Rett UK

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Langham House West
Mill Street

Tel: (Family Support): 01582 798911, (General) 01582 798910


Rett UK (formerly the Syndrome Association UK) is a national organisation giving help, advice and support to families and professionals.

Rett UK supports families through a national helpline, including telephone and email support, co-ordinates Rett specialist clinics in conjunction with the NHS, organises support groups and have a dedicated parental contact network. They are a small team working on a national level receiving no government or lottery funding and rely entirely on donations and grants to fund our work.

Last updated on 29/07/2014

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