take them. I still have pain on my left side off and on but I feel pretty sure it’s IBS. I have a wonderful new Dr. he has me on 1 1/2 T of Milk of Magnesia a night. I’ll have to share one more thing. I have Multiple Myeloma which is bone marrow cancer. Am taking chemo every week for it so this complicates things. I spend a lot of time praying. It’s a pretty bad disease but could be worse. It’s nice to be able to share isn’t it.?Helps a lot. Let’s keep it up. God bless!

Hi Patricia, I'm sorry to hear that you're suffering from that as well BUT I have noticed how many brave people are suffering with this and other conditions. I seen the specialist today, well one of the nurses that was actually more clued up on DD than him and my white blood count is still at 14 but my inflammation levels are down to roughly 40 (big difference from 196 a couple of months back) No antibiotics required at the moment, which I was very happy about! My dizzy, buzzing ears they both said wasn't related and to visit the Dr tomorrow to see if it is labryinthis/sinus problem? Have yo tired the FB DD groups? They are so helpful and friendly!!

Yes the antibiotics are horrible make you very ill. Try Heathers tummy teas or Bentyl for bloating and gas. Or gas x . Try IBGUARD also. Take a good probiotics and digestive enzymes. I’m still on Low residues foods. And high fiber makes me sick, so diet is hard for me. So restricted. And loss of weight and muscle mass horrible. I have been diagnosed in Feb and still have pain , and fear of another flare. This DD and IBS hard to figure out. Pray everyday for everyone who has to suffer with this crap. 

Anti spasm meds like Bentyl can cause bad dizziness, headaches, and pressure in sinus and head. Feeling of disconnected in head. 

Patricia I am so sorry to hear about the multiple myeloma.  Best of luck to you with the treatments.  I believe that can also cause pain, maybe that is contributing to the issue.  Hopefully you can find a place of peace and feel healthy and like "yourself" again.

Thank you Rose. Yes it’s a tough road to travel. But like you all I have no choise. Had chemo on Tuesday. Have it every Tues and haven’t felt well since. Also Dr gave me flu and pneumonia shots. Really don’t think I’m strong enough for both of them but I got um just the same. Left stomach been kicking up pretty bad. Oh me oh my hate to do all this complaining but I know you all understand. It great that we have each other. Thank you all for the advice. We’re gonna get better.... trial and error I guess. God bless us all🙏🏻