i have been suffering with hidradenitis(suppurativa) for...

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i have been suffering with hidradenitis(suppurativa) for the last 6 years and as im getting older the worse the condition is getting. ive tried several antibiotics and creams which work for a short while but no long term relief. i only suffer with this condition in my groin and as you can imagine this really does affect my whole life and my personal life too, im very lucky to have a supportive husband but you cant help but feel ugly and disgusting. the only thing ive never been asked is about contaception (as i do not need to take the pill) but reading several articles they all say that the combined pill can help, so back to the doctors i go. wish me luck.

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    M

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    Please do go to your doctors and try the Dianette pill ( as called in the UK...may be different name in other countries)

    I have had HS for 13 years now and the only thing which has made a difference to it is using anti-androgen therapy, which has brought it from Stage III to Stage I and manageable ( though no less hard to live with) I take the anti-androgen - cypreterone acetate in the Dianette Pill and also 14 days in every cycle. I have to have my liver checked every few months as the cypreterone can cause damage, but so far so good.

    It's not effective for everyone, but skin wise, I am olive skinned and very dark haired. Never had acne as a teenager, just a few spots.

    I run the Yahoo HS UK group if anyone of you reading this needs support. If you would like to join, please follow the following link

    http://uk.groups.yahoo.com/group/hs-uk

    I hope this isn't breaking any rules oin this site, but I feel it's so important for everyone one with this disease to have a support around them, people who suffer the same and have "been there" There is also a great support group with divisiona ll over the US, where HS is recognised as a disability. It is here in the Uk too...but only in some counties.

    Still you can find all about that if you come and join.

    Meantime, this is also a great board.

    Thanks to whoever put it up for raising the awareness.

    Thanks Norlei ( Sussex, UK)

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