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jemstone49 jemstone49

Headache for 5 weeks-HELP ME!!!!!!!

Hello readers,

I am a 12 and a half year old girl. By the way, I'm not pregnant, and haven't started my periods yet. I have many friends, don't feel too stressed and I'm a high achiever. I came home from school on the 2nd of May with a banging headache. I tend to get headaches a lot anyway so I thought it was one of those that went after taking Paracetamol. I have a family history of migraines and my mum is on a Beta-blocker daily, which got rid of them!

Right, I will list my long list of symptoms. This headache has lasted 5 weeks. It is continuous and rarely goes. It is there when I wake up in the morning and also when I go to bed! For the first half of the 5 weeks it was like a band around the top of my head, however, now, it is mainly at the back. I feel like there is a lead weight tied to my skull. It is also worse with reading and loud noises. There are also other symptoms:

- I struggle to get to sleep and recently, it has woken me up at  about 5am and sometimes up to 3 times in one night .

- Also, I have felt sick on and off for much of the time but have tried   to eat a normal diet.

- Also, I have changed temperature a lot and go suddenly from  freezing cold to boiling hot and sweating.

To get rid of these symptoms, I have been to the GP 5 times. They told me it was a virus the first couple of times and that I should take Calpol, Iburprofen and Paracetamol. Later on, I was told to try Co-codamol, which gave me bad side affects. The second to last time I went, I got a referral to CDU (Clinical Decision Unit). The last time we went, my referral was sped up. 

I went to CDU last Wednesday, where they did neurology tests, like reflexes. Then we had to go up to the eye hospital and they looked at the back of my eye- retina, optic nerve and so on. Everything was OK. I went back this week and they took 2 blood samples, which were fine and they did an  MRI scan, which was fine.

I was told to avoid taking anything, so I have. I found headache cooling strips helpful for getting to sleep. I have also been to the opticians and all was OK. I have been doing a headache diary as well.

I have had 4 weeks off school and can't read without it getting worse. I've missed the end year tests. I can't go on like this! I tried school and everything got worse. We've rung 111 twice and they weren't particularly helpful. I've also been to 2 pharmacists. I need some help.

Thank you for reading, if you managed to last that long. If anyone out there has similar symptoms or is a health professional or knows anything, please reply.


With regards, Jemma (JEMSTONE49)

Help me!!!!!!!!!!!!!!!!!!

332 Replies

  • personal20 personal20 jemstone49

    Hi Jemma,

    Well, it seems like you have done quite a lot already to find the cause of your headaches.  But even though you had an MRI and other tests still you could have a problem and they just havent found it yet.  You need something to take away the pain, then something to stop getting it in the first place.

    As this has been going on so long, your Dr needs to refer you to a neurologist who will make an action plan and give you meds to deal with it.  Sometimes stress can aggravate the condition, so if you are stressed from school or something else, try to reduce this as much as you can.

    If your GP wont refer you, get another Dr to see you at the surgery.

    Good luck Jemma and best wishes.

    Take care

    Let us know how you get on

    • jemstone49 jemstone49 personal20

      do you know what its like to have pain every single minute of the day for 9 months and for your family to think it is in your head and for the people you love to give up and to paste a smile and to say your fine when it hurts to stand up when all you want is to cry and for school to think it is anxiety about school when the pain in your head makes you feel like crying and having a headache all the time and no medication working? why does no one understand? why do teenagers bully me because i have a chronic illness?

      bad day

    • personal20 personal20 jemstone49

      Hi jemma,

      Sorry you are having such a bad day and getting so much negativity thrown at you.

      It's tough when people around you don't believe you when you are screaming out to them how bad you are feeling.

      I can't make them believe you, but I believe you as I am a fellow sufferer and I have had take months off work because of different migraine/headache conditions, so believe me I KNOW what you are going through.

      Remind me again please what meds you are taking and maybe I can suggest something else.

