Perimenopause and SEVERE joint pain - any one else??

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Hi

I am 50 and have been in perimenopause for some time. I just wanted to post here to see if anyone else has suffered extreme joint pain as a result of fluctuating estrogen.

Quick history: regular as clockwork from the age of 13 - up to and after the two pregnancies in my thirties.Then aged 47 I started to get very heavy and irregular periods. Then I went for six months with no period at all, then two very scant light periods in quick succession. I have had nothing now for two months but I do feel as if it might happen soon as sore boobs etc.

I have never had a hot flush. I do however have lots of other peri symptoms, including insomnia, heart palpitations and skipped beats, and a strange 'rushing' or whooshing feeling which starts in the abdomen which I think is an 'adrenal' surge. I also have other vague and odd symptoms, dry eyes and inside my nose, and a really vile taste in my mouth sometimes - I mean really vile, like a chemical taste, unrelated to anything I have eaten. I also have odd tingling skin sometimes, which I can only describe as feeling like 'cold' sunburn!

However, about the joint pain. Three months ago I literally woke up one morning with a sore left arm/elbow. Over a few days, the pain then moved into my shoulders, and I got really worried as if was incredibly painful, and showed no signs of going away, it just got worse and worse. It is worse in the morning when I wake up, I am as stiff as a board. It is on my mind 24/7. Doing normal things is almost impossible - I have problems carrying shopping, drying my hair,walking the dog, driving...everything seems to hurt . I have never suffered from arthritic pain, and I went to the doctor thinking I had some awful bone disease, or even polymyalgia. I was told I had nerve pain!! The GP was terrible and made me feel like a hypochondriac and it was all in my mind. I was told I had good range of movement, and no inflammation. But I am in agony, and i am not imagining it.I made the mistake of asking Dr.Google too, which is never a good idea as I scared myself half to death. I never even thought it could be related to hormones or menopause, as the pain was just SO bad and I had never heard of joint pain being a symptom.I mean I have read than meno can be bad for some women, and I expected hot flushes etc, but I didnt realise it meant pain like this.

Anyway - for the last few weeks I have been having worsening pain which has spread from left elbow and both shoulders, into left hip, both elbows and now my knees. All my joints are cracking and popping loudly and even my husband can hear the awful grating in my neck and my knees....I sound like a one man band as I go up and down the stairs!

I went In for my three yearly Cervical smear on Monday, and could hardly get up on the examining couch I was so stiff and sore. Womans health is dealt with by the Nurse Practitioners in our large practice (15 GP's) and when the NP saw my discomfort she asked me what was wrong. It turns out she has a real interest in womens health, and has been involved in HRT trials and research for many years. She informed me that my symptoms all point to fluctuating estrogen, and possible thyroid involvement. She told me a load of stuff about estrogen and cartilage, dry mucosa etc, the details of which I can't remember now but which made so much sense when she explained it - even down to the foul taste and tingling skin I have also experienced on and off for months which are both known side effects of estrogen surge as the ovaries go a bit haywire. Asmall percentage of women are very receptive to estrogen fluctuations which involve cartilage, which mainly manifest as abnormally severe joint pain/menopausal arthritis but it is not an 'obvious' symptom of perimenopause.

I asked why the GP was no help, and she just raised her eyebrows when I told her which male GP it was, and told me to make another appointment as soon as possible with a specific GP (who must be more knowledgeable about womens health.) Going in tomorrow to see her.

I can't do HRT as I have a heart condition, but maybe I can do estrogen cream, or phytoestrogen/soy.) It could last for a long time I guess until I come out the other side !

So i have not yet been diagnosed, but it sounds like it could be caused by estrogen. Sorry this has been so long....but anyone else out there feel the same way I do???

Lesley.

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  • Posted

    Leslie and all the Ladies, I have to share this with you because I think this is sensational. At least it helped me - 48 HOURS WITH NO JOINT PAIN! As you know, I am a bit younger than most of you, 43, and I have had such sever pains that I had been taken into hospital, like you I did not know what was happening to me until 'hormonal' thing was diagnosed. Since then I have been crawling around in pain, trying to get on with my life. Dieting did help (see my previous comment) and probably the low dose of HRT they gave me. Anyway, to the point. I popped into Holland & Barrats ( a healthy stuff shop for those outside UK) at lunchtime to see what vitamins I could get to help with the body pain. A lady there showed me a Magnesium spray ( I first laughed) as she was trying to explain to me about minerals and the balance of calcium, magnesium, zink, iron in the body (Me- nil point in chemistry). Apparrently, for calcium to be absorbed by your bones, you need magnesium (those who are more knowledgeable please don't laugh) othrwise calcium is rejected and hence the trouble.The spray can be used all over the body and it has no side effects - it's just magnesium from the sea, and water, so can be used on kids, and anyone - harmless. Because I was in so much pain (strguggled to hold a pen that day at work) I took it. The guidance on it said 'if you are low in magnesium, you will have some tingling when you use it first'. I sprayed my hands, and felt like i've touched stinging nettles. I came home, and kept on spraying all over my body, as the instruction said - It cannon get worse, right? And today, having been soaking myself in magnesium, first time in 3 months (since I started collapsing), I feel almost like I used to - when there is no pain. It feels strange. I'm not sure it works for all, but Ladies, definitely worth trying - even if it helps only some of you some of the times, a tiny bit! I thought I must share this.Let me know how you get on. Kat
    • Posted

      Hi Kat, I have tried the magnesium spray and it definitely helps to relax my sore jaw and face. I often put it on before bed. I started taking a magnesium supplement also and within a week the physio said that my knotted muscles were much looser. I have also found Epsom salt baths really helpful (magnesium again). So pleased you have found something that works. I'm sure it makes a difference. Xx
    • Posted

      Thanks, Mooma and Kat smile  I will start with the Epson salt baths, and than move on with the spray, if needed.  I have being feeling much better, but I noticed I am more sensitive than usual for pain in all ways.  I had to take a vaccine the other day, and I could barely move my arm!!!! XXX
    • Posted

      Hi Kat I am going to try this thanks for the info

       

  • Posted

    Hi Leslie,

    I'm so thrilled to read about other women having sudden onset of joint pain, and it's not just me going crazy.

