The British Porphyria Association, a registered charity, aims to reach out to as many people as possible - patients, doctors, hospitals and research establishments in order to improve the understanding of this condition. Early diagnosis is vital if they are to improve the quality of life for those affected by it. The BPA does this in various ways:
- By improving understanding of the condition, raising awareness and ensuring that the portrayal is always accurate.
- By raising funds in order to educate patients and their families about their condition, and for new research into the field of porphyria.
- By providing an emotional support system for sufferers and their families, and providing contacts with doctors and specialists.
- By facilitating understanding for doctors and other healthcare professionals.
Last updated on 07/07/2015