Skip to content

Infectious Mononucleosis

Also known as Glandular Fever

All discussions in this group

Next
  • My GF experience

    Hi guys. My name is Mel. I just want to share my experience of glandular fever with you all and see if anyone has had a similar experience. My first episode of GF was back when I were about 19 years old. I am now 28. I remember being bed ridden for almost two months! It was horrible. But last year …

    Last reply
  • Mono Rash .... round two.

    I posted about a month ago about a rash I was experiencing. Full body red, sore itchy glandular fever rash, that was NOT triggered by antibiotics. It started clearing about 3 weeks ago and has been completely gone for 2 weeks! No itch! I felt normal apart from the fatigue,  but I’d rather …

    Last reply
  • Relapse

    Hi everyone how are you all?? Thought id post again as i feel abit fed up im now in month 5 had a good couple of weeks..... however over the last 10 days i seem to be getting some symptoms flaring back up so scared that this is all coming back & ill have to start from square 1 i think ive …

    Last reply
  • Glandular fever Recurring symptoms

    Hi, I will try to be brief.... After feeling absolutely horrendous for a week, I was sent to the hospital for blood tests and was positively diagnosed with glandular fever on 14th April, the symptoms gradually got better over the course of 2 weeks until only the fatigue remained. It is now the 28 …

    Last reply
  • Dealing with a relapse, can anyone relate?

    Hello everyone, haven't been the most active on here but read other people's updates almost daily. I started feeling ill last year in August, when we were in the middle of a heat wave and had wildfires polluting our air. I had been pushing really hard with my climbing hobby. I thought I had …

    Last reply
  • One year Anniversary of the Mono Invasion

    Hey all!  I thought today would be a good day to check in.  It's been one year to the day that I was driving and almost fainted in my car- which then started me on this long road ahead.   Some things I've experienced:  The first 3-4 months are by far the worse.   …

    Last reply
  • My Mono story, is the worst still to come?

    Hi all,  Exactly 2 weeks I went to the doctor with a fever of 104 and severe chest pain when breathing and when he examined me found that I had swollen tonsils with white streaks and swollen glands in the neck. They were very good that they did a strep test that came back negative and a …

    Last reply
  • 13 Months on

    Hello people another monthly update about this terrible condition. Im nearly fully okay touch wood, however the virus attacked my thyroid rendering it under active. Im now on 100mcg of levothyroxine which I had to get used to. Glandular fever doesn't discriminate, whether your fat thin rich …

    Last reply
  • Newly diagnosed with EBV

    Hello all, I have been struggling with this since past 6-8 weeks. It all started with severe bloating followed by unexplained fatigue/tiredness. The bloating episode lasted for about 3 weeks and resolved on its own. After about 4 weeks I had a really good week and decided to go for a 25km hike ( …

    Last reply
  • My experience and encouragement for others

    I know all experiences of GF are very different and so what might be the case for me might not be for you. However, a lot of people on here have suffered for years which can be extremely daunting as a new victim of the virus and I just want to throw some positive in there. I was diagnosed mid April …

    Last reply
  • This is stupid

    Ive had problems for 27 months now. Its f*****g unfair. Everybodys whining about few months or a year of bad symptoms, (most of which were much milder than I had) like they cant go on anymore and are on their wits ends. I dont want to disregard anyones struggling, I know its hard, but its f*****g …

    Last reply
  • High monocytes for months , is it normal?

    I was diagnosed with mono almost 5 months ago, my CBC showed monocytes were high at 12.000 at that time, I did a CBC this month and it stills high but at 6.000 . Can you guys tell me how was your monocytes during the months of mononucleosis ? Please I need help.

    Last reply
  • Recurring glandular fever / possible chronic fatigue syndrome

    Hi everyone. I was wondering if there was anyone else who has had a similar experience as me  I was diagnosed with glandular fever aged 14 and spent around a month severely ill and pushed myself to get back to school/live a normal life again. Because I never allowed my body to recover, I spent …

    Last reply
  • Glandular fever - is this normal

    Me again Had a completely unprovoked panic attack last week which has sent me on a major relapse. I am 4.5 months into this now and I think this is the worst I’ve felt. My body feels like low on energy it sort of feels like I’m not even in my body. I get random shortages of breath and just feel …

    Last reply
  • Daily Headaches

    Just wanted to check if anyone suffers from daily headaches? I'm about 4 and a half months in of having glandular fever. I'm back at work now on a phased return a d socialising to some extent. My main symptons now is this constant pressure feeling in my head and as the day passes by it …

    Last reply
  • Full body mono rash - help!

