Hi about to try a little experiment on lichen planus and lichen sclorosis

Posted , 19 users are following.

I have lichen sclorosis and lichen planus of the vulva. I have had this for about 14 years. Dermovate is not the best control medication although it is just about all there is. My symptoms are at present full blown. My dermatologist is thinking oral steroids..I am not thinking that way at all. I have had a look at the 48 hour fast idea which is thought to reset the immune system. You have to do this one twice a year. I am going to give this a shot in September so anyone who wants to join me on this give me a shout cause I could do with the support. Also there is a new study on tumeric and oral lichen planus(mucus membranes) Apparently in clinical trials the oral lichen planus cleared in 6 weeks using a topical turmeric ointment which was specially prepared.However the intment did make the patients very sore during the 6 week process.  If the fasting does not work then I guess it is to the kitchen for me with a lot of tumeric root. You can find all of this on this net just put in 48 hour fast resets the immune system or tumeric heals oral lichen planus. We can but try, hope, and try again..maybe this can work.

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  • Posted

    Suzy Cohen is a good authority on the thyroid. she suggests minimum input for maximum return...as it could be that the precursors for  production of thyroxin are insufficient....what with soil depletion etc this makes sense to me...don't know how you feel....but if you are swinging between hypo and hyper it may not be that the body's production of thyroxin is failing you but rather ingredients needed are lacking.

    i found taking selenium in that lowish dose had a powerful effect. i only resort to thyroxin now if i'm feeling lazy have missed some selenium and need to catch up.

    its good to observe the benefits of minimal interventions. just a tad worried you said GP thought you're taking too many meds. what are you on? go easy...better to try just one supplement at a time and for a period...otherwise its difficult to observe the effects. hope that makes sense. don't overdo it!! brill LS dropping off.  what do you attribute that to? xx 

    • Posted

      Hi Marey. I am pretty sure it was the change to diet that caused the swinging thyroid problem. This had happened before when I went on a high protein diet. On the LS I think the thyroid levels affected it causing havoc..it was never really well under control in all the time I have had it. The honey heals the wounds/tears or splits fast and I swear the tissue feels a bit stronger..so maybe it counteracts the damage done by the dermovate which I believe has thinned the tissue causing it to split..thing is when the thyrod goes out I cannot really tell..
    • Posted

      Hey Marey and everyone on here. I am just reading a book I picked up from a charity shop. It is about Dr Max Gerson(dead now) He created a diet for disease. He noticed in the 1st and second world wars there was no salt..flour and a lack of meat and people were actually healthier. He treated skin Lupus through diet with some good success. Only a third through the book and it is thick. So diet may play a part in what ails us on here. So will read through and see if there are any pointers at all..no harm in trying..
    • Posted

      He  was a lovely man ... a real pioneer. His daughter lives on to guide people....she is very spritely during her lecture on u tube!

      just to mention if i may....healthy salt....for example pink himalayan or celtic salt ...is considered the way to go now and as being very important to the body...we have such deficiency of minerals. x 

  • Posted

    How interesting. I have never heard of that treatment for Lichen Sclerosis. I had surgery to remove some skin that was sore and this has helped a lot. Dermovate seems to be the only thing that works for this condition. My hospital consultant who is brilliant, advised a 3 month course of twice a week and then once a week to keep it topped up. Apart from the odd thrush symptoms, this has worked. Although, you wouldnt want to be using it long term. It will make the skin thin.  I have tried vitamin e oil, and even emu oil! I can recomend the emu oil for dryness. It works wonders. How do you use the tumeric?
    • Posted

      Heather, that's exactly what most of us thought for a long time, we were afraid of the skin=thinning side effect. But it became clear in Dr. Goldstein's presentation that we just need to keep the Derovate off perfectly healthy skin. LS skin, which is super thickened and 'keratinized' – mostly dead, with few living skin cells in it, needs the ultra potent ointment to penetrate way down to the 'basement' layer where the inflammatory cells are causing the trouble. Thinning this skin is actually part of the treatmnent strategy.

