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vertical heterophia

Posted , 4 users are following.

rita52071
rita52071

hello....does anyone know anything about vertical heterophia????  I heard theres a doctor in Michigan Debbie Feinberg who specilizes in it...Sadly, I live in New York.......  Surprising, AI spoke to a doctoe who is lik one hour and a half to two hours from me who was trained by her.......Dr. Cheryl Berger-Israeloff....... Any info is greatly appreciated.....

0 likes, 58 replies

58 Replies

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  • rocksolid
    rocksolid rita52071

    Posted

    Rita,  One last thought. Do you still have your wisdom teeth? I have heard that sometimes your wisdom teeth can make us feel the way we feel.
  • lisa08672
    lisa08672 rita52071

    Posted

    Hi Rita have you got vertical heterophia?I looked it up last night and apparently one of my opticians can look for it,I have symptoms of it and wanted to look into it.
    • rita52071
      rita52071 lisa08672

      Posted

      Getting ready to leave soon...... but I don't know  right now........ they say I have vestibular migranes......I will talk to you tomorrow sorry....Thanksgiving dinner.....Have a Happy Thanksgiving!!!!!
    • lisa08672
      lisa08672 rita52071

      Posted

      Hi Rita,sorry forgot you have thanksgiving, sorry a Brit,happy thanksgiving :-) x
    • rita52071
      rita52071 lisa08672

      Posted

      oh please no need to say your sorry....It was just that we were getting ready to leave and couldn't chat much.....I seem to have symptoms too....Do't know if the meds I am taking is controling the dizziness that is coming from the eyes or not......Very confused what is happening.......be careful very few doctor deal with this condition.....Have to go back to the doctor on dec 7 (Headache doctor)  going to talk to her about this and see if she knows anything   Got vertigo yesterday and this morning was off balance... then fine for the rest of the day.....
    • lisa08672
      lisa08672 rita52071

      Posted

      I had my MRI scan results back yesterday all normal,my ent doctor thought I had vestibular migraines but had same symptoms 12 weeks and been off work whole time as really off balance/dizzy.it feels like it comes from my eyes.I took migraine pills no change though,he now thinks I have benign positional vertigo which I have to look into as he didn't explain it well but that affects your eyes.he's been doing epley head manoeuvres on me,how long have you had this?take care,lisa
    • Gilly_flower
      Gilly_flower lisa08672

      Posted

      Hi , I have been feeling like this now for 8 weeks ,seems to be coming from my eyes , there putting it down to bppv , vertigo , I'm not sure as I dont get any relive from it , do you find lighting in shops make you feel like your falling , I only fill comfortable in dim lighting in the evening , been of work the whole time 
    • rita52071
      rita52071 Gilly_flower

      Posted

      Yes...lightening in stores, large crowds can trigger a vertigo attack....Doctors cann do a manuever if its bppv and it should go away....I was misdiagnoised but the ent dr that I was seeing at that time was not the best........lod noises...alot of stimuli......Dont wait as long as I did but I would look into or at least read about on the internet vestibular migraines....Its a horrible feeling.....I needed to leave my job......a year later much better but still fighting it
    • rita52071
      rita52071 lisa08672

      Posted

      As of migraine pills yes I am on three...I am seeing a heachache specialist..those pills at least the ones that I am on takes 3 to 4 week to take full effect...and you start on a very low dosage then it is brought up.......I also went for vestibular rehab.....helped but then vertigo came back stronger than ever.....did you go for all that testing>>>Balance, rotary chair, eye gazing etc?????  Let them also take a MRA of the front and back of neck to make sure blood is flowing good....Its just like am MRI Did they also do a MRI of the ears?????  This is all stuff I have been through.They just told me they thought it was bppv
    • rita52071
      rita52071 Gilly_flower

      Posted

      Hope my reply went through...sometimes my computer does funny things  LOL

       

    • lisa08672
      lisa08672 rita52071

      Posted

      Hi Rita,I've had all tests come back normal,mri on ears and head,also haven't had my neck looked at but might ask about it.I've had this 12 weeks and so desperate to go back to work I don't want to lose my job,take care,lisa
    • rita52071
      rita52071 lisa08672

      Posted

      i was just looking for directions to the doctor in Garden City NY that deals with this  .........called my insurance co etc........so far havent gotten any answers....like if they are going to cover this etc.....apparently most common reason for having this is that you are born with it........can show symptoms as early as 4 years old ......we compensate for the eyes not lining up correcting....like I said I had this problem over 30 years  more like 35 ...40  but it would go away and then come back........but this is realy bad now... one year........At least we can talk about it  glad to hear MRI is fine....Can you take a leave from work for a few months????  Dont know what your situation is
    • lisa08672
      lisa08672 rita52071

