49 Inglis Avenue
Tel: 01875 819822
The Moebius Syndrome Research Trust was set up for two main reasons:
- To raise £250,000, allowing ground-breaking research into the cause of Moebius syndrome.
- To find 100 people with Moebius syndrome to assist with the DNA testing.
Their website also provides a lot of information about the syndrome.
Last updated on 27/08/2015