      So, the most we can expect to reduce the treatment is to once a week if it's really clear for a long time. It's ongoing maintenance.

    • Posted

      Thank you for that. Most informative. I had been quite worried about using it long term, but not now.
    • Posted

      Have not used the tumeric..yet..the study in india was on oral lichen planus..whiich it removed in 6 weeks. It was a topical application. I read someone is using honey and tumeric on oral lichen and I am keeing an eye on that one..I wonder if it stains the teeth..My lichen is calm right now..after months of hell..
  • Posted

    Hi sky.....just want to say my thoughts will be with you in your fast ahead.......as I said to marry in another post, I will be doing my own fast (for just a day this time as it's my first fast) on 6th Sept.  I have to do it whilst I have a few days off work, as my job entails standing for a lot of hours at a time and I'm not sure how I'll cope with fasting and standing.  Good luck to you
    • Posted

      Completely understand..having to go to work has held me up in doing this too..it's only cause I have got a few days off I can do it..let me know how you manage with the day...drink plenty of water and go to bed as early as you can..don't count sheep whatever you do..to many connotations with food. Good luck x
    • Posted

      classic sky! ...You make me hoot!! tee hee 

      yes great reminder of the need to drink filtered water, herbal and DE-TOX teas!! so peeps ...we've all got to run out and get some...ok they taste bitter but did you know that bitter tastes arise as we use too many anti-bacterial products....colgate toothpaste is finally being disapproved by the FDA...full of triclosans which destroy parts of our biome....everyone got the biome info from suzanne? ....so find a fluoride-free unsweetened bland paste to do our tooty pegs...then stuff will taste naturally sweeter ....and we'll get those subtle flutes that pervade foods...most of which have sweeter elements once sugar, processed salts, industrial seed oils and other junk foods...have i missed something....(?).....are ommitted.

      Gosh i'm having some fun here...all this info flowing out ....this seems to be a friendly and receptive part of the site!!....thanks sky...all your doing....down to your bravery in taking this initiative...love you...briliant plan! 

      hey g

      haha he heeeee!

      quite like marry....maybe its an omen! i never married...have rowed my own boat as a solo parent ...but have been soooooooo lucky to have had a special friend throughout!

      its great you found your way here....this is registration!! anyone who's anyone is coming on here to cheer on the fasters. to join in, or like you to committ to having a go on another date ...when you report in too - for full cheering on with ra ra skirts and silly hats...!!

      so your only outstanding duty g is to pull in someone else to this fast...who yer goin call?

      xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

    • Posted

      Bit of a problem with the pm service. It is taking longer and longer to open messages..it was like this last night..will try again later. Thanks you for the comments..but I pretty much figure that a group of very strong women are on this thread..and its great we are in touch. So heres to endurance for a mutual health cause...and lets see if there is any improvement using this approach..XX
    • Posted

      I drink lots of herbal teas Marey since I've quit milk, I love the taste, Regarding carbon water filters natural news has just done lab testing on these and if you have a Brita like I do basically they are crap sad So I'm looking for an alternative as after doing research last week discovered my water company adds flouride to our water frown 

       

    • Posted

      oh ***** thats bad...have wondered about fluoridation here too!

      i've got a german water filter...but i'm looking for a whole house one...if you hear of anything!

      well done for quitting milk....i only drink organic with occasional coffee....i may have located a source of unpasteurised milk....as well as cheese...may be that these are non allergenic. i mostly drink herbal teas too....stepping up my game with the de-tox teas ...bought a packet for this fast and have already fini'd it...so i'm pleased. great to have you on here...you are a fab resource!