    Long post but PLEASE read. I need help. I’m on day 23 (TWENTY THREE) of my mono rash. I was  sick around the end of May/early June with what I thought was just a cold, sore throat (but, I was really sick - stiff neck, swollen glands, no voice) which was later confirmed to be glandular fever. …

    Last reply
  • Ebv tonsillitis in toddler

    My 2.8 year old son has EBV ( mononucleosis)....He has a very swollen tonsils with some pus, difficulty breathing through his nose and unable to sleep, sleep apnea,fever, puffy eyes, not eating,all his lymph glands are swollen... He is struggling... Anyone with similar experience?? Please share …

    Last reply
  • mrw mrw

    Mono at 10 months, keeps getting worse

    Hello,  This past February I got VERY sick, continued going to the doctor throughout the spring until they finally tested for mono, which came back positive.  It started with post-nasal drip, sore throat, hoarse voice, glandular swelling and pain, fever, fatigue, constipation, blurry …

    Last reply
  • Lymph nodes

    Hi, Sorry, me again!  So, I’m now in month 7 of GF but I’ve noticed I’ve got a lot more swollen lymph nodes in my neck then previously? Has anyone else had this? It’s starting to worry me how many lumps and bumps I can feel into my neck going into my collar bone area!  Thanks Kelly

    Last reply
  • 5 months in and terrible nausea

    It's been 5 months since I was diagnosed with mono and I've had various symptoms since then. Headaches, sore throat, tender lymph nodes (not swollen though), high temperature (only the first week) and fatigue. Now there's this absolutely terrible nausea and it's not letting me eat …

    Last reply
  • 10 Months Update

    Hey all.  Wanted to give an update at what it's like 10 months in with Mono.   So much has happened this last month.  I had an inconclusive Lyme test.  First test was positive but the Western Blot was negative.  So I went to another specialist- an ND who specializes in …

    Last reply
  • Heavy metals and glandular fever

    Hi all Just wanted to share some info that might be relevant or helpful. I'm eleven months in and although I'm feeling soooo much better, I'd say I'm generally still only at 80% of my pre glandular fever capacity with fatigue, anxiety,  muscle aches and dizziness still being …

    Last reply
  • Month 25

    25 months ago I started to feel bad. I didnt rest and after half a year I was completely wiped out. Now its almost 2 years since that and I am still only 30% functional. I am afraid I pushed too much during the whole illness always trying to jump back to normal life and that if I didnt I would be …

    Last reply
  • Feeling better first days of cold

    Hello, Im 2 years into the illness and noticed a very strange thing happening. When I get cold, the first day or so I feel normal. I have the cold symptoms but I feel normal. After the cold the symptoms get worse for a while though. Have any one experienced this? I have read that lot of CFS …

    Last reply
  • Fibro

    Hi me again does any one seem to know anything about fibromyalgia?? Im really starting to think this is what GF has lead too?? So scared as this is long term?? It sounds very similar to what im experciencing?? Anyone else felt similar?? I feel so down 😞

    Last reply
  • Sweat smells strange

    Does anyone have different odor to sweat since having mono? Its kind of sharp odour, not necessarily foul smell. I can almost feel the infection from it. 

    Last reply
  • Right sided pain mono?

    Recently I have right sided pain under the ribs. It’s kind of sore pain. Don’t know if it’s my gallbladder or the gut. I have slight nausea, diarrhea and a bit heartburn.  Anyone had something similar during mono?

    Last reply
  • Does anyone find that when they get sick, they REALLY get sick?

    Hi,  I was diagnosed w mono 8 months ago and I was acutely sick for two months. Since then when I get sick, for example right now I have a stomach thing and NOW I always get a fever with it. I used to never get fevers. And when I get sick, I just feel much more sick than I used to. Is this …

    Last reply
  • 18months in.....

    Hi all, im 18 months in and recovered loads by the year mark. I would say from January I'm nearly normal but these last two weeks have been a bit hard... Just feel breathless and exhausted sometimes...I know I do a lot and doing so much better this year, but it's hard sometimes when it' …

    Last reply
  • Long term consequences of Glandular Fever

    I'm a twenty three year old woman. I have been sick with Glandular Fever for almost four months. All symptoms still present with no improvement, sore throat, swollen glands, fatigue and muscle pain. I got a diagnosis quickly as my best friend had Glandular Fever so I knew to ask for the blood …

    Last reply
  • Surviving Glandular fever...

    I thought I would start a discussion, I have written about my experience in a few other threads but wanted to create my own in the hopes it offers people hope and comfort because in the darkest times it's what I needed. I started to feel very unwell May 2016, back and forth to the doctors but …

    Last reply
  • Glandular fever - when will this end?

    I was diagnosed beginning of April, after fallen ill at the start of March. Since April I have stopped playing football, going to the gym and even playing video games! I cut down my hours at work and have been resting as much as I can.  There’s times where I do feel slightly better but then …

    Last reply
  • My glandular fever story - 'severe throat pain and tonsillitis'

    I've spent so much time googling Glandular Fever (GF) recently I thought it might help to add my story! First of all I’m 25, female and have suffered from throat infections / tonsillitis in the past so am no stranger to muddling through the salt water / aspirin gargling / manuka honey and lemon …

    Last reply
Next

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.