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Worried about large ovarian cyst, possible cancer and operation

Posted , 9 users are following.

Kath_T
Kath_T

Hi Everyone

I am 60 and was diagnosed with a large ovarian cyst on Tuesday after a routine scan on my gallbladder.  The cyst is 8.7cm x 5.5cm approx 31/2 inches by 21/2 inches)  I had a CA125 blood test on Thursday afternoon because, although most of the cyst looks to be fluid, there is a solid part to it too (but don't know the result yet).  I am really worried about what is going to happen to me, whether it is cancer or not, but also how the operation will be done with such a big cyst.  Could they still do this with keyhole or will it need to be the bigger operation?

My doctor has referred me to the consultant as urgent to be seen within two weeks, but she is now on holiday until Tuesday so I cannot talk to her..

Has anyone else been in a similar situation (especially at my age)?  How did they do the operation and what did they remove, just the cyst, the ovaries as well, or more?  How long did it take to get over it?

I would be very grateful for any information anyone can give me please?

Best wishes

Kathy

1 like, 220 replies

220 Replies

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  • julie2510
    julie2510 Kath_T

    Posted

    My CT scan results had to go to the board of speaclists and they said everything looks fine.I have to have a ultra scan on my liver just for compition.I dont no why because my results on my liver was normal.So just waiting for that.
    • Kath_T
      Kath_T julie2510

      Posted

      Oh right.  Did you have any biopsies done?

      xxx Kathy

  • Kath_T
    Kath_T

    Posted

    I have now had the letter for my appointment at the Gynaecology clinic on Monday 8 December at 9.30am.  This letter is the same as the original one I had before my operation, except that one of the paragraphs has been changed slightly and now says:

    'you may need to have some tests or be given new medication, so please be aware that you appointment could be longer than you expect.  Should your surgeon decide you need an operation, you may be offered a preoperative assessment the same day'.

    As I still haven't had my biopsy results, does this mean that they have found something and I should be preparing myself for another operation?  Has anyone else had this wording in the letter for their post operative appointment?  I am now very worried.

    xxx Kathy

     

    • l95692
      l95692 Kath_T

      Posted

      Hey,

      The text does not sound ominous to me. Sounds pretty standard, actually. Maybe it is just their way of asking people to reserve time for a longer appointment, which you may or may not use at all. In fact, if they had found something sinister, I doubt they would wait this long. They would probably call you to come in sooner to start treatment.

      Hang in there, my friend. Pretty soon the nighmare will be over.

      XXxxxxx

      Lorena

       

    • Kath_T
      Kath_T l95692

      Posted

      Thanks Lorena.  I hope you are right.  Thanks for your support again, I really appreciate it.

      Hope you are doing OK and not overdoing things?

      xxxxxxxxx Kathy

    • Tazchurch
      Tazchurch Kath_T

      Posted

      Hi my friend. As Lorena said sounds pretty standard. All it really says is to allow more time for example a person such as myself who had not yet gone through the menopause but would have it caused by the op may need to allow longer to discuss HRT.

      Hope your generally ok though and soon be over, only a few more days to that appointment.

      Big hugs

      Taz xxx

    • Kath_T
      Kath_T Tazchurch

      Posted

      Thanks for your support Taz.  I just thought it was odd that the letter said 'should your surgeon decide you need an operation' if it is a post op appointment. Perhaps this is normal?  The letter doesn't actually say it is a post op appointment though.

      xxxxx Kathy

    • Tazchurch
      Tazchurch Kath_T

      Posted

      As it would more than likely say follow up sounds like the secretary has used the wrong template DOH smile
    • Kath_T
      Kath_T Tazchurch

      Posted

      Thanks Taz.  I will try and ring her again tomorrow.

      xxxxxx Kathy

    • Kath_T
      Kath_T

      Posted

      I spoke to the consultant's secretary on Monday, and she said that my results were still not available, but will be for my appointment next Monday 8th December. - I'm not sure if I need to read anything into this or not?  However, she did confirm that the letter mentioning the possible need for an operation and pre-op was standard, so that was a relief.  Having to wait until Monday is a nuisance, but I shall just put it to the back of my mind (if I can) until then.

      xxxx Kathy

    • Tazchurch
      Tazchurch Kath_T

      Posted

      They have to be checked and signed off by a senior Dr, one who did not write the original report or was in anyway involved in the original examination of the "specimins". Quite probably waiting for this to be done.

      Also some departments are slower than others to pass things on.

    • Kath_T
      Kath_T Tazchurch

      Posted

      Thanks for the insight into that Taz.  I'm sure you are right - it makes sense, but when you have no idea what goes on, like me, it can all be very worrying.  That's why it's so great to have your support.

      Sending big hugs to you and hoping you are still improving.

      xxxxx Kathy

    • Kath_T
      Kath_T Tazchurch

      Posted

      Can I just ask, when can I, sensibly, drive again?  Do I have to wait 6 weeks?

      xxx Kathy

    • Tazchurch
      Tazchurch Kath_T

      Posted

      Depends on the policy of your insurance company. You must also be able to wear a seatbelt and perform an emergency stop, twist properly to park etc. Ask your insurer for their guidlines as most have a flexible policy and I know that some people met the guidlines and drove within a week
    • Kath_T
      Kath_T Tazchurch

      Posted

      Thanks Taz.  I will call them and find out.

      xxxxKathy

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