Where are all the missing people?
Posted , 17 users are following.
I'm wondering if we have lost a lot of people who had been on for a long time. I know I almost gave up with frustration but hung on and now I have got the hang of this forum again I am managing to work it out but I cannot get the emojis.......just a square. Perhaps that sums me up.....square. Now that gives away my age! I am missing the 'oldies' though it's good to have some new company. Perhaps they have all gone in to remission, in which case, I'd like to know how they are and any tips they may have. I know. We're all different so it won't necessary work for us all but it's good to know.
Meantime, I'm thinking of changing my name to Michelin. I am about to look out my padded black coat and hitch a ride on the Michelin tyre lorry. I could give the wee ( Scottish for small) man on the lorry a fright and do him out of a job but it'll be a wee bit cold on top of the cab now. My English cousins found our use of the word wee hilarious. We have snow gates in use and roads closed already...........unusual for October.
0 likes, 63 replies
EileenH Silver49
Posted
I was in Dundee briefly last week - I'm rather glad I escaped in time even though I had put my winter tyres on before coming over despite temperatures in the low 20s here.
Yes - I fear you are correct. It has happened each time they have messed up the forum with their improvements. My scrolling finger is protesting loudly today...
Silver49 EileenH
Posted
You have been fortunate to have escaped in time. Did you manage to see the V&A? I haven't been yet but hope to go before Christmas. Gosh.....the dreaded word at this time of year. Ah well. The clocks change tonight.
Yes. There seem to be a number of people missing .
EileenH Silver49
Posted
Only from the outside unfortunately. But I have a feeling we might have been blown away in every sense of the word had we gone to see it! The Riverside was awfully draughty...
Reeceregan EileenH
Posted
Hi Eileen,
Glad to hear it isn't just me then. This "improvement" is doing my head in. My shift key stays on, there are no emoji's , and I seem to have to backtrack so much more than usual without the suggested spelling text that would pop up if I missed the spelling. When did they change it? Maybe this is why some of us "oldies" haven't been getting the emails, and therefore posting.
lodgerUK_NE EileenH
Posted
I have given up temporarily, just read and when I have the time and hopefully that will be soon, then perhaps it will be sorted out and I won't have to keep doing something different.
Snow only on the top of the hills, Stanley, Consett etc as you know.
We had a bit of rain and are just 10 miles further down. So North East UK yes, but patchy.
EileenH Reeceregan
Posted
No - the not getting notifications has been happening sporadically for some time. This re-skin just completed the mess IMHO.
But believe me - I am getting a lesson in how reasonable this is - my HealthUnlocked notifications are arriving in my inbox but don't then link to the post! Trying to find anything is horrendous since they have removed the ability to delete just a singe notification when read in the internal box!!! It's delete all or nothing. Having been away I have a couple of hundred notifications to sort out.
Between the two I am NOT a happy bunny 😦
Silver49 EileenH
Posted
My replies have not been sending so if this. gets lucky I hope others will understand that I have tried and now I can't find the threads!!! They closed the V&A to new admissions recently because of a concern with the wind being strong and the likelihood of people being blown over. I believe it's amazing inside the building. It's certainly a bit different on the outside.
Flutterbie57 EileenH
Posted
I am soooo confused, I thought it was just me. i can't even find the unhappy bunny
Reeceregan Silver49
Posted
Well look at that! Just yesterday I put up a post about not seeing any posts of late, and here you are saying you haven't seen any "oldies". It's been months since I have seen any emails with new discussions, and now this morning after me asking the forum if I've been a bad girl I have this email from patient.info. I notice the layout has changed slightly, I wonder if maybe the upgrade ditched us for some reason....maybe if we hadn't posted a reply on the forum for a while perhaps. I do respond to the PMR, GCA, and Osteoporosis discussions but haven't seen anything of late.
Never mind, here I am to annoy you all. Admittedly not too much to say, and hoping I don't jinx myself. Brief history: diagnosed PMR and GCA June 2017 which hit me like the old train. If there was 10 symptoms I had 20, so it was a bad dose of it thats for sure. The side effects of the pred were nasty, although I didn't gain weight, I lost it. I was always petite, now I'm scrawny, as all my muscles took a holiday and never came back. Cataracts and hair loss followed, to name a few, but happy to say I have successfully tapered to 3mg currently, using the DSNS method. DEXA scan in November 2017 showed severe osteoporosis, another huge shock as I'd always eaten well, taken all the correct supplements and was very fit and active. (pre PMR). Now also on Prolia injections every 6 months, no side effects other than feeling fluish for a week after the needle. Main objective now is to get off the pred without a relapse but I don't intend to rush it, my adrenals seem to have kicked in without a fight, so slowly slowly is the way to go. I can't emphasise that strongly enough. Listen to your body, rest, pace, taper. Even though I started on 50mg and am now on 3, I consider myself one of the lucky ones who didn't get the relapses so many others do, that would have set me backwards along the way. My side effects of the pred were nasty, but my ostoporosis wasn't caused by it, seems I've had it for many years without knowing as I've never broken a bone, so I guess in a way I have to be grateful for PMR and pred or I probably would never have had the scan otherwise and may have ended up a lot worse off if I'd broken a hip or leg or worse still my back. Got to be grateful for small mercies as they say.
Anyway, enough waffling, I'm in Australia, it's summer, and it's going to be very hot today and the pool awaits. Yes, I do also have a michelin coat but it's pretending to be a bear and is in hibernation.