      Moderator note: Expletive censored

    • Posted

      oh ***** ...didn't mention any brand names ...can't think what caused my reply to go for mod...speak soon...great to have you on here! x

      Moderator note: It was the swearing! smile Expletive censored

    • Posted

      Hi Marey

      In the UK "Pasteurising Milk" involves only heating it to 71.5 degrees centigrade for 15 seconds and then cooling it rapidly before bottling. The aim of this process is to kill any bacteria, such as YB, that may be in the milk. I test positive for TB antibodies because I was given unpasteurisied milk from my uncle's farm more than 60 years ago (before the current major concerns about TB in cattle in the UK). At that time the occasional cow would have the disease. Other bacteria that are killed are, e.g. E. coli, salmonella, listeria and campylobacter. So that is why unpasteurisied milk and cheeses are not recommended for people who have impaired immune systems, e.g. pregnant women. I cannot see that anything in the pateurising process will make milk or cheese any more allergenic than it is to you in the original (raw) state. What I mean is that if you are allergic to dairy products pasteurised, then you will be allergic to them unpasteurised. Organic milk and dairy products are one of the hew organic products that are noticeably different in content (I exclude flavour, chemicals and GM from that comment). This is because generally (in the UK at least) organic milk always comes from cows fed predominantly on grass. This increases the Omega 3 content of their milk. By the way hens that are fed on fish meal also lay eggs with a high Omega 3 content, but personally I think the eggs taste a bit fishy.

    • Posted

      Had a look at living water and remagnatising it after filtering..don't ask someone wrote a book and its benefits which I am not certain I believe in. It follows how water sort of works when it falls. Basically you need a metal teapot that fridge magnets would attach to..the ypu would place them on the teapot at opposing sides. Then you would get a funnel and swirl filtered water in(not certain filtering takes out fluride) and it would technically be remagnetised..then you drink it..its an odd idea. I believe that a website in the usa is selling attachments that do this anyway on your tap..but its all very new..I shall give it a whirl and hunt for metal teapots in charity shops...
    • Posted

      I don't know where you are Marey but I was able to check online that my area adds flouride to the water I'm in the UK.

      I've heard raw milk is suppose to be good for you, we have a dairy near us but it's goats milk I can live without milk having none hasn't bothered me I just drink almond or coconut milk.

      Look into reverse osmosis water filter thats for the whole house.

      I'm not sure about detox teas or if  they work, if you are just trying to cleanse your liver you can drink half a sqeezed lemon in warm water first thing in the morning about 30 minutes before you eat.

    • Posted

      I have seen something on the magnets before forget where though will look into this more, You can remove flouride by distilling your water but thats alot of hard work I need to do some more research.

       

    • Posted

      I saw something on magnetizing water, get a large container and glue small disc magnets 5 in a line down each side north facing in the direction of inside the container.  When you put water into the container, it will be magnetized in a few minutes
    • Posted

      fascinating TBF...thanks so much for this...how concerning that you had TB...oh hang on ...you test pos for Tb antibodies...well thats a good thing...congrats...so you didn't need a BCG?

      am following the efforts of people in the states to protect the grass fed cattle raising....how delighted i am to hear you conside our org milk is grass fed and so high in omega 3.

      i could do without milk..used to drink unsweetened organic soya milk....but there are health issues with soya...i do make up my own coconut milk but the intention was to use it to make kefir or yoghurt....i love it and great for probiotics but haven't kept up with making it.

      how do you feel about the 'organic' eggs from sainsburys? do we know the omega values? i do have a friend who runs pastured hens...so lovely...all fat and happy and healthy ..one sits on her lap...and two ducklings come in as well!!...so i can stock up when i go there but day to day...do you think uk labeeling is honest? i know there's a real prob in the states.

      it is really lovely to talk to you this is right up my street....! Thanks so much for being here!!

    • Posted

      yes sky got me looking too...!      thanks sky!

