Moebius Research Trust

49 Inglis Avenue
Port Seton
East Lothian
EH32 0AG

Tel: 01875 819822


The Moebius Syndrome Research Trust was set up for two main reasons:

  • To raise £250,000, allowing ground-breaking research into the cause of Moebius syndrome.
  • To find 100 people with Moebius syndrome to assist with the DNA testing.

Their website also provides a lot of information about the syndrome.

Last updated on 27/08/2015

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