    I have noticed in the past month that almost every joint in my body aching, however more intense in my arm,neck and shoulders.

    I also have a 40 minute drive to work and it's all I can do not to cry trying yo get out of the car and stand up straight with the ache in my hips!!

    I have been sleeping with an ice pack on my shoulder, it jelos a bit with inflamation, but the moment I stumble otta bed it all begins again.

    I'm going to try some natural remedies first and sed if that eases thr pain. I also want to join yoga and ser how that might help 😕

    I hope we all find comfort during this trying time

    Kim

  • Posted

    Hello all

    Millette...I am so happy you found this board, and could relate to my story and the story of others!  I remember the first time I realised what I had was menopause related...I was SO relieved as I really thought I had some awful, undiagnosed illness.  I had never had an ache or a pain, and suddenly I felt like a 90 year old cripple.   

    The 'whooshing' thing is horrendous and very scary. Apparently it is something to do with the adrenal glands, and the release of cortisol. HORMONES again!!  I would be lying in my bed almost asleep...and suddenly be jolted awake by this 'whoosh' feeling that seemed to spread out in my chest and abdomen.  So hard to explain, like a surge of something, or like a little explosion going off inside me.  Weird.  I also would get a pressure feling in my head, and sometimes (dont laugh) almost a feeling like my whole body was vibrating, or humming...like a car engine ticking over.  

    Be assured the whooshy things doesnt last long!

    Ladies please be careful about taking calcium supplements.  Yes, we have to look after our bones (anyone else getting a little hump on the back of their neck?  Im starting to look like an old woman!)  but we haveto be careful of our hearts, and deposits/build up in our arteries.  One babyBel, and one yogurt a day is supposed to be enough to keep our levels up without supplements.

    I have been bathing in Epsom salts for a couple of years now, and also use Low Salt, which is potassium instead of sodium.  But we have to be careful of screwing up our electrolyte balance - again, can cause heart irregularities. 

    Keep well all xx        

    • Posted

      Lesley and everyone, wanted to ask you if any of you have heard or tried DHEA? Apparently it is not available in UK, but available online ( scary to buy online though). has any of you tried it? I read it had bad side effects but not as bad as HRT as it contains the 'elementary hormone' whatever all hormones are made of. (Sorry for being so basic). Kat
    • Posted

      Hi Kat,

      DHEA is the hormone which counterbalances Cortisol (the stress hormone) I posted about this recently; it could be that we have too much cortisol running around our bodies because we are low in estrogen which also helps keep cortisol in check. Having read up about it I was put off by the fact that it's a hormone and basically I'd be doing a bit of home-HRT if I decided to take it! As I don't want to take synthetic hormones I've decided to reduce the cortisol naturally. You can do this with slow breathing exercises, meditation and yoga.

    • Posted

      I have not heard about DHEA, but I do know that Cortisol is directly linked with stress and too much of it can lead to weight gain, especially in the abdomen. Anyone else experiencing that? No matter what I do for exercise, I cannot reduce my abdominal region! And every time I eat anything, I bloat. I eat a lot of yogurt to help with digestion, however, it seems everything causes discomfort. I am open to suggestions and comments about personal victories!!
    • Posted

      Hi, I have found that cutting out sugar and refined carbs really helps with tummy area. Xx
    • Posted

      Yes, of course, the 2 most difficult to lose when you are stressed! I love, love, love to bake and it is a "recipe" for disaster when I do bake!!  I sample all of the goodies and then hate myself when my abdomen swells bigger!  Another thing I have to battle is my complete addiction to root beer! As far as sodas go, it is the only one I really drink. BUT there is a lot of sugar...It is a battle for me and I have to be really mindful about what I am eating and drinking. With the 4th of July holiday, we did have a lot of junky food. Time to get back on track.

      Thanks and best to you-

      Millette

    • Posted

      Haha. Yes, I also love to bake but it is too tempting! Hope you enjoyed you 4th July celebrations. Xx
    • Posted

      We did enjoy the 4th, thank you, although it came on the heels of a tornado just a few hundred yards within our home. Lots of damage and no electric for 3 days. But, we did hear that 2 people died within about 50-60 miles of our home, so I will be grateful we got through as easily as we did. 

      About baking: Why is it that what is sooooo bad for us is sooooo tasty?!?!  Some veggies I cannot stand the taste of!!  It's all backwards!  hahaha! 

      Have a great day!  :D

    • Posted

      Glad you are all safe but so sorry to hear about the loss of life. Must be so scary. Xx
  • Posted

    Thank you all so much - I really thought it was just me being paranoid! I will definitely try the magnesium for awful pain in my left arm/hand/shoulder. Finding it so hard to reach up to cupboards, hold the kettle and type at the moment, anythinbg worth a try right! Thanks again.

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