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Vitamin D deficiency success stories

Posted , 122 users are following.

LyLy
LyLy

I am in the midst of this deficiency trying to recover from the horrible symptoms that it can cause. I want to hear from people who have overcome this deficiency and how they did it. If there was adverse affects of long term use of vitamin d supplements.

How long did it take to make a full recovery and any hurdles you ran into along the way.

I am just in need of encouragement right now from this deficiency. It has stopped me in my tracks and life just stopped for me. Being frozen in time while everyone continues on with their life while I suffer and wrestle with the symptoms.

Dealing with doctors who are not knowledgeable with this deficiency can be very frustrating.

Please share your story so I know after the storm comes a rainbow. Your stories will bring encouragement and hope not only to me but for everyone out there searching for answers on vitamin d deficiency.

Thank you and God bless!

11 likes, 448 replies

448 Replies

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  • ali70833
    ali70833 LyLy

    Posted

    i am diaganosed 10

    U guys have problem in sitting?

    i cnt sit for long...

    i totally hate this

    • Jose1980
      Jose1980 ali70833

      Posted

      Yes sitting, standing... OMG the fatigue its unbelievable almost 2 months 10.000 UI day very slow progress...
    • jane69973
      jane69973 ali70833

      Posted

      Hi

      I have been unable to sit or stand and ended up in hospital they thought I had slipped a disk the pain was so bad. After millions of blood tests it's vit d deficiency. My score was 14 which is really low, I am active and eat well so no idea how this even happened. I have been started on Vit D once a week. My legs are very painful and I am walking with crutches. Hope your feeling better x

  • elaine12351
    elaine12351 LyLy

    Edited

    I was diagnosed with vitamin D deficiency after having all fasting bloods done. At the time I was depressed and anxious for no reason. Constant aches and pains, restless leg & brain fog. I was prescribed a high dose of the cholecalciferol for 7 weeks but after taking it for about a week I felt terrible so I stopped it. I am very wary about taking anything that's not produced naturally. I done my own research online. Decided the best I could get was Together Vitamin D3 with metabolites from Holland & Barrett (28 day supply) and I take 1 a day with Together Magnesium which I take 2 a day (I get 2 lots of this 28 day supply). I never miss them & in the summer I try to get about 20 minutes sunshine a day if possible. It took a couple of month but I felt and still feel much better. Only thing I still get is brain fog but I can live with that. I think il be taking these the rest of my life. I'm in my mid 50s now.

  • alexandra00717
    alexandra00717 LyLy

    Posted

    Can I ask how you are now? I’m newly diagnosed and just found your thread. Can’t imagine ever feeling better.
    • rhodri21244
      rhodri21244 alexandra00717

      Posted

      cAs soon as I stopped I felt much better and the doctor said that the course shortened to six from ten weeks had probably done the trick. She then sent me to a neurologist . I had ten blood tests  a head MRI scan and electrical tests as well as having to take three vitamin B compound strong pills a day. When I had an appointment with him to get the results he said they showed there was nothing wrong with me and said hr will organize a physiotherapist to visit me with an exercise programme. Personally I think that it has something to do with being seventy. Look at how many people have walking sticks when next in the high street. I rather wish I had not seen the doctor in the first place but it was on the orders of my wife who came with me.. Hope that you get better soon. The vitamin B pills are having no bad side affect but  they are not super high dosage. Rhodri
    • jane69973
      jane69973 alexandra00717

      Posted

      Hi I have just been diagnosed too my score for vit d was 14 and I was in hospital for a few weeks. I was in so much pain they thought I had slipped a disk or something. I am on vit d once a week and on morphine. I am in agony and worried this will never end. I also fall asleep at random times and can not remember things. I am also worried about work.
  • karen22708
    karen22708 LyLy

    Posted

    I am in the same boat right now. I feel horrible. Been taking 50,000ius for about 7weeks now but in the meantime been put anxiety meds but i quit taking them. Its like poison.
  • karen24446
    karen24446 LyLy

    Posted

    Hi

    I have just been diagnosed with extremely low vitamin D 3 weeks ago I have pain in shoulder neck collar bone and right arm I also feel very down had a horrible night hardly slept had pain in between shoulder blades and ribs I'm taking 25000IU per fortnight also cocodomol hope to hear I will get better

  • samantha42711
    samantha42711 LyLy

    Edited

    Hello everyone,

    I too have discovered I have a vitamin d deficiency along with a folate deficiency too. My readings at this time are vitamin d level 45nmol/L which I think converts to 18 ng/ml and folate level of 2.4 ug/L which should be between 5.4 -24.

