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nicole95790 nicole95790

What does Huntingtons feel like in the early stages? I've been getting"fits" of tics for 3 years now

I gets "Fits" of tics. They come on suddenly last anywhere from 10 min to an hour. They include head jerking, hand and arm movements, facial grimace, etc. They appear to be triggered by stress but increasing in frequency. I've also had behavioural changes, severe anxiety, and depression. I've been trying to find a diagnosis for 10 years. Could this be the eally stages ofH huntingtons?

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  • NooNooHead1981 NooNooHead1981 nicole95790

    Hi Nicole

    ​I have tardive dyskinesia which is a drug induced involuntary movement disorder that includes grimacing, facial tics and other odd movements (lip smacking, toe wriggling, arm movements, tongue thrusting etc) so I sympathise entirely. :-( Are you sure yours isn't something like adult-onset Tourette's? I think some people have a disposition towards these types of conditions, and I know that I was probably predisposed to having an acquired disorder like TD. Believe me, you really don't want TD, it is bloody annoying!)

    ​Have you seen a movement disorder specialist or neurologist? I saw 5 different neurologists, and only one would definitely say that I had TD; the others were completely against the idea that I could get it after only a week on antipsychotics. Please feel free to private message me - I would like to try to help you. I know I don't have Huntington's, but I can completely relate to the annoying involuntary movements and how annoying they are!

    ​Best of luck.... stay strong. x

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