      As for other teens at school, they are aways attracted to people who are different in some way and make fun or physically bully you.

      I know everything is tough Jemma, life in general can be tough at times, but I believe you will look back at all this one day as being a distant memory, when you are having a great life, filled with love and hope for the future.

      Try to find it inside of you to rise above all the rubbish that is going on right now and dont miss any of your appointments.  Explain to the drs and therapists just how bad you feel.

      Hang in there Jemma, I BELIEVE you and I BELIEVE you can get through this!

      Take care and best wishes.

      Let me know the meds again please


    • jemstone49 jemstone49 personal20

      propranalol which is keeping migraines at bay pretty well only 6 a month now and they mainly come at weekends

      cocodamol and metoclopramide if i get a migraines, i only use them if i am not at home for the placebo affect otherwise i just lie down

      vitamin d supplements


    • personal20 personal20 jemstone49

      The Cocodamol might me making the headaches worse.  I would suggest to your dr you try Zolmitriptan when you get bad headaches.  It's like a nasal spray. I would also suggest Gabapentin too.  I have checked and at your age you can take them both,  The dr should work out what dosage to give you.

      This should be investigated properly as its disrupting your life so much.  I would also suggest if you are able to see the specialist Dr in London, then he can help you so much more as he is a specialist in the headache field,  I see him and his team and they are great

    • jemstone49 jemstone49 personal20

      i never use co-codamol i last used over 3 months ago

      i just have 1 headache all the time and then i get migraines on top

      i haven't been pain free for 9 months

      it has been diagnosed as chronic pain

      does that change what you said previously?

      i am seeing pain specialist psychologist but now i go to pain support group instead, good old NHS, which i hate as it causing me migraines because it is the same time as dinner time!

    • personal20 personal20 jemstone49

      No, it doesn't change what I said Jemma.  Suggest the meds I have mentioned and see what they say.

      But clearly the plans they have put on place for you arent working because of your poor quality of life.

      Yes, if you skip meals then this will aggravate your headaches.

      Are you sleeping better now, because if thats disturbed too, it will cause problems.

      See if they can change your appointment times so it doesnt clash with your meal times

    • jemstone49 jemstone49 personal20

      would the medication help migraines? as i can cope with them and no medication will touch the headaches according to ALL medication professionals.

      my life isn't that bad, i don't think, this is just a one off as i am going back to school from 10.45 till 3.10 now, except today

      no i think sleep causes all of this are there any tablets you can recommend as i am seeing my consultant Wednesday and we are soooo lucky to see him. i get about 2 hours per night, i don't sleep because of pain and lack of sleep causes pain!

      it isn't an appointment, it is a support group after school soo the school doesn't get funny.

    • personal20 personal20 jemstone49

      did you try putting the lavender oil on your pillow?  Also you can get Chamomile drinks to help you sleep.  Ask the consultant about Melatonin and insist how badly your sleep is affected.  Once you get sleeping better everything will be better.

      If you are in so much pain at night then  I do suggested taking the Cocodamol as this will help you sleep also.

      But do try the herbal stuff as I think they will help.

      Glad you are doing some school tomorrow

    • jemstone49 jemstone49 personal20


      i tried it and nearly vomited!

      i tried melatonin and got a rash and it didn't work!

      i do school everyday but today i had a migraine through the night sad

      i'll try co- codamol however i am aware you cannnot take this alot through fear of addiction, is there anything else?

    • personal20 personal20 jemstone49

      You can try valerian from holland and barrett.  You like the horlicks I seem to remember which is good at night.

      try not to eat too close to bedtime and suggest the Gabapentin to control headaches and use the Zolmitriptan nasal spray for when you get a migraine, dont exceed 2 doses in 24 hours though

    • jemstone49 jemstone49

      oh dear it says over 18

      where is it you found gabapentin? was good for headaches as online it says epilepsy and my consultant has a habit of poo pooing things like that if it doesn't directly say it and it is just a grudge


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