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  • Posted

    That was an very useful and informative  survey Paula, I do hope some one takes up the baton and runs with it- perhaps to get extra funding for research into the condition. As a step forward you have done a great job. Thank you
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  • Posted

    Hi,

    I just want to thank everyone who participated in the survey. There were 69 participants which I think is amazing. I also want to let you know that the survey won't be here indefinitely because there is a monthly charge. I was thinking of leaving it for about a month or so, depending on when my next charges are. So, if you want to

    copy this information anywhere for yourself or others, I encourage you to do so. Also, encourage anyone who is interested to view this information before it disappears.

    Thanks,

    Paula

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  • Posted

    August 11th is the last day the survey link will be working. So, if you want to copy the results. Now is the time. 
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  • Posted

    Hi Paula, are you intending to use these results yourself?  I have a LS book in progress and would love to reference some of your work, but dont want to steal your thunder smile thanks, Virginia

     

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    • Posted

      Hi, how is that book coming along? I could sure use a book on this. I know more about the condition than my doctor did...but I need answers! It’s painful and the clobetasol proprionate doesn’t work anymore...it even stings when I try it now, but it used to reduce the scarring. 

      Please let me know if it’s published, what it’s called, where I can get it.

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