      Posted

      I do have one eye bigger than the other but no one would notice unless I said something.I had a few dizzy spells where eyes went weird when I was about 13 and again just dizziness at 19 that lasted about 2 years but didnt ruin my life,I have been OK up to now,I'm 33 at Christmas.I'm allowed 28 weeks sick pay off work its not much less than what I get working,then comes hard part applying for a sick benefit,will have to be seen by a doctor if he thinks I'm fit for work or not,I've heard I be lucky to get anything as I look well and no one can see my illness.my boyfriend is a manager and luckily can provide for our family but it be nice for me to be able to get a bit of income to help out,take care,Lisa x
    • rita52071
      rita52071 lisa08672

      Posted

      How nice a  Christmas birthday .........My first dizziness was around 15 years old..they said I was anemic....lasted for awhile then went away...got another around 18 didnt ruin my life but was very very difficult to work .......that lasted for months.....then I got bad vertigo in the shower I think I was like 18.....then when I was like 22 lasted for at least 6 months...then disappeared...every few months it would remind me it was there...but nothing so bad.......that lasted like that for years  past few years on and off issues until finally ast year it just got out of control......now I just have pressure over my eyes...Im always tired........could be from meds too....besides trying to function through the day   I am now 58...and I never had problems before  been relatively healthy ate well...exercise...now I could barely move my head......Go fiqure  LOL....Hope my insurance will cover this....I am already seeing a doctor that I need to pay for out of pocket  and shes not cheap  Thats 7 months off  do you get paid???  Just keep making appts hopefully you will find out whats going on
    • lisa08672
      lisa08672 rita52071

      Posted

      Hi,we are lucky here in uk as we don't have to pay for medical treatment, I get paid statatory sick pay for 28 weeks which is good then after it runs out I have to try and get a disability allowance,hard to get here but I will try,I'm not well enough to work now as still dizzy and off balance all the time,work said they will keep my job open as they know how much I like it there and want to go back,I work at a care home for old people,woke up today so tired and off balance and eyes flicker.how are you feeling today?Lisa x
    • Gilly_flower
      Gilly_flower lisa08672

      Posted

      Hope you didnt mind me replying as well , I to live in the uk ,I'm not well enough to not work , and get sick pay , my employees are very kind , but I worry about letting them down , it in a restaurant and B and B , which as you can guess this time a year is busy , I have been waiting for ent referral , so rang my doctor yesterday , to see to hurry it up , but found out they hadn't sent it of , so that's 3 weeks waiting for nothing ,I really feel people dont understand as I look so well , except been told my eyes look tired , been told I will have to try and work through it , which I have tried and its terrible , got one doctor telling me ok to drive and another telling me not to , I'm pulling my hair out x
    • rita52071
      rita52071 lisa08672

      Posted

      Hello...here in New York we have to pay for everything...lol......Not doing to well today....My head is so off everytime I move.....eyes look tired and have rings under them......I feel like the medicine is not working like it was....according to the doctor I was going to keep getting better....Dont know whats happening.......Thats a hard job they need so much caring for........I just started reading a book Heal Your Headache The 123 Program by David Buchholz.....Its for migraines and vertigo  Heard it makes for very good reading....I bought it at Barnes and Nobles...$13 needed to use gift cards...you can get it on amazon I think for $9....Going to be decorating  for Christmas today.....Sometimes after a few hours I feel better........
    • lisa08672
      lisa08672 rita52071

      Posted

      Hi,I might have to buy that book :-) I'm going to decorate my apartment when my kids are at nursery and school Monday lol can't do anything with them running around.I was bad earlier then had a few hours I was good now bad again,its my eyes they feel so off balance x
    • lisa08672
      lisa08672 Gilly_flower

      Posted

      Hi Gilly,I live in Worthing west Sussex .I was told I wasn't allowed to drive but luckily I can't anyway. What are your symptoms, hope your OK?Lisa x
    • rita52071
      rita52071 Gilly_flower

      Posted

      THats a hard job too working in a restaurant...you are always moving your head and turning.......This is a busy time of the year too....but your  health has to come first.....I know its frusting just waiting around for appt....that happened to me many times....No people dont understand at all believe me.....I have been looking out of it for a few weeks now with some good days......although I was told how good I looked when I went to a friends house one night....Didn't feel it........thanks for oining our conversation......This takes time...especially with all the testing...also avoid certain foods nuts, pickles, olives, salt, processed foods, fresh baked bread, aged cheeses.onions.........these can be triggers for vertigo........
    • rita52071
      rita52071

      Posted

      Look at food triggers for vertigo that I sent to Gilly Flower........
    • rita52071
      rita52071 lisa08672

      Posted

      I am a retired NYC school teacher...retired then two months later I started working at a pre school with infants to five years old...also did an after school program....but needed to leave....loved it
    • rita52071
      rita52071

      Posted

      nice to talk to people about thhis that understands...Hope everyone feels better as day goes on.......cheesygrin Be careful driving if you do drive....I couldnt drive at all for 5 months........
    • lisa08672
      lisa08672 rita52071

      Posted

      I hate not working its so hard explaining to people what's wrong with me when I look normal,I loved my job so much and hoping I can return soon. Hope your not to bad today?take care,Lisa x
    • rita52071
      rita52071 lisa08672

      Posted

      you take care too!!! believe me people have no clue what you are going through....You really need to experience it.......
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