    It all started last October 2017, I was having pain in my tummy and IBS symptoms so visited my Gp who wanted to test for inflamitory bowel disease through a stool sample. My sample came back positive for inflammation so I was referred to a specialist , who said the inlfammation could be fron an old tummy bug but ordered a colonoscopy to have a look. During the colonoscopy it was clear there was a little inflammation present. Biopsies were done and treatment for the inflammation was given. 3 weeks later I returned to see the specialist for the results to be told everything was fine and the inflammation was due to the bowel prep I had to take before the procedure and was happy everything was ok.

    During this time over the three months I was back and forth to my Gp as I was feeling so unwell. I was very fatigued, dizzy, blurred vision, back pain, severe neck/ shoulder / collar bone pain, joint pain , headaches, night sweats , feeling very anxious , internal shakes when relaxing , poor sleep, tight chest, tummy troubles... the list is endless! I feel so worried and unwell. My doctor ordered complete blood test where the vitamin d and folate deficiency was detected. As I never get to see the same Gp from my surgery when I was called back last week to discuss some form of supplements she opened a new can of worms! She informed me that the same specialist I was seeing had mis diagnosed her son for inflamitory bowel disease, so said my deficiency could maybe caused from that (if I have been mis diagnosed). Or just have a deficiency.

    My question is has anyone else had similar symptoms to me?

    The Gp has prescribed 20,000 unit of colecalciferol of which I have to take 2 a month and have a 3 month course and one daily 5mg of folic acid for 3 months. Do I need to be taking any other suppliments along with these.? I started to feel a little better at first but today feel weak again. I understand it's a long process but I am just finding it very hard to juggle family life ,work and a toddler!

    Sorry for the long story, but any advice would be greatly appreciated!

    Samantha x

    • jeannisha97114
      jeannisha97114 samantha42711

      Posted

      Yes I feel literally everything u feel love.. my dr finally just told me that I have low vitamin d.. it was under a 4 . So he prescribed me to take 50,000 iu a week I scared to take but I'm going to try it tonight so I can sleep.. this whole time they just said I had anxiety and depression and gave me celexa and didn't do further testing. I have to go to a gastroenterologist to find out my vitamin d was low 

    • michelle11098
      michelle11098 samantha42711

      Posted

      Has anyone noticed a slight shaking or trembling to hands? I used to have such steady hands but some days notice a temble when do things. (As well as other symptoms like weakness, fatigue night sweats etc.) also some days I seem to feel ok, then next day feel wiped out and tremble back...
    • elisa1982
      elisa1982 michelle11098

      Edited

      Yes! The tremors/shaking in the hands have scared me a lot. I been dropping everything. I actually just shake & tremble a lot. My whole body. My doctor told me that it was psychological. Like in my head!!😡 So glad to know it's not just in my head.

    • samantha42711
      samantha42711 jeannisha97114

      Posted

      Hi ,Thank you for your reply. Have you started your treatment yet..? If so have you noticed any difference as yet. I've been on mine along with folic acid for 5 weeks now. I have seen some improvement I guess but still far from feeling well. The pain in my shoulders/neck and head has gone but still feel achey in the rest of my muscles / bones. Still have tremors and feeling of weakness. My new one is shortness of breath, tight throat and tight chest with pain in between my shoulder blades. Im not sure why and wondered if anyone else has experienced this too. I feel like as one symptom gets better another one appears!! X

    • jeannisha97114
      jeannisha97114 samantha42711

      Posted

      Sad to say but nooo 😩 I still haven't took them I just been taking multivitamin gummies and trying to get sun every chance I get but it's crazy you say that because I haven't taken the pills but for the past few days I also developed shortness of breath and tightness and chest and my shortness of breath can be so bad I start crying ready to call the ambulance eventually it'll blow over but come right back again.. I keep saying I'm about try the pill and never do so feel like it's going to make my symptoms worse for some odd reason 

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