      I have been searching for a whole house water filter...have a pretty good german jug filter at mo...not bad against chlorine and fluoride but really want to get these chemicals and disrupting hormones out of the whole house...and i found something.....HOOOOray! may not be able to share the link here but PM me if you need it.

      so excited!  also a device which creates a vortex...so getting that at the same time...not keen on reverse osmosis as its dead water....but loved the trail that sky got me started on and love the home experimentation plan! all ab fab!! xxxxxxxxxxxxxxxxxxxxxxxxx

    • Posted

      Dear Alan Moderator...sorry for the expletives...quite unnecessary I must be more mindful ....and do appreciate being pulled up...and the smiley!!! eek
    • Posted

      so bad this fluoride waste product being added to our water on 'health ' grounds!

      thanks for lemon tip...i agree ...needed the reminder. I'll try to get back doing the lemon thing in the mornings...it is so lovely...as well as the de-tox teas...and the filtered water! Oh I do so appreciate this!! xxxxxxxx 

    • Posted

      Hi Marey

      If possible I don't shop in either Sainsbury or Tesco. Somehow I don't really like the taste of their products.

      I feel one chooses in the first place either to believe in something or someone or be sceptical of them and then if one is proved to have chosen wrong the one handles that as the next decision - does that makes sense?

      So where possible I purchase eggs and meat from someone I know who claims to grow or purchase all food within 7km of his farm. I have seen his farm and his stock seems healthy and happy. I choose to support him because I want to support the local community. If he proves to be lying about things then I will either shrug and accept that his produce is so excellent that I will continue to support him, or seek out someone else. He supplies one or two pretty famous restaurants and shops, so I think my assessment of his products is probably spot on.

      I have been conned by someone local claiming organic status for his poultry and he was prosecuted. But his products never tasted tha-a-a-t good.

      This is a good community here - I'm glad to be part of this discussion.

    • Posted

      thanks for the reminder T!

      yes you're right...we've had so many organic veg enterprises start but not continue in this area however i'll keep looking...

      may i just explore your 2nd sentence with you? didn't quite follow...is it that if, say, I make an error of judgement.... for example there's a communication problem with someone but i make the committment to try to work thro it in the belief that understanding will be possible...but it just isn't...i would take from this ...that... to put effort elsewhere is better in the first place?  is that the kind of thing you mean? struggling with...'the one handles'...reading carefully would you just give me a hand. thanks...very valuable comment...much appreciated!

      i've heard of what you're saying...in veg farmers market i asked whether produce was organic...liked this person...she said it was'nt but she did her best and didin't spray...but sprays the animal grazing ...so the fertiliser, tho organic material, would have chemicals in it...but that she declares this....whereas the other stall holder whilst claiming to be organic used to go out and spray at night!!! glad you're in this community too!

    • Posted

      I was trying to generalise and should have just said what I do.

      I decide that I like someone's approach to managing their produce and it tastes good. If I've been conned, then I shrug and move on to find someone else to believe in. But sometimes I am sceptical of someone's claims right from the first meeting and so I go on looking somewhere else. Personally I want to be someone who believes until proved otherwise. I don't want to be someone who is sceptical as a matter of rule.

    • Posted

      Thanks g30rg313 do you have a link ? Maybe you could inbox it to me if it's not to much trouble.

       

    • Posted

      hi kellie

      how did you get on with the fast? fancy another go next month? am going to do the sara gottfried programme to try to help my hormones plus more de-toxing phew! what link were you seeking? 

    • Posted

      Hi Marey

      No sorry I didn't fast with you, I'm trying to find a time when I can do it. I go to the gym 4-5 days a week so fasting isn't really ideal when you lift heavy weights and you need as much energy as possible. The link was just about the magnetizing water for flouride. I have a hormone balancing pack on my laptop if you want me to inbox it to you ?

    • Posted

      hi kellie

      I must have missed this. You mention a hormone balancing pack? That sounds amazing! Thank you for the other info. Would love to receive this...or have I already? Loved the Alan Christienson info !

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