PS: Those emoji's have changed since I was on here last. I use to use them all the time, I'd quite often sign off with the arm in the muscle stance, ( meaning keep strong, or onwards and upwards, sometimes I'd use the lady with her head on the desk for frustration...that sort of thing.) Just tried to end this post with my muscle arm and guess what I got...yep...a box. It isn't you, the format has changed.  ( that box to the left is the lady with her head on the desk in frustration)....
Emis_Moderator Reeceregan
Posted
Hi Reeceregan,
As I replied to you on another post your emails should now be working,
Regarding the emoji's - due to user feedback I have asked that they be brought back so this should happen in the near future. I cannot give an exact timescale for this.
Regards,
Alan
Reeceregan Emis_Moderator
Posted
Well done, thank you so much.
Silver49 Reeceregan
Posted
I'm not sure where I have answered as this new format has thrown me. I received no emails for a few weeks and then I was back in contact with loads of emails. It seems to be improving but there have been lots of problems. Emojis are also to be fixed and put in place again.
Glad you are back and I'm sorry to see you have osteoporosis but good that PMR meant it was picked up and you are receiving treatment.
I am on 2.5 mgs after over 3 years though I was at 1.5 but it was too low and it wasn't covering the pain etc. I use the DSNS method and I will get there, sometime.
Flutterbie57 Silver49
Posted
We know about the word wee, way down south, down under. Dunedinites in NZ still talk with a Scottish accent several generations later. I would put a smiley emoji here if I knew where to find them.
I did wander off on holiday for a couple of months, and came home to find no notifications any more, but Alan has just sorted me out with that. I havn't got my head around the new site yet tho, so I will wait for a rainy day to keep me indoors so i can work it out. We are having a wonderful spring, luring me outdoors
Silver49 Flutterbie57
Posted
That's amazing because people usually lose their accents especially after a generation far less several. I used a Scottish word last week and received a blank expression so had to explain. It's a word I use from time to time but is so descriptive.
I am still trying to get to grips with the new site and noticed you weren't on so thought we'd lost you with the new format. Glad you are back on. I hope you had a lovely holiday. It's autumn here and there's a frost today but not as hard as it was a few days ago.
EileenH Flutterbie57
Posted
Yes, good to see you back and not lost to "progress"...
Silver, my mother lived in Scotland for years and never lost her West Country accent - which became even broader than it had been in the south after she'd been speaking to someone from home. 😃
EileenH Silver49
Posted
Smiley face: colon followed by a close bracket (just had to check it still worked...)
r.d.s26296 EileenH
Posted
😉
r.d.s26296
Posted
that above worked as a wink:-)
r.d.s26296
Posted
:
)
this is a 😃
r.d.s26296
Posted
😃
Silver49 EileenH
Posted
😃
r.d.s26296 Silver49
Posted
well done silver 😃
EileenH Silver49
Posted
Unhappy is colon, open bracket
wink I do as semicolon, close bracket.
There are loads if you search tinterwebs but it is such a pain having to look them up...
Silver49 EileenH
Posted
Thank you, Eileen. Hopefully it will be fixed soon and we can just use them as normal. 😃
EileenH Silver49
Posted
Hope springs eternal! I wish I knew why they thought it would be a good idea to take them away!
ptolemy Silver49
Posted
☠☺✊✋ ⛑☘ I have found I can do some more emojis, not much use though!
EileenH ptolemy
Posted
But HOW??????
Silver49 EileenH
Posted
It's interesting how quickly people can pick up their accent again after being in the company of or speaking to someone from their home. I find the same when I go north.
ClaireJG Silver49
Posted
I'm fascinated by accents. I used to work in neurology and we had patients who had had strokes and had developed "foreign accent syndrome". We had a patient who spoke with a strong Italian accent and another who spoke with a strong Jamaican accent; however, neither of them had been to those countries and were English to the core.
My cousin is English and lives in Scotland and has developed the most wonderful Scottish accent.
Silver49 ClaireJG
Posted
I have heard of that happening but do not know of anyone to whom that has happened. It's amazing as well as fascinating.
Has your cousin been living in Scotland for a long time or perhaps they were a child when they moved? Children pick up accents very quickly.
Flutterbie57 Silver49
Posted
Scottish accent seems to stay with people more than any other . I am fascinated what the very descriptive Scottish word was that you used Silver? Teach us all something new 😃 .
My grandson had an Iraq caregiver, and an Indian and Chinese kindergarten teacher as he was learning to speak. They all had broad accents.....grandson developed a lovely French accent till he got to school.
Mum in law reverted to German sentence structure after a stroke. We didn't understand her at first.
Flutterbie57 EileenH
Posted
"progress" I like that! I am here but I am dazed and confused . I was just trying to follow this one conversation, but I don't seem to be able to follow it in chronological order. I did not realise that at first. That is my mission for tonight, to get the conversations in time order for a start. And get emojis which express my feelings. A work in progress 😃
Silver49 Flutterbie57
Posted
Good morning, Fluttterbie. It was trauchled. If you've heard it you'll know how descriptive it is. I'm not sure if it is spelt with a u.
EileenH Silver49
Posted
The Scots dictionary suggests both, the u is optional - but they also spell it trachlit
Silver49 EileenH
Posted
Thank you, Eileen.