The Haemochromatosis Society

PO Box 6356
Rugby
CV21 9PA

Tel: (Advice Line) 03030 401 102, (Office) 03030 401 101

Web: www.haemochromatosis.org.uk

The Haemochromatosis Society was established in 1990 in order to help, support and provide information for those affected by Haemochromatosis (iron overload disorder). Membership has grown over the years, but to date the Society has not employed paid staff. The volunteer board, advisors and adminstration staff work to further Society's aims, which are:

  • To support people with GH by providing help with their problems and ensuring that their relatives are tested in due time. The quarterly newsletter provides news and views from members in the UK and from around the world. Opportunities to meet other members living nearby are arranged if they wish.
  • To promote awareness among the health professions, patients and their families, the general public and policy makers so that the condition may be diagnosed and treated in time. There is also a need to overcome the misconceptions that GH is rare, that only middle-aged men are at risk, and women are seldom affected until their menopause.
  • To encourage and support research, and provide resource material for the allied medical professions. The Society keeps up to date on the latest studies.

Last updated on 30/04/2015

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