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Polymyalgia Rheumatica and GCA

Also known as GCA - Giant Cell Arteritis, Temporal Arteritis

Can you help? Discussions needing a reply

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  • How to curb Appetite

    That husband of mine again! Pred liable to increae weight - also increases appetite. Blood glucose levels up also. I've told him that the narrow breadsticks may be low in carbs and sugar - but not if he keeps munching them. He's gone up to the back bedroom where the TV is - no munchies up …

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  • So PMR sufferers usually have swelling in arms and legs?

    Hi Everyone. I’ve been reading through this site for a few weeks since my GP gave me a “possible” diagnosis of PMR. I will have my first Rhemy appointment later this week and am hoping to get some firm, or clearer idea of what is wrong. I’m a healthy 56 year old woman, usually active by swimming, …

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  • Reducing too fast?

    I just want to let people out there know that my method was to reduce down from 15mg as quickly as possible as this is not generally well regarded. However it has worked fine for me, I very soon got down to 5mg and I guess within less than a year to 1mg. For a while I have been on about 1/2mg and …

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  • PMR and RA treatment question

    I have PMR since November 2015 and was slowly reducing and got to 3mg, when I started having problems with knuckle joints, pain, weakness and swelling.  About 3 weeks ago I saw Rheumi and he suggested not to reduce pred any more and also gave me some ointment for inflammation/pain. It helped a …

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  • Pred and Blood Glucose "Spikes"

    This is puzzling husband (and I) as the word "spike" implies short period of time with low or normal levels either side - so how significant is a spike? If a spike occurs between testing then there's no record of it so one could go for days  unaware that spikes are/were occurring.

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  • Turmeric, Bicarb and Pred Reduction

    After reading ‘abnormal’ on my blood test results I was a bit concerned about being anaemic but Eileen pointed out that this is fairly normal with our condition. Karenjanizaz gave it a name ‘anaemia of chronic disease’ (also known as anaemia of inflammation) and pointed out that turmeric is …

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  • POLYMYALGIA AND RELAPSES

    I was diagnosed with PMR Dec 2015 with devastating symptoms however, I was treated promptly. Each time I reduce to less than 5mg of prednisone, I relapse.  The pain and stiffness targeted my R knee, and then the L knee, which left me unable to move that limb. I  immediately took a loading …

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  • Thankyou

    Thankyou so much to everyone who replied to my message. I now feel much better emotionally. I find it hard to slow down having been a very active person. I used to run 5-6 miles, 10 min miles, 3 times a week and think nothing of it. I can now only manage a slow 3 mile run once a week but I keep …

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  • Physiotherapy and PMR

    I wonder if anyone would care to share experiences, insight, and knowledge re physio therapy and PMR. For example, has a TENS machine used on acupressure points helped to reduce inflammation? Ultrasound, yoga, Alexander method? Any and all modalities would count. Thank you for your wonderful brains …

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  • Still winded.

    I have had PMR for just under 2 years.  I started at 20mg Pred know off Pred completely.  I tapered off .5 to 1 mg a month.   I still have very little energy in the morning and feel out of breath a bit.  As the day goes on I feel more normal.   Wondering if this is PMR …

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  • THE TWO YEAR PMR MYTH

    Recently, I started  emailing my GP information derived from this site. He thanked me for being a perfect patient.  We help each other.  Today I thought to look at some of the sites recommended by  EmisModerator, seven years ago.  I chose Patient Plus articles aimed at …

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  • Baking Soda for PMR

    I am wondering if anyone has taken baking soda (bicarbonate of soda) while taking prednisone. I am willing to try this if it won't kill me. I have osteoporosis and don't want to take a medication for that. I am doing everything I can to build my bones, calcium, D3, K2, dark greens and …

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  • health insurance

    Good morning. Does anyone know any companies that offer healthcare plan for people with polymyalgia please as Ive called a few and they won't cover me. I am based in the uk but willing to take out global insurance to get the cover. Thank you

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  • New to this Crazy journey!

    Recently been diagnosed w/pmr. Was put on prednisone (much to my dismay). Want to get off it asap. Started @15mg. 1 month ago. Unfortunately, it helped within hours. I was blown away! However, I want to stop soon so I've gone from 15 to 12.5 to 10 then to 7.5 within 1st month. That's …

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  • injections

    I have lost a lot volume in my face and a plastic surgeon suggested I get sculptra injections. This will add volume.  Reading about says people with autoimmunes should not get this. He says that is not true.  Anybody know anything about this?  Thank you

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  • Dosage question

    I’ve been on 20mg prednisone for 5 weeks. I have gone from bedridden to almost normal! Still experiencing some pain and range of motion issues in my upper arm/shoulders. Rheumy wants me to start to taper. I’m wondering if I should wait until shoulder pain is gone to start a taper? Also starting pt …

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  • Depression

    I was diagnosed with PMR in April this year. Started on 20mgs Prednisolone. Wonder drug took the symptoms away. Now alternating 10mgs 8.5 mgs every other day. Apart from stiff neck in morning, no symptoms. Unfortunately I am feeling so low and my husband says I am constantly angry and snappy. Is …

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  • Just diagnosed

    I was just diagnosed with PMR a week ago.  I was put on 20mg and started taking that 3 days ago.  How long does it take for the steroids to start working, and once they do start to work does the pain ever go away completely? 

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  • Pred, Blood Glucose and Meter Readings

    Husband saw Diabetes Specialist Nurse at health centre a week ago when he'd been on 40mg pred pd for about 6wks but she didn't issue a meter and said she would follow-up in 3weeks. However saw GP shortly after re pred dosage (consultant had died) and she issued a meter and prescription for …

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  • Follow Up to "New to PMR" Type 1 Diabetic

    Hi All, and thanks for all the wonderful insight, some gained by your pain and suffering :-(.  My first trip to the Rhuemy got me on 800 mg of ibuprofen 3 times per day because of the diabetes and due to the fact that I was only able to see the Physicians Assistant and she would not prescribe …

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  • Cutting 1mg pills

    As long as the 1mg pred pills are uncoated, it is very easy to make a quarter to help with a slow drop.  I use a pill cutter to make a half which comes out perfectly, then use a sharp knife to cut in quarters.  I do a few at once and use them for a few days to see if my body is ready to …

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  • Hip pain

    Hi. I've been diagnosed with PMR since sept 2016. Started at 15 mg prednisilone now down to 6 mg. Over the last few months have had terrible pain in one hip and sciatica. I have mild arthritis in that hip. I am having private osteopath treatment Dr referring me for HSBC physio but said it …

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  • flare or old age

    just a quicke   question   still after 7 years still asking quetions .LOL ..   would it be a flare if i only have pain  early morning  then nothing throught  the day.  or just old age.76.  cannot decide weather to up my pred or not,  again& …

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  • Concern over initial reduction when still symptomatic

    Having been diagnosed recently I have had 4 weeks on 15mg pred; initially great improvement but then still significant morning pain esp shoulders. S/B rheumatologist who suggested to increase to 20mg for 2 weeks then reduce to 15. Spoke to him today as the 2 weeks is up, about my concern that I …

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  • After 8 years of PMR I have relapsed AGAIN

    I Flared up again in 09/2017. I have never been down to zero on Prednisone dose, but I was comfortable at 5 mg for years. My doctor insisted that I tapered to zero every time I increased my dosage for relapse. I have been up and down since last September. I am currently at 7 mg, but I haven't …

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  • To much pred for my size?

    I'm so glad I joined this forum - it's so informative and people are so helpful!  I was recently diagnosed with PMR and prescribed 15mg pred. I queried this at the time with the GP because I'm petite (barely 5ft and approx 45kg) he laughed and said that children from age 12 were …

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  • Initial Reduction from40mg pd Pred (PMR+GCA)

    Seemed there could be a substantial delay re Rh Dept appoint ment for husband because of, as mentioned previously, death of Rh. Consultant. Saw GP who prescribed drop from 40 to 35 pd for two weeks then 30pd for two weeks and if no apparent problems and feel comfortable then request bloods. Does …

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  • PMR and Sjogren's Syndrome

    I was recently told that its extremely rare for a person to have both Sjogren's syndrome and PMR at the same time. Can anyone confirm this as true or false?

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  • Does anyone understand full blood count results

    My GP surgery have now made some of our records available on-line. I was looking at the results of the tests done in April this year when I was diagnosed with PMR.. Under Full Blood Count three of the results were flagged as abnormal but the GP hasn't  said anything to me. I cannot get a …

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  • breathlessness and steroids

    Started on 60mg 2 weeks ago is now reduce d to 50mg for another 2 week eels. I have suspected giant cell arteritis. My inflammation levels were off the scale ...the lab rang me at 23.25 telling me dangerously high. I am now quite breathless on any exertion. Should I be concerned. Many thanks

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  • Appointment at rheumatology clinic went really well!

    I was quite worried about this appointment as the Consultant had written to my GP telling him I would be reducing pred by 1mg per month and he was going to put me on Methotrexate. After going through dozens of posts from people on this site I couldn't find a good reason why I should put myself …

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