Posted , 13 users are following.
Came across this medical/clinical trial link. Studies are for atropic vaginitis BUT I have that too!! (Wondering if many of us do...).
I could not find Vit d suppositories online - just liquid for babies and softgels.
So what say you? Should we do a group trial and put our vitamin D softgels where the sun don’t shine? 🤣
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4387645/
3 likes, 62 replies
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susan43705 pat0423
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pat0423 susan43705
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Hope you have some relief soon sweetie.
susan43705 pat0423
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dixie501 pat0423
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I love all this info, but has anyone thought and done a elimination/auto-immunity diet? I went off of that when I had knee replacement and went back to my comfort eating and ended up with LS from doing so. After dx of LS and my gyn telling me it was caused by auto-immunity I went back to being 100% compliant to eating the way I have to, to keep auto-immunity under control and wouldn't you know it, everything calmed down, white patched went away and have stayed away. I also use Emuaid cream to keep things soft and hydrated, because there is the tendency to burn from the dryness and tighten up and not stretch. These 2 things have helped in so many ways and there are no side effects like all the pharma stuff dr's like to use. I would like to encourage all LS suffers to try this, if anything at least one would be healthier. :-) the best to all of you.
deethebee dixie501
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Nancy_K_B dixie501
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HI Dixie - yes - most everybody I've heard of since being on here the last 7 months have been working on their own trigger foods in whatever way they see fit. Guppy and Nanny who have been here over 4 years keep reminding us to do so. I found that I don't have any LS trigger to wheat but I do to sugar and dairy. I don't even notice any prob with having a bit of maple syrup in my oatmeal breakfast.
I am aware the I might have to give up the wheat/glutan as a test even though I not notice anything... I've seen articles on just that... I've stopped eggs as well. I"ve been following the trail of vitamin deficiency and autoimmunity and have got a long article on my discussions' links if you click on my name and scroll down to the right..
Nice to have you join us.
Nancy_K_B deethebee
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deethe bee.... there are lists all over teh internet when you just put that in google. Hve fun - it's a read... smiles
susan43705 dixie501
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Hi Dixie, how fortunate that you figured out quickly that diet played a big role in your LS. So no white patches or itching. Any fusing? What have you eliminated? Just wheat and sugar. Do you drink any alcohol? Sorry for all the questions. I'm trying so many things right now. Continued well being to you.
dixie501 deethebee
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Hi Deethebee; You can find the auto-immune/elimination diet on the net. Read a book from Amy Meyers on auto-immunity and she has alot of great info.
The one my functional medicine doctor (FMD) put me on eliminated all processed food. NO: dairy, gluten, soy, or sugar (in any form). Slogan: If you can't pick it or if you can't chase it, you don't eat it. That slogan has really helped me alot of times. Is it easy? No, not at first. Is it worth it? YES
Do this till you feel better then you can start adding one item in per week and see if you have a reaction. If you have a reaction to it, sorry leave it out and give it a try again in a few months. If you still have a reaction to it then you won't be able to eat that. Bummer I know, but its a choice one has to make. My health or my momentary pleasure. Hope it works out for you soon.
dixie501 Nancy_K_B
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Thank you for the welcome Nancy K B. Glad to hear that diet is discussed as that is such a huge part of getting LS under control. Tho I know one can only put the info out there, its up to each of us individually as to what we will do with it. Tho we do want the best for everyone and to see everyone doing well and feeling great again, we do recognize it's all individual choice.
That article you mention sounds interesting, I'll try to get there and check it out. Thanks again
Nancy_K_B dixie501
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https://patient.info/forums/discuss/pathway-into-and-out-of-autoimmune-diseases--661033
pat0423 Nancy_K_B
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Thank you, Nancy. I’ve bookmarked it this time to get back to it easily. Going through it slowly and taking notes. 💜
susan43705 Nancy_K_B
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Hi Nancy, Because LS eats up our parts down below I think it is similar to a flesh-eating disease. Perhaps antibiotics would help in controlling the rate at which it is destroying our parts. There has got to be an answer to this madness. It's so hard to believe that doctors don't know what to do with LS.
What do you think?
victoria86572 pat0423
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Interestingly I have just had 4 weeks in sunny climes and had no issues with LS. Returned to UK and within a few days back on remedial measures. I'm going to try Vit D supplementation.
susan43705 pat0423
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Hi Pat, I'm going to give it a shot tonight. Wondering how many IUs we should use. Stay tuned.
pat0423 susan43705
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I’m currently/still having too many issues to do anything new. I would think 1000-2000- or 5000 ui would be fine, I was going to try lower to start but I have 5000’s on hand.
Hope you get wonderful results!!
susan43705 pat0423
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Thanks Pat! I"ll keep all apprised. I'm having issues as well. So discouraged at the moment. Succumbed to Clob last night.
pat0423 susan43705
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susan43705 pat0423
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pat0423 susan43705
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Yes the forum is